Acute Intermittent Porphyria

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Acute Intermittent Porphyria
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    Is anyone active on this site with any form of the Acute Hepatic Porphyrias? I have finally been diagnosed and am looking to connect with others.


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    Does anyone have acute intermittent porphyria?

    I have it and it took years to get diagnosed and some treatment but even drs treat is like we have a drug addiction. When the meds they give us help have some what a normal tandem now the government wants to take that away . I’m blessed that my dr cares more about his patients then what the government thinks!

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