acrocyanosis

If you have Acrocyanosis or Erythromelalgia, do you mind sharing what it's like for you?

If your feet turn blue, is it painful?

If your skin flushes, is it always in the same places?

What helps alleviate your symptoms?

If I stand still in one spot for 5-10 minutes, my feet burn like a thousand angry ants are attacking. They also get red with purple-ish splotches up to my knees. Sometimes my hands will subsequently get puffy and red (with painful burning) and my face will flush and get hot with distinct patchy-ness. It subsides with compression, laying down, and going out into cold weather.

I assumed it was the typical "blue feet" associated with POTS (and wondered if the flushing/puffy could be MCAS!?) but I just learned about erythromelalgia and it seems like it could be a potential fit for the symptoms.

I plan to bring it up to my doctor but wanted to get a read on the real-person experience of each condition.

#POTS  #Erythromelalgia  #acrocyanosis  #LivingWithPOTS  #posturalorthostatictachycardia  #ChronicIllness  #MCAS #Dysautonomia  #AutonomicDysfunction

trying to figure out the best one for me to get with blood pooling and EDS