silentillness

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dear younger me...

Dear younger me,

Here are all the things I wish I could say to you.

First, I want you to know you are amazing.

I wish you truly believed that.

You’re amazing not because of what you accomplish athletically or academically, but because of who you are.

Your athletic and academic feats are amazing, but they have come into being because of who you are.

You work harder than anyone I know. You put your whole heart into everything you do. You embody loyalty and sheer persistence and care deeply about your friends.

You give everything you have to those around you, and then some.

Sometimes, and perhaps, too much.

I want to preface this letter by telling you two things…

First, I’d never assume I know how to make things feel easier.

Secondly, I want to remind you I’ve been to that place where I know you are — where I couldn’t find a single thing in this world to hold onto. Where it felt like nothing would ever be OK again. Where I felt irreparably shattered, irrevocably not enough and I wondered how to go on.

It hurts so impossibly much. More than you ever knew it could.

I promise I won’t ever try to make your struggle seem better than it is. I also know I cannot take it away from you.

What I can promise is you’re not alone.

One thing I do wish I could impart upon you is how far it can go to have grace with yourself.

I think you’re afraid you’re not worthy of love. It breaks my heart to see you terrified you’ll be abandoned by everyone you count on.

I want you to know it is not a sign of weakness to be dependent on someone.

It’s a sign of courage to love someone that much.

Here is the difference I want you to know: sometimes, the person we feel we cannot live without has become that person because we love them so much our heart would simply shatter and never be whole again.

There’s an element of beauty and powerful meaning in love and pain so great you wonder how to breathe.

Sometimes, though, the person we feel we cannot live without has become that person because we don’t believe we are enough without them. We need that person to believe we have value; that we will be OK; and that our life is worth living.

I want you to know soon you will meet amazing friends to whom you can tell your deepest fears and memories.

Who will come to know you as you.

Who will give you the courage to feel the hurt, to have compassion for yourself, to believe you’re lovable.

But right now, I know that feels almost impossible to imagine.

I know you still overanalyze every single text message you send and receive.

I know you still dissect every interaction you have with friends and you’re always left unsettled and terrified of abandonment.

These friends you will meet will help you to believe — slowly, over time, again and again — they will always be here for you.

As time goes on, you’ll find you possess incredible empathy and the courage to be vulnerable because you’ve been forced to heal from feeling like all you once believed in has let you down.

I know right it is too terrifying to acknowledge how much your trauma hurts.

I see you deny it and push it away through being hard on yourself or others, as if letting that stand in place of the much more substantive pain of events you can’t find a way to talk about. And while I’ll never be grateful for what was asked of you, the you of today is so proud of you and who you have become through all you have experienced.

You’ll have so much to give and you’ll give of it so freely.

You’ll be able to hold the pain and suffering of others without fear.

You’ll find such great joy and confidence in believing who you are is enough.

So here is what I wish you knew now, but am so excited for you to learn: you are not what happened to you.

You are not what you produce.

You are who you have become through all you have experienced and learned, and that is an extraordinary human.

This will never compensate for the pain and struggle you’ve seen and known, but it is still so good.

I’m so proud of you.

This world needs your light.

This world needs all of our lights.

And the more you believe your very light is what makes you worthy, the brighter it shines.

So regardless of any circumstance, this is what I promise you:

You are enough.

I hope you believe that in the depths of your soul.

#CIRS #AutoimmuneDisease #silentillness

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I'm new here!

Hi, my name is rkjensen222. I'm here because I am a retired publisher and helped one of your members publish an important book associated with Autism Spectrum Disorder. I hope to connect with Matt Weatherford and other autistic adults here, as well as adults dealing with what is known as a "silent illness" such as debilitating autoimmune conditions where on the outside they may look fine, yet, in reality, their immune system is literally killing their bodies in various ways over time. These autoimmune conditions have different diagnoses, yet, we share many of the same experiences in social settings, as well as similar symptoms, although, of course, many different symptoms that affect our bodies and minds in various ways. I have a belief that if one day people start a support group that is all inclusive of various "silent illnesses" people suffering from these conditions will benefit greatly and find many answers from fellow members they have been looking for for years.

#MightyTogether #AutismSpectrumDisorder #silentillness #AutoimmuneDisease #autoimmune #silentillness #Autism #MultipleSclerosis #RareDisease #StiffPersonSyndrome

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loving one with a silent illnes #silentillness #Love

#MixedConnectiveTissueDiseaseMCTD
I posted this on my Facebook. with this quote I found here.
For all those with invisible illnesses. Or any chronic illness.
It does get tiring hearing, “I’m tired” “I don’t feel well” “I hurt”, but I can promise you, if you hear that, that person trusts you.
With an invisible illness, we stand by the “I’m fine” “I’m good” or the follow up “really, I’m just tired today”.
To actually say we don’t feel well, hurt or just plain exhausted, that’s vulnerability that not many get to see. These times are especially difficult Bc if you have not experienced it, you really can’t understand.
“You look fine” yes, one might. But that doesn’t mean to get out of bed, take a shower, get dressed, and everyday tasks didn’t take everything that person had to give. That they didn’t silently cry from the pain, guilt, thoughts of worthlessness or uselessness. That they didn’t silently cry as they missed another event or meetup or anything social Bc they truly couldn’t be there.
There is so much that they don’t share, it gets old and tiring hearing “you never feel well” “when aren’t you tired” “you know you’d feel better if you...”
I ask anyone that loves someone with a silent illness to research it. Ask your loved one to open up and listen to understand not judge. To understand somedays will be better then others and be their safe place in the world 🌍 that has become so unsafe, painful, and judgmental.
Silent illnesses often lead to isolation, lack of trust and feelings of abandonment, being useless or worthless. It’s hard to love someone with these kinds of illnesses, one you can’t see, but if you do, do it, or walk away and not add to them when they already have so much on their plate. Bless you for the ones who are able to do that. It is a gift in this world to have one true friend in whatever fashion they appear.

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Post
See full photo

loving one with a silent illnes #silentillness #Love

#MixedConnectiveTissueDiseaseMCTD
I posted this on my Facebook. with this quote I found here.
For all those with invisible illnesses. Or any chronic illness.
It does get tiring hearing, “I’m tired” “I don’t feel well” “I hurt”, but I can promise you, if you hear that, that person trusts you.
With an invisible illness, we stand by the “I’m fine” “I’m good” or the follow up “really, I’m just tired today”.
To actually say we don’t feel well, hurt or just plain exhausted, that’s vulnerability that not many get to see. These times are especially difficult Bc if you have not experienced it, you really can’t understand.
“You look fine” yes, one might. But that doesn’t mean to get out of bed, take a shower, get dressed, and everyday tasks didn’t take everything that person had to give. That they didn’t silently cry from the pain, guilt, thoughts of worthlessness or uselessness. That they didn’t silently cry as they missed another event or meetup or anything social Bc they truly couldn’t be there.
There is so much that they don’t share, it gets old and tiring hearing “you never feel well” “when aren’t you tired” “you know you’d feel better if you...”
I ask anyone that loves someone with a silent illness to research it. Ask your loved one to open up and listen to understand not judge. To understand somedays will be better then others and be their safe place in the world 🌍 that has become so unsafe, painful, and judgmental.
Silent illnesses often lead to isolation, lack of trust and feelings of abandonment, being useless or worthless. It’s hard to love someone with these kinds of illnesses, one you can’t see, but if you do, do it, or walk away and not add to them when they already have so much on their plate. Bless you for the ones who are able to do that. It is a gift in this world to have one true friend in whatever fashion they appear.