Mast Cell Activation Disorder

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Mast Cell Activation Disorder
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Lily
 • 
@risingtorare
MightyTogether 19h

I'm new here!

Hi, my name is Lily. I'm here because I have several rare chronic illnesses plus some not so rare ones. Two that are the primary behind a lot of secondary are Autoimmune Autonomic Ganglionopathy and Autoimmune Gastrointestinal Dysmotility. My mom also lives with myasthenia gravis.

#MightyTogether #Migraine #AutismSpectrumDisorder #ADHD #Dysautonomia #AutoimmuneAutonomicGanglionopathy #Gastroparesis #EhlersDanlosSyndrome #deltagranulestoragepool #POTS #PolycysticOvarySyndrome #Scoliosis #accomodationparesis #MastCellActivationDisorder #longcovid

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Madalynn
 • 
@madalynann
EDS 3w

New city new friends

Hi everyone! I recently moved to the Seattle area and would love to make some new friends. I’m chronically ill, so my life looks a little different than most people’s, but I enjoy coffee chats, walks on good days, crafting, plants, farmers markets, and spending time with my dog. It can be hard to meet people as an adult, especially when health challenges are involved, so I thought I’d put myself out there. Feel free to message me or comment on this post and say hello❤️ #EDS #EhlersDanlosSyndrome #Spoonie #AutonomicDysfunction #Gastroparesis #MastCellActivationDisorder #ChronicIllness #ArnoldChiariMalformation #Syringomyelia #Diabetes #ChronicPancreatitis #ChronicPain #Friends

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VelvetMarginalia
 • 
@velvetmarginalia
1mo

I’m new here!

Hi, my name is VelvetMarginalia (she/her). I have hEDS, EOE, PTSD, fibro, and migraines. and I'm pursuing diagnosis of cervical instability, chron's, mcas, pots, and more. I am looking for community as my health has rapidly declined and I would love to find people who understand. I am also a mama to a medically complex kiddo, and both my kiddos have autism/ADHD. I'm also a lesbian and have an amazing partner.

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poohtraybuon
 • 
@poohtraybuon
MightyTogether 1mo

I'm new here!

Hi, my name is poohtraybuon. Both my adult children and I have

#MightyTogether #Anxiety #Fibromyalgia #ADHD #Migraine #POTS #Dysautonomia #AutonomicDysfunction #Anxiety #EhlersDanlosSyndrome #MastCellActivationDisorder and so many other acronymns.

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UsefulSnowman1979
 • 
@usefulsnowman1979
MightyTogether 3mo

I'm new here!

Hi, my name is UsefulSnowman1979. I'm here because

#MightyTogether #Fibromyalgia #ADHD #EhlersDanlosSyndrome #AutismSpectrumDisorder #MCAS #avnrt

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UsefulSnowman1979
 • 
@usefulsnowman1979
MightyTogether 3mo

I'm new here!

Hi, my name is UsefulSnowman1979. I'm here because

#MightyTogether #Fibromyalgia #ADHD #EhlersDanlosSyndrome #AutismSpectrumDisorder #MCAS #avnrt

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Mighty Partners
 • 
Mast Cell Activation Disorder

Art Brings Daily Impact of Rare Disease to Life

Vanessa spent more than a decade searching for the reason she was experiencing unpredictable symptoms including hives, bone pain, brain fog and fatigue. Stress, weather changes and scented products would trigger reactions that disrupted her daily life.  “I remember I was at work when I had one of my most severe reactions,” she recalls. The [...]
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Zebramama0914
 • 
@zebramama0914
MightyTogether 4mo

I'm new here!

Hi, my name is Zebramama0914. I'm here because I need as much help as I can get for myself and my kiddos. Dealing with hEDS, dysautonomia, MCAS, ADHD, SIBO, CCI, and Tourette’s amongst us.

#MightyTogether #Anxiety #Depression #Migraine

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marinoc838
 • 
@marinoc838
MastCellActivationDisorder 5mo
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Cold urticaria 😬 😳 I just went for a walk outside with my dog - 30 degree weather 🥶 is this common with #MastCellActivationDisorder ? MCAS #ColdUrticaria

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