chronic intestinal pseudo-obstruction

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@kaylajohnston54

ChronicIllness 1y

Can’t sleep

Night time is probably the worst. Anyone else up? Let’s talk! :)

#ChronicIllness #SpoonieProblems #Spoonie #Gastroparesis #EhlersDanlosSyndrome #MastCellActivationDisorder #ChronicIntestinalPseudoobstruction #PulmonaryHypertension #PulmonaryArterialHypertension #Painsomnia

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7y

To the Chronic Illnesses That Thought They Could Destroy Me

I hate what you have done to my body. I hate that you have taken away 22 years of my life and forced me to spend so many years in hospitals all over the country staring at the same four walls. I hate that you’ve taken away my athleticism and ability to play softball, basketball and soccer. It [...]

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8y

To the Strangers Whose Selfless Decision Gave Me 10 More Years of Life

On March 12, 2006, your life was changed forever in a traumatic way. But the most unselfish decision during your time of mourning changed my life, and the lives of my loved ones, forever. Carissa in 2004. That day I had been admitted to the hospital at 62 pounds with only a few days, if [...]

Story

To the Person Whose Chronic Illness Is Forcing You to Grow Up Quickly

To the Person Whose Chronic Illness Is Forcing You to Grow Up Quickly

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Chronic Illness

8y

To the Person Whose Chronic Illness Is Forcing You to Grow Up Quickly

I see you there. Wise and strong beyond your years. You might not realize how strong you truly are, but I can tell because once, I was you. Typically we grow up over a long period of time. Hitting essential milestones as we go. We crawl, then walk, then run. But sometimes when chronic illness [...]

Story

What I Want People to Know About Living With Gastroparesis

What I Want People to Know About Living With Gastroparesis

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8y

What I Want People to Know About Living With Gastroparesis

I began a journey that forever changed my life when I was diagnosed with gastroparesis (GP) and chronic intestinal pseudo-obstruction (CIP). Over the years, I’ve been on tube feedings and TPN (IV nutrition). I lost all of my veins for central lines. The doctors at my local hospital had no way to feed me. I [...]