Mast Cell Activation Disorder

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Mast Cell Activation Disorder
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    Technical issues

    <p>Technical issues</p>
    5 people are talking about this
    Community Voices

    Dressing/ tape sticky

    I recently got a port for fluids and ect but the dressing that the home helth says is absolutely the best doesn't stay on well so I've been using the tape they gave me to keep it on and they also think is the best. I'm reacting to the tape and when I take it off I'm sticky everywhere and I can't get it off without lot's of scrubbing... to the point of bleeding. it doesn't matter what I use. And that could really raise infection risk so I'm looking for suggestions for tape, getting tape residue off, skin protectant or a dressing that you have found works well. Thanks!
    #EhlersDanlosSyndrome #MastCellActivationDisorder #PosturalOrthostaticTachycardiaSyndrome #Port #tetheredchord #ChiariMalformation

    7 people are talking about this
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    Name change

    <p>Name change</p>
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    Things that bring you joy

    <p>Things that bring you joy</p>
    48 people are talking about this
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    Catfishing

    <p>Catfishing</p>
    125 people are talking about this
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    What tools do you use to help make your life better?

    <p>What tools do you use to help make your life better?</p>
    7 people are talking about this
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    I life too short… but lived with depth

    <p>I life too short… but lived with depth</p>
    9 people are talking about this
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    Pride was amazing!

    <p>Pride was amazing!</p>
    11 people are talking about this
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    Happy Pride! 🏳️‍🌈

    <p>Happy Pride! 🏳️‍🌈</p>
    23 people are talking about this
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    Goal Accomplished! Celebrate those wins! 💜

    <p>Goal Accomplished! Celebrate those wins! 💜</p>
    26 people are talking about this