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I'm new here!

Hi, my name is JenniPou. I'm here because I crave community, belonging and understanding. My condition is brutal to manage on a daily basis and am 2 years into my diagnosis. I'm looking to connect with others that understand what I'm going through and that I can learn from.

#MightyTogether #Behcet 'sDisease

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I'm new here!

Hi, my name is SpoonieSensei. I'm here because bringing awareness to the illnesses with which I fight and many others is crucial to me; awareness necessarily informs, and the the more patients, doctors, and others are informed the more research will be sought out and funded. I fight for every chronic illness warrior out there as well as for my many friends and acquaintances who have been taken by illness and a lack of awareness and information. I don’t want anyone suffering even like I have had to suffer and that motivates me every day!

#MightyTogether #Fibromyalgia #PTSD #RheumatoidArthritis #EatingDisorder #Behcet 'sDisease#CommonVariableImmuneDeficiency #TrigeminalNeuralgia

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Disabled #COVID19 #Behcet ’sDisease

I’m sooo tired of trying to figure things out on my own. Apparently I have poor airation and fractured ribs on my x-ray on Tuesday???? My MD told me to be sure to see my Plumonologist in December. ???? Thanks for the help????


I’m new here. I have Neuro Behçet’s Disease, IGA deficiency and lots of other stuff that goes with autoimmune issues. I’m feeling very alone. I’m looking for a new avenue of support and hope. I’m pretty alone. My husband has lost interest in my health and life. My Mother is 83 and is just never been able to care. #alone #Behcet ’s