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On top of everything

I got pneumonia.

Aside from the daily challenges, which offer surprising variety and mystery along with the pain, physical discomfort and brain fog.

I just want to scream, I'm so done rn. Or have someone else scream for me, I'm too tired and sick to do it myself.

Hard to keep my eyes open, hard to swallow, revolted from the honey candy im taking to soften my throat and swallowing... just too much at once.

And I missed halloween with my niece.

#rantover #Arthritis #Fibromyalgia #AutoimmuneImmunodeficiency

2 reactions

Behind every productive day is a painful day....

I am sure many of you understand this. It is actually quite nice to talk to people who truly get it. But what everyone around me fails to see is that any time I have a productive day, then I know I am going to pay for it the next day. It doesn't matter how physically exhilarating it is. I could be getting stuff done on the computer all day and still have the same results. And no matter how many times I explain that when I say my body aches, I do not mean that it is sore, people still equate it to that.

I just want to scream, "NO HUN, my aches are not the same aches you get after a long day at work. It is an indescribable pain that doesn't go away. In fact, it is only getting worse. It is not just a part of getting older! YOU DO NOT UNDERSTAND WHAT I AM GOING THROUGH!!!! You would never speak this way to someone with cancer. And I am not comparing my illness to cancer, but if you think doing so would be absurd that is exactly how I feel when you compare my pain to yours!!!!!"

But instead of saying all of that I usually just nod along and silently suffer. It is like people think I am just making excuses or something. I want to start calling people out when they say some rude and ignorant.


#Fibromyalgia #ChronicPain #ignoranceisnotinnocence


What a tangled web we weave

I’m 28, and a corporate attorney. I’m quitting big law to pursue a 3-month course in image consulting followed by a 9-month masters in fashion marketing and communications in Barcelona. My dream city!!😍 ❤️ I didn’t know I’d be accepted. I thought they’d laugh at me, but they did and now I don’t know how to tell my mom or my grandpa (father figure) about it. I come from a *very* conservative hispanic/italian/arab family and they don’t believe in pursuing dreams or passions. They believe in thinking with your belly. I’ve been seeing a coach for months now *literally* to prepare for the moment...not for the transition from law to image/fashion or in preparation for life in Barcelona, but rather in preparation to tell mom and grandpa about my decision...and I still dread having to do this every single minute since I got my acceptance letters, months ago. #rantover #Anxiety