Autonomic Dysfunction

I’m actually pretty pleased with myself today.

This morning I went and had my flu and Covid vaccines done. Then I came home and I changed my sheets and bedding, followed by a lovely hot shower, and then I wrote two pages of my novel after being stuck with writer’s block for ages. I’m a little sore after all the movement, but I got through it. All over and done with now - I can rest. 😌😴

My GP is always telling me that I should celebrate every victory - even the itty bitty ones. I’ve made myself a lovely hot chocolate with a dash of Bailey’s Original as a treat, and I’m huddled up with my fluffy hoodie on now, all cosy like.

#chronicillnesswarrior #ChronicPain #POTS #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #EDS #EhlersDanlosSyndrome #Jointpain #jointhypermobility #InterstitialCystitis #BladderPain #Diabetes #NAFLD #LiverDisease #BPD #BorderlinePersonalityDisorder #Depression #Migraines #sciatica #BackPain #littlevictories

Hi, my name is KTRose. I'm here because

#MightyTogether #Anxiety #Migraine #EhlersDanlosSyndrome #MastCellActivationDisorder #AutonomicDysfunction

#HEDS #AutonomicDysfunction I find it hard to walk around and spend time with other people in their early 20s I need to sit and people stay with me which makes me feel like i need to push myself harder. I haven’t applied for a disabled parking permit or got a mobility aid because I don’t know when it’s time to get one. Do you get one when your life is heavily impacted and you need something to help you keep your life moving or after rehab?

We are the strongest people you will ever meet. And don't you ever forget it.
We might look okay, but we seldomly are.

We can look like a thousand bucks but feel like we just fell 1000 feet from an airplane onto thousands of legos with oozing cuts and bruises all over but we'll be smiling and laughing.
Our smiles will fool even the ones closest to us. Why do we do this? Because we don't want to inconvencience anyone else with our pain. It's not like we can be crying, screaming and moaning 24/7.
The tears are reserved for the flares that are a 8/10.
So when you see our smile fade, just know we are doing even worse than you can imagine.

We are warriors.

Every single day we wake up and fight our bodies. While we also try to manage our relationships, career and social life - as if those things aren't complicated enough without chronic illness being involved.

Health is the biggest wealth. But only those who lose it can truly appreciate that fact.

Stay strong fellow spoonies. 🤍🤍
#AutonomicDysfunction #POTS #Migraine #Undiagnosed #ChronicFatigue #Spoonie #InvisibleIllness

Hi, my name is hippityroo. I've been diagnosed with Inappropriate Sinus Tachycardia, Cluster Headaches, Neuropathy, PCOS, lumbosacral transitional vertebrae (LSTV), IBS, Hashimoto's, Autism Spectrum Disorder, Bipolar Disorder, OCD, C-PTSD, and ADHD. I have a EMG/nerve test tomorrow afternoon and I'm scared out of my mind. Does anyone have any tips or advice? Maybe advice what to expect? Not knowing it driving me up the wall. Thank you in advance! We're testing for Myositis and Limb-Gurdle Muscular Dystrophy if that makes a difference on the testing?

#MightyTogether #Depression #AutismSpectrumDisorder #PTSD #ADHD #OCD #EatingDisorder #Osteoarthritis #AutonomicDysfunction #Myositis

Almost every doctor I went to other than my neurologist thought I had dysautonomia (POTS). I did my table tilt test and everything came back normal. I have the symptoms plus more which I didn't really think I had pots bc of this. I have sweats, lightheaded, dizzy, fatigue bodyaches, headaches, I have fainted once, brain fog, GI issues, fevers, night sweats, low blood pressure, face rash (comes and goes), joint pain (I woke up on night in extreme pain bc my shoulder popped), bodyaches, nausea, heart beat changes either fast or slow depending, my ankle as swelled as well as my hand and wrist, headaches. I have a positive ANA test. Is it possible that instead of having dysautonomia I could have an auto immune disease that's mimicking dysautonomia symptoms? I feel confused.. Everything just keeps coming back normal, and I'm getting no answers. I'm so exhausted and in pain everyday and lightheaded.. #AutonomicDysfunction #Lupus #ChronicFatigue #Dysautonomia #Ana

Ever since I went back to work in September I’ve been looking forward to the weekends as times that I can relax and rejuvenate. But it seems that every weekend has its own complications and I push just a little harder to get through every day and the pain gets worse. Just when I think I can’t take it anymore and how am I going to possibly survive another day I do. And I should be proud of the fact that I do but I’m so tired. Every day I feel like the pain is getting worse and there’s no possible way I could survive and then I do … it does it make it fair that this appears to be the hand I was dealt and I wish that there was some sort of pain management that worked enough where I can live the the life I want too, not struggle everyday to just survive. I want to be able to live again not just survive one moment to the next. #Pain #PosturalOrthostaticTachycardiaSyndrome #POTS #AutonomicDysfunction