Mixed Connective Tissue Disease (MCTD)

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Mixed Connective Tissue Disease (MCTD)
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    Symptoms Overload

    Recently January 12 to be exact this year I was taken off 2.5mg dosage of Prednisone. I’ve been on a combination of 5mg and 2.5mg sense December 2021. I ran out and doctor took me off it in full .

    I have had nothing but bad side effects from being taken off a steroid that I have been on for 1+. As of recent is a full blown rash like symptom covering my face.

    Anyone else ? #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon

    Post

    I’m new here!

    Hi, my name is Jyl1960. I've been diagnosed with MCTD and Behçet’s

    #MightyTogether #mixedconnectivetissuedisease(MCTD)

    3 reactions 2 comments
    Post

    I am so exhausted from being exhausted 🥱

    Does anyone else ever get this way. I go to bed exhausted (mind you that’s me barely making it to 9pm every night) wake up by 7am (out the door by 7:30am to get to work) . I wake up exhausted. Drink caffeine to try and help the sluggishness and cut myself off way before noon.

    I’m just so tired of feel exhausted and drained 24/7. It makes it hard to spend quality time with my family and significant other.

    Any recommendations?!

    #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #Insomnia #Depression #Anxiety

    49 reactions 13 comments
    Post

    How do I navigate unlawful termination?

    This was my 4th job I’ve been fired from since being diagnosed.
    When I say diagnosed it’s not just my Mixed Connective tissue disease, I have bipolar disorder, PTSD, Fibromyalgia, anxiety disorder, and depression.
    I had been sick a few times within 4 months and actually felt I was doing well adjusting to a sales line of work I had never done it before. I’m typically in administrative positions.
    Continuing on; I had enough when my manager tried to make a joke about me wearing a dress one day and reported him. I was told he had been written up.
    Since that day my performance was scrutinized repeatedly I was made fun of because I stopped using alcohol. - my flares were out of control.
    I was told I wasn’t a team player but also since I didn’t volunteer to move hot tubs around I had lost “points in the game which my coworker had been winning” at the time. (I was unaware of a game)
    Two days later I was terminated for “not following policies and procedures.”
    I have tried contacting an attorney which I have been informed many times there’s a conflict of interest , the EEOC which the soonest appointment available is in mid May 2023.
    I need help- I’m not married, I don’t have savings. Why was I the one let go?
    #MixedConnectiveTissueDiseaseMCTD #PTSD #Fibromyalgia #AnxietyDisorder #BipolarDepression #BipolarDisorder

    9 comments
    Post

    Didn’t even realize…

    Didn’t even realize … I couldn’t do it anymore without severe consequences.

    Needless to say I am still struggling to find that balance for myself and what I can handle, be ehh after vs pushing myself farther than I should have because my brain doesn’t understand my body just can’t. Now am severely am / going to be paying the issues over the next week+.

    Went on my first really long car ride OH to SC and back over a span of 4 days. To pick up my daughter from Bootcamp Graduation and Celebrate her becoming a Marine.

    I didn’t have to drive to much which I have kinda figured out I really start having issues after driving an hour and am absolutely drained to nothing after. Every little movement in this car ride just sends shooting pain down my nerves.

    So needless to say I have been gritting my teeth sense Wednesday. So I can actually have a smile on my face and show how proud I am of her and to celebrate with my family.

    So yep…. It’s been a long never ending day the last 4 days and have not slept. On the positive I will be home in 30 minutes and hopefully relax my body.

    #MixedConnectiveTissueDiseaseMCTD #Anxiety #Depression #RaynaudsDisease #RaynaudsPhenomenon #ChronicMigraines #Nervedamage #AutoimmuneAutonomicNeuropathy

    14 comments