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Love 3y

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Learn to listen to others too #PropionicAcidemia #usa

💡”Everyone you will ever meet knows something you don’t!”
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🙋🏻‍♀️Raise your hand if you are quick to close yourself off from new people in fear of maybe being let down, of being used, of being judged and the list goes on. 🧨Is there a risk in being burnt? Absolutely! I choose to focus on how people can help me grow in order to continue the impact I have to make in the lives of others.
#Love #TheMighty

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MightyTogether 3y

Good morning how are you? We are very interested in propionic acidemia disease and have been learning about it, because we have an assignment in our n

#MightyTogether

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kids with ronald mcdonald

kids with ronald mcdonald

Heather McCarthy

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Propionic Acidemia

6y

10 Ways to Give Back to the Medical Community if You Use MLK Day as a Day of Service

One of the greatest civil rights leaders, Rev. Dr. Martin Luther King Jr., lived his life serving others. He believed in inclusion for all and made the civil rights movement about universal acceptance. Following his example, millions of Americans use Martin Luther King Jr. Day as a Day of Service. The MLK Day of Service [...]

Story

What I Learned From Attending a Propionic Acidemia Conference

Heather McCarthy

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Propionic Acidemia

7y

What I Learned From Attending a Propionic Acidemia Conference

I’m sitting in a conference room listening to researchers, doctors, and dietitians challenge each other. They’re questioning each other’s studies, pressing to gain more information, debating on best practices. This would normally sound like a nightmare, but I’m in heaven. As a mom to two children with propionic acidemia, it’s music to my ears to [...]

Story

kids playing doctor with toys

kids playing doctor with toys

Heather McCarthy

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Propionic Acidemia

7y

7 Pictures Showing How Life Can Be Affected by Propionic Acidemia

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients’ lives. Both Maya (age 7) and Christian (age 3) have a rare metabolic condition called propionic acidemia. [...]

Story

woman holding a baby in the rain

woman holding a baby in the rain

Heather McCarthy

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Propionic Acidemia

7y

A Playlist for Parents of a Child With Propionic Acidemia

Our family loves music. Our daily dance parties take place in either the kitchen or basement. My 7-year-old daughter Maya, my 3-year-old son Christian, my husband Rob, and I all take turns choosing a song to play on our Amazon Alexa device. As a mom to two children with special needs, music seems to have [...]

Story

little girl dancing

little girl dancing

Heather McCarthy

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Propionic Acidemia

7y

A Playlist for Propionic Acidemia Patients

In my last blog post, I shared my playlist of songs for a propionic acidemia parent. I have two children with propionic acidemia who love to have daily dance parties. My 7-year-old daughter Maya not only loves dancing but also singing at the top of her lungs. While Maya loves these songs because she knows [...]

Story

boy playing soccer

boy playing soccer

Heather McCarthy

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Propionic Acidemia

8y

The Meltdowns You Don't Often Hear About

When we hear about meltdowns, most people automatically think about a child with autism. We read about sensory meltdowns, the difference between a meltdown and a tantrum, and how people react when seeing a meltdown in public. While meltdowns are common in the autism community, they’re not unique to only those with sensory processing disorders. [...]

Story

Little boy and girl whispers.

Little boy and girl whispers.

Heather McCarthy

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Propionic Acidemia

8y

How to Help Your Child Navigate an Invisible Condition

An invisible disability or a hidden illness is described as one that is not immediately apparent or cannot be seen. We often hear adults talk about their invisible disabilities and the hardship it brings. Invisible illnesses are hard enough to handle as an adult, but what do you do when your child is the one [...]

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mother and two children walking on woodland path in autumn

mother and two children walking on woodland path in autumn

Heather McCarthy

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General Parenting

8y

The People I'm Thankful for as a Special Needs Parent

Thanksgiving is a wonderful time to reflect on all we are grateful for. It’s also an ideal time to give thanks to the people in our lives who truly make a difference. As a mom to two children with special needs, I am constantly saying thank you. Thank you to the pediatricians, doctors and nurses. [...]