raregenetics

Feeling weary & very weak,
I smile so I don't look so bleak.

No one knows the amount
of pain I feel,
I know if they did,
they themselves couldn't deal.

I stay strong & try not to cry,
all the while asking God why.
why was I designed to have a painful,
disabled life?
God replies
"Because you were designed
with awareness in mind...
You're spirit can handle it,
you're strong & you're kind.
Don't hide your pain,
talk about it with pride"

By Mica Warsop
#ChronicPain #Disability #mobility #InvisibleIllness #Undiagnosed #FunctionalNeurologicalDisorder #RareDisorder #raregenetics #invisiblesymptoms #Ableism #misundersoodillness #InvisibleDisability #lifelongconditions #Dontlooksick

I was adopted at birth and just found my bio families. I am trying to trace the EDS to a side. Does anyone know if CF (Cystic Fibrosis)can be associated with EDS? We were dx hEDS in 2004 and I have not heard of it but though y’all may have. I am so glad I found this page while searching for some answers. Have a great day everyone!
#EhlersDanlosSyndrome #CysticFibrosis #disorders #raregenetics