What’s a symptom of your condition(s) that you find hard to explain to others?
Living with a health condition—or multiple—can be complex and difficult to articulate, especially when words don’t seem to fully capture what it's like to experience certain symptoms on any given day. The nature of a condition (or how multiple conditions interact) and the way symptoms fluctuate, shift, or change can make explaining it feel like writing a dissertation. If that sounds familiar, you’re not alone—we get it! 🙋
What symptom do you find most challenging to explain? What strategies have you used to help others understand what you're experiencing? What do you wish was more widely understood to make it easier to communicate what you’re going through?
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