Wegener's Disease

Create a new post for topic
Join the Conversation on
Wegener's Disease
109 people
0 stories
3 posts
About Wegener's Disease Show topic details
Explore Our Newsletters
What's New in Wegener's Disease
All
Stories
Posts
Videos
Latest
Trending
Post

I want air! #Breathing  #WegenersDisease

In seven years, I have had 10 separate airway surgeries to treat my #WegenersDisease. The last 3 were in  #2019 alone - January, July and November.

Since November, I've had two airway steroid injections. The last one was in February.

My 3rd injection was canceled due to #COVID19. I'm now scheduled for May.

But quite frankly, it's too late. I can't breathe again. I need surgery again.

#COVID19scares the crap out of me. My anxiety about it grows each and every day. If I end up on a #Ventilator , I'll never come off. This disease will kill me.

7 comments