silentillness

#MixedConnectiveTissueDiseaseMCTD
I posted this on my Facebook. with this quote I found here.
For all those with invisible illnesses. Or any chronic illness.
It does get tiring hearing, “I’m tired” “I don’t feel well” “I hurt”, but I can promise you, if you hear that, that person trusts you.
With an invisible illness, we stand by the “I’m fine” “I’m good” or the follow up “really, I’m just tired today”.
To actually say we don’t feel well, hurt or just plain exhausted, that’s vulnerability that not many get to see. These times are especially difficult Bc if you have not experienced it, you really can’t understand.
“You look fine” yes, one might. But that doesn’t mean to get out of bed, take a shower, get dressed, and everyday tasks didn’t take everything that person had to give. That they didn’t silently cry from the pain, guilt, thoughts of worthlessness or uselessness. That they didn’t silently cry as they missed another event or meetup or anything social Bc they truly couldn’t be there.
There is so much that they don’t share, it gets old and tiring hearing “you never feel well” “when aren’t you tired” “you know you’d feel better if you...”
I ask anyone that loves someone with a silent illness to research it. Ask your loved one to open up and listen to understand not judge. To understand somedays will be better then others and be their safe place in the world 🌍 that has become so unsafe, painful, and judgmental.
Silent illnesses often lead to isolation, lack of trust and feelings of abandonment, being useless or worthless. It’s hard to love someone with these kinds of illnesses, one you can’t see, but if you do, do it, or walk away and not add to them when they already have so much on their plate. Bless you for the ones who are able to do that. It is a gift in this world to have one true friend in whatever fashion they appear.

#MixedConnectiveTissueDiseaseMCTD
I posted this on my Facebook. with this quote I found here.
For all those with invisible illnesses. Or any chronic illness.
It does get tiring hearing, “I’m tired” “I don’t feel well” “I hurt”, but I can promise you, if you hear that, that person trusts you.
With an invisible illness, we stand by the “I’m fine” “I’m good” or the follow up “really, I’m just tired today”.
To actually say we don’t feel well, hurt or just plain exhausted, that’s vulnerability that not many get to see. These times are especially difficult Bc if you have not experienced it, you really can’t understand.
“You look fine” yes, one might. But that doesn’t mean to get out of bed, take a shower, get dressed, and everyday tasks didn’t take everything that person had to give. That they didn’t silently cry from the pain, guilt, thoughts of worthlessness or uselessness. That they didn’t silently cry as they missed another event or meetup or anything social Bc they truly couldn’t be there.
There is so much that they don’t share, it gets old and tiring hearing “you never feel well” “when aren’t you tired” “you know you’d feel better if you...”
I ask anyone that loves someone with a silent illness to research it. Ask your loved one to open up and listen to understand not judge. To understand somedays will be better then others and be their safe place in the world 🌍 that has become so unsafe, painful, and judgmental.
Silent illnesses often lead to isolation, lack of trust and feelings of abandonment, being useless or worthless. It’s hard to love someone with these kinds of illnesses, one you can’t see, but if you do, do it, or walk away and not add to them when they already have so much on their plate. Bless you for the ones who are able to do that. It is a gift in this world to have one true friend in whatever fashion they appear.