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    #With social distancing in mind. #Barbie Wants coffee.

    #Chelsea must have hit snooze and missed our zoom meeting🤣

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    Playing an Autoharp in recliner life

    Xandra has an instrument she can play reclined.
    She gets lessons over Skype. It's pretty awesome that she can play her own music and accompany herself.

    #Endometriosis #ChronicPain #ChronicIllness #reclinerlife #Music #Barbie #Representationmatters

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    Relaxing in a cozy place can be so lovely

    Xandra enjoys getting chances to relax and just enjoy her cozy home. Because of her pain and IBS she and her partner are having a quiet holiday. Reading, watching TV, doing puzzles together. A lovely time.

    #Endometriosis #ChronicPain #Fibromyalgia #ChronicIllness #IrritableBowelSyndromeIBS #Barbie

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    Relaxing in a cozy place can be so lovely

    Xandra enjoys getting chances to relax and just enjoy her cozy home. Because of her pain and IBS she and her partner are having a quiet holiday. Reading, watching TV, doing puzzles together. A lovely time.

    #Endometriosis #ChronicPain #Fibromyalgia #ChronicIllness #IrritableBowelSyndromeIBS #Barbie

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    Patient Records Networks are Awesome

    Xandra can take some time for self reflection today. She was working from home to be able to call the doctor's offices and get her records transferred to the new surgeon she's going to see.

    It turns out that all 3 hospitals where she sees doctors are part of the CareEverywhere. All she has to do is sign one form so that the surgeon gets access to all of her records - GI, Pain maintenance, Pharmacology, GYN, General Practitioner.
    #Endometriosis #ChronicPain #ChronicIllness #Barbie #Representationmatters

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    Trust People with Disabilities to tell you what they need

    Xandra's friend Fanw wanted to invite her to a party but wasn't sure how to make that happen since Xandra can't sit for long.
    She invited her and asked how to make it work for Xandra. Xandra brought her own camping recliner so she could have a comfortable place to be.

    The party was a great chance to spend time with friends. Xandra wouldn't have been able to come if Fanw hadn't been so sensitive to her needs, and to trust her that she could come up with a solution.

    #ChronicIllness #ChronicPain #Accessibility #Inclusivity #Representationmatters #Barbie #Fibromyalgia #Endometriosis

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    holidays are about being together

    Xandra knows the holidays are about spending time with the people you love, not specific traditions.

    She had a lovely Thanksgiving, but no turkey. Takeout made the day easier for her to manage.

    #ChronicPain #ChronicIllness #Barbie #Representationmatters #Endometriosis #Pelvicpain #Fibromyalgia

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