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I want air! #Breathing  #WegenersDisease

In seven years, I have had 10 separate airway surgeries to treat my #WegenersDisease. The last 3 were in  #2019 alone - January, July and November.

Since November, I've had two airway steroid injections. The last one was in February.

My 3rd injection was canceled due to #COVID19. I'm now scheduled for May.

But quite frankly, it's too late. I can't breathe again. I need surgery again.

#COVID19scares the crap out of me. My anxiety about it grows each and every day. If I end up on a #Ventilator , I'll never come off. This disease will kill me.

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#petrified when night arrives.

In the day I actually broadcast a singalong. And I have FUN and contact on FB. youtu.be/49y9EIl30Ws
Black humour kicks in.
At night when I have to get connected to my #Ventilator or when my damaged brain forgets to breathe, I just die! Simples! But what does this mean for my chances? #Reality of brain damage from #brainsurgeries . And #meningitises . And #ChiariMalformation with #CerebrospinalFluidLeaks ...
But my GP hasnt places me on the #highriskcovid19 list. Is it that I wouldn’t make it?