My CPK-total level was over 8000 on Tuesday. And I feel like crap on a stick! Currently drowning myself in fluids after getting out of the hospital yesterday.
My shrink took me off zoloft completely, so I went from 100mg to 0mg in a day. I'm still on an SNRI, we just stopped mixing in the SSRI. I've been on zoloft for 9 years, kinda nervous my brain won't like being without it.
I decided to do something to show what this invisible illness looks like to people who cant understand.. using special Fx Makeup, i was able to show what my flare looked like to my dad.
On top of fibromyalgia... I have something called non traumatic rhabdomyolysis and im all the way over life rn. Im 28 and this is no way to live. #prayforme
I recently got diagnosed with Fibromyalgia, I have been going through recurring Rhabdomyolysis since 2013, I had a friend reach out to me to tell me that my CK getting that high that often isn’t normal. I have been going through a series of tests I over the past year and I am honestly exhausted. I can’t sleep but when I do I sleep for hours, all day and night, I feel upset because I feel like I’m never going to get answers. I miss going to the gym but I can’t right now because I just got out of hospital for rhabdo. It’s just a lot and the FM is something that people don’t really understand. I get my results back this week to find out if I have a rare metabolic disorder this week and I’m scared to be honest. I feel like no one get it, even the people closest to me. My skin has been hurting so much because of all the stress lately. Has anyone gone through this or have any advice? I’m in real need of some moral. I feel like if I find out if I have a metabolic disorder I will have some ease knowing I can supplement it in some way but I also don’t want to have to be careful of think about how I exercise, sat or live my day to day life. #Fibromyalgia #Rhabdomyolysis #recurringrhabdomyolysis #Metabolicdisorders
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