Prune Belly Syndrome

Chances are, if you stumbled upon this blog, you are here reading about my now 6-year-old son Oakley’s journey with Prune Belly syndrome and kidney disease. Both are life-threatening and serious diseases with no cures. I am a huge advocate for both diseases to bring much needed awareness. Prune Belly syndrome only effects one in 40,000 births [...]

At my 20th week of pregnancy, the nurse conducting the ultrasound noticed an anomaly in the fetus. My gynecologist recommended in-depth 4D scans to try to assess if there were any other indications of more serious problems. The syndrome was not diagnosed in utero. Doctors didn’t want to take any chances, and a C-section was [...]

While I was pregnant, we knew our son would would have a multitude of health issues. But it wasn’t until he was born that we learned he had prune belly syndrome. Prune belly is a rare and life-threatening syndrome affecting just 1 in 40,000 births. There is no cure at this time, but there are treatments [...]

One mom is on a mission to have her son’s story told after a popular crowdfunding site removed photos of her him. Oakley, 4, has Prune-Belly syndrome, which is a rare disorder characterized by partial or complete absence of abdominal  muscles, failure of both testes to descend into the scrotum, and/or urinary tract malformations, according [...]