Invisible Disability

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Invisible Disability
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I know people of The Mighty get it!

In a world where isolation weighs heavy, The Mighty is a community where understanding souls gather to support one another. Hi there👋🏻 - I’m Sally. I joined The Mighty because I’m just so exhausted. Exhausted by progressing illness, extreme pain, overwhelming fatigue, and trying to maintain a full life around it all! I know people here get it. Recently, I've been fighting for insurance reform and advocating for patients to receive the care they need and deserve. I do everything with my sidekick - Jon Snow, my fabulous service dog. It’s nice to meet you!

#MightyTogether #patientsoverprofit #InvisibleDisability

13 reactions 3 comments

I'm new here!

Hi, my name is lemonskinn. I'm here because I’ve just gotten another diagnosis. My doctor can’t help me, he said it’s just inflammation and chronic pain. The same type of things you’re already dealing with. So I wanted to find a community, that will help me feel not so crazy, when I’m outta my mind with pain.

#MightyTogether #Anxiety #Depression #Migraine #PTSD #MultipleSclerosis #AnkylosingSpondylitis #EhlersDanlosSyndrome #Fibromyalgia #Insomnia #ChronicPain #ChronicIllness #InvisibleDisability

22 reactions 8 comments

I'm new here!

Hi, my name is artsydragon. I'm here because I struggle with chronic pain in my joints and digestive issues. Neither have been formerly diagnosed but I am waiting to be seen by specialists and have been told it is likely I have a form of arthritis and possibly IBD.
During this waiting period of the unknown, everything feels really scary. I don't know what my future will look like and it feels like I am constantly fighting an invisible battle. I have come here to meet others to feel less alone in this journey, and to discover advice and tips that could help me.

#MightyTogether #Arthritis #InvisibleDisability #Anxiety #Depression #ADHD #InflammatoryBowelDiseaseIBD

4 reactions 2 comments

Just mad at casual ableism

So I never ever even talk about my disability or illness anymore because I know people who absolutely don't have any experience in disability will try to argue with me on my own life experiences that they have literally no experience in at all and it will make me upset so I just don't talk about it anymore except for talking about it online under disability related accounts but this time when I was commenting I forgot that this tiktoker's audience is mostly able bodied people even if she does make disability related content. I wrote something and one of her fan's got really mad at me and starting attacking me and literally acting like as if they know more about disability something they literally know nothing about more than a disabled person myself and they literally started attacking my disability and saying I'm insecure because of it and this and that and I'm just really upset and mad right now that someone with the privilege of health thinks they know more about something I have suffered because of for my entire life more than I do. I know I seriously need to just stop and just chill but I'm mad and I don't know how.
#Disability #ChronicIllness #InvisibleDisability #ChronicPain #Fibromyalgia

7 reactions 1 comment
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Pain explaination? #ChronicIllnessEDS #Anxiety #InvisibleDisability

How do you explain pain ? I'm doing pt for my Si joints for a twisted and tilted pelvis and knees and everytime the therapist asks how I'm doing? I say okay more or less sore than last time. I'm not sure how to explain my pain . I've apparently been doing this all my life and in the last year discovered is not normal to feel like this. I am I downplaying how I feel and hurting myself.

She said something the other day about doing pretty good because Occipital pain she heard is supposed to be debilitating, It is and some days I dont function well but I can't just give up and suffer. I have to go to work and deal with the public. But as usual my brain is over thinking everything. I don't want to seem over dramatic because I look normal. I hide it pretty well. #hypermobileehlers-DanlosSyndrome(hEDS) #Anxiety #EhlersDanlosSyndrome

12 reactions 4 comments

Help with Invisible Disability Research!

Hi! My name is Karley Gabriel and I am a doctoral candidate (and spoonie) working on a dissertation that studies invisible disabilities and well-being. If you have an invisible disability and the time, would you mind filling out this survey? The survey is expected to take roughly 20-30 minutes to complete.

Survey link:

Thanks so much for your time and consideration! 😊

#ChronicIllness #ChronicPain #MentalHealth #InvisibleDisability

6 reactions
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😬Our ‘Public Persona’😬

This is exactly what I, and countless others, do everyday - we put up a ‘public persona’ to hide what we’re truly going through. We pretend that we aren’t: in #AGONY or #depressed or #exhausted or #anxious . We pretend because we are #scared of how others would treat us if they really know what we were going through. The thing is though, by pretending we are something we’re not, we are giving ourselves more #Stress but also denying someone the opportunity to help us deal with the things that are really going on in our lives.
#itsokaynottobeokay #itsoktoneedhelp #ChronicIllness #chronicillnessawareness #ChronicPain #chronicpainawareness #mentalhealthmatters #MentalHealth #MensMentalHealth #CollegeMentalHealth #MentalHealthAwareness #Disability #IntellectualDisability #DevelopmentalDisability #InvisibleDisability #disabilityawareness #invisibleillnessawareness #FunctionalNeurologicalDisorder #FND #FNDAwareness #JointHypermobilitySyndrome #ChronicMigraineSyndrome #ChronicVestibularMigraine #HemiplegicMigraine #Migraine #BipolarDepression #ChronicDepression #Depression #ChronicFatigue #Anxiety #SensoryProcessingDisorder #BrainFog #PanicAttacks #PanicDisorder #notalone #BeYourself

342 reactions 71 comments

Cancelling Work

Just cancelled my second shift this year.

I feel so terrible but I just can’t face the pain today, even knowing if I could bring myself to shower and get up, it would subside a little.

There are workers coming to my house today which is stressful because it’s awkward and I might be in their way if I stay in bed or watch tv on the couch but I’ve got nowhere else to go.

I really needed the money too and my boss will be so mad at me. She’s sick with her pregnancy right now and always had the attitude that people choose to be sick.

Sorry to vent, just feeling miserable and wishing for hugs. #InvisibleDisability #Fibromyalgia #Work #Depression

39 reactions 12 comments