Arthritis

Needless to say nothings really changed for the better . Not necessarily the worst either.

I started embrel for my arthritis and I’m really not sure how I feel about it but I really don’t want to get back on prednisone . Equally aren’t the greatest. “Do the pros out way the cons . “

Therapy has been going good it’s kinda nice just to be able to talk to someone who’s not only studied it but lived with trauma as well and acts on her own suggestions for herself. Example: breathing exercises, does it on perineal tone / with clients to help / and recommends it .

Personal life feel like a rock stuck on the side of a river . Watching as life goes by .

Medical sometime I feel stronger most the time I feel weaker . Some days are better than others but over all auto pilot and suck. Between one condition flaring up another etc etc .

I’m having a hard time taking my medicine . It’s just like my brain is like “NO”. Squirrel and I get side tracked and don’t remember to do it . Even logging medical symptoms is tedious and just don’t have the will.

I’ve missed you old friends
#MixedConnectiveTissueDiseaseMCTD #AutonomicDysfunction #Depression #Anxiety #MentalHealth #RaynaudsPhenomenon #RheumatoidArthritis

I have become a festering mass of prejudice.

The beauty of the world I saw everywhere is now only captured in odd detail. 

Misery and regret fill my days, where once it was laughter and joy. 

Why should it be different for anyone, when it is the same for everyone? 

Wear and tear turn to weary tears in my twilight years. 

Hands that lifted heavy weights, can hardly lift a cup now without shaking; 

Those hands, brutally veined and gnarled with arthritis, no longer reach out to the future

but hide in memory of a once glorious capability.

This body, a reflection of its thoughts -

Bitter and twisted hands. Bitter and twisted mind. 

Care worn on the outside, destroyed on the inside;

All hope gone as Winter replaces the Spring and I am lost to despair.

Hi, my name is ChartreuseMouse116. I'm here because I’m looking for assistive tools for beading.

#MightyTogether #BipolarDisorder #Arthritis

Hi!. I'm here because

#MightyTogether #Arthritis #Uveitis #OCD #ADHD

Both my kids are persevering with multiple serious medical problems. I’m a single mom with very limited family, friend and community support. I’ve nearly died three times this year and 1-2 times every year for the past six years. My kids are very depressed about almost losing me again. My kids both have treatment resistant depression, CPTSD, endometriosis/ademomyosis,
rheumatoid arthritis, Crohn’s, epilepsy, polymigratory arthritis, degenerative spine disease, scoliosis, reynaud’s syndrome, cardiac issues, migraines and fibromyalgia, complex regional pain syndrome. The crushing guilt of being an ineffective mother, giving birth to two children who each have 5-6 illnesses inherited from me and their father who hurt them physically and emotionally especially when I was in the hospital getting 8 reconstructive spine surgeries with hardware, screws, plates in nine years covering most of my spine. My son is autistic spectrum disorder high functioning and affectionate. I’m so lucky to be here for my kids with my kids. I understand that without emergency surgery and a fully invasive opening, I wouldn’t be here today. I’m grateful to Gd for saving me. What have I done to my kids. I wasn’t so sick when I got pregnant. I didn’t know when I got pregnant that the kids father’s side has most of the same illnesses and there are many. Now both my kids, as they mature, their health diagnoses increase to longer terrifying lists of diagnoses including many of my dozens of disorders including from Crohn’s, epilepsy, an unspecified connective tissue disorders, immune modulatory disorder, endometriosis, interstitial cystitis, seronegative rheumatoid arthritis, primary immunodeficiency disorder, MGUS/multiple myeloma (monoclonal gammopathy of unknown significance), demyelinating syndrome like MS without known disease prognosis. This year I almost died three times from necrotic aspiration pneumonia with large abscesses in my lungs. I am eligible for the reversal ileostomy surgeries (2 surgeries- the first 8-10 hours is almost as devastating as the emergency colectomy. There’s a small window (4months) when surgeons can do this. It’s my only chance to get my life back to live w/o an ostomy. It’s a long process after surgery and the stoma is repaired in a follow up surgery. I need this surgery. It’s a long long recovery and major surgery with many complications. How can I do this to my family? I worry that my son & daughter can’t handle this much disruption, stress, sadness. We have such little support and no one called my kids to check on them as the plan we created was supposed to happen in emergencies. No one called. Every one gave excuses, so disappointing. Such a problem for future surgeries. I know they should be independent by now yet given their medical status, being an independent young adult is very challenging. I’m so thankful to my daughter who has been helpful beyond any thing I could have hoped for. She’s incredibly giving and loving to me. It’s hard to be here. Not functional, not effective.

#UndifferentiatedConnectiveTissueDisease #MixedConnectiveTissueDiseaseMCTD # primaryimmunodeficiencydisorder #PrimaryImmunodeficiency #AutoimmuneImmunodeficiency #CrohnsDisease #PTSD #ComplexPosttraumaticStressDisorder #ComplexRegionalPainSyndrome #CongenitalHeartDefect #Epilepsy #RheumatoidArthritis #DegenerativeDiscDisease #Scoliosis #InterstitialCystitis #Pneumonia #AspirationPneumonia
#necroticpneumonia
#Gastroparesis #gastrointesinlbleed #RheumatoidArthritis #singleparent #SjogrensSyndrome #DiffuseIdiopathicSkeletalHyperostosis #Diabetes #ComplexPosttraumaticStressDisorder #Ileostomy #Colectomy

I'm not talking about the upcoming holidays; although for me are depressing. I'm talking about that nasty sky dandruff! The temperature is only a high of 31 degrees F.
Honest I'm not sure which is in a flare! Fibromyalgia, Musculoskeletal Pain, Arthritis, hEDS or any combination. But I am absolutely miserable! Two days ago is when I pulled myself out of a multi-day deep depression. I had the energy so I tackled my living quarters which I had neglected 4/5 days. Also Scrolling YouTube and enjoying life. Before I knew it, it was like 3 am. Whoops!! Needless to say I didn't get much sleep that night. Last night between coughing (swollen tonsil), having to use the bathroom and sporadic pain of different types and in multiple places, I don't think I got more than 2 hours of sleep. So I am downright tired! I had to walk the 3 minutes to the grocery store (using my rollator walker) to get fruit, a few other items and much needed BC Powder. 3/4 of the way into shopping my back went into full spasm. It was all I could do to finish. I just needed to get my BC Powder and then pay. When I got to where my medicine was I was thinking; CRAP. Cause it was on the bottom shelf. A woman just happened to walk past and I asked her if she would get it for me and explained I can't bend over. She was polite and did so. This store has 6 self checkouts and typically only 1 (2 on busy days) regular registers where an employee rings you up and bags your groceries. I can't use that one because my body won't allow me to wait in the long lines where people have full carts. So I'm bending as little as possible to pick up an item off my walker seat, scan it and then bag it. By the time I'm done with that process I had 3 bags and could barely move. I hung one on each handle and the heaviest in the pocket under the seat. I fixed a quick lunch by tossing (I can't think of what their called) 6 of them into the air fryer. Put away my items and went to take them out. Ate those and some melon,and am laying down and my arms are wanting to resist holding my phone!
However; I know I am blessed. I know I've had worse pain days than this. AND ... I know this pain will eventually subside, I just gotta ride the wave of ... (no words to truly describe how I feel, Natural childbirth hurt less)! Thanx for listening. Oh, my BC Powder stopped my headache, but even the combination of my morning meditation of 6 are Tylenol Arthritis (I take 2) and Ibuprofen 800, the BC and I had taken my Gabapentin 300 MG; nothing stops this pain until it rides its course! Stay strong ya all! After all, that's what we do!! 😉