spoonie problems

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spoonie problems
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Beth

Tortoise Thoughts

<p>Tortoise Thoughts</p>
6 people are talking about this
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Beth

Little Bit of Progress.

<p>Little Bit of Progress.</p>
27 people are talking about this
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Recreation

Alright, so for my birthday (which was Sunday), my husband got me concert tickets, which was the Friday before. I had been looking forward to it for months. My favorite band was playing, 4th out of 4 bands. I contacted the box office, concerned, because the venue was standing room only. Fibro Warrior here, and can’t stand very long and she directed me to ADA seating. Awesome!

I made it through 2 bands. Even sitting. I got up a couple times to watch the bands perform because I couldn’t see over the crowd but had already walked about 10 minutes from our car to the venue and then waited in line for probably 45 minutes. I was wiped. We left and I cried for about a half hour off and on because I was looking forward to this so much and had to leave because my body just sucks. My husband reassured me it was okay and we would catch them again.

I’m still learning my limits, but can anyone suggest anything? Fall is my favorite thing. Haunted houses and corn mazes and all that. And my nieces and nephew are visiting this summer and I want to do stuff with them but it makes it so hard. How do you adapt to your illness? #fibrowarrior #Spoonie #SpoonieProblems

18 people are talking about this
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I just don’t know 🤷🏼‍♀️

It’s sad when I don’t know if I’m actually sick with something or if it’s just my body having a flare, or if it’s even disease progression at this point. #Spoonie #AutoimmuneDisease #SpoonieProblems

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What are your tips for taking terrible-tasting medicine?

<p>What are your tips for taking terrible-tasting medicine?</p>
19 people are talking about this
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Test result Tuesday #SpoonieProblems

<p>Test result Tuesday <a class="tm-topic-link ugc-topic" title="spoonie problems" href="/topic/spoonie-problems/" data-id="5b23ceba00553f33fe99d163" data-name="spoonie problems" aria-label="hashtag spoonie problems">#SpoonieProblems</a> </p>
9 people are talking about this
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Chronic Illness/Disability

<p><a href="https://themighty.com/topic/chronic-illness/?label=Chronic Illness" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce6f00553f33fe98fe39" data-name="Chronic Illness" title="Chronic Illness" target="_blank">Chronic Illness</a>/Disability</p>
11 people are talking about this
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Mans best friend

<p>Mans best friend</p>
21 people are talking about this
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🤔 Why can’t they just agree?! 🤷🏻‍♀️

<p>🤔 Why can’t they just agree?! 🤷🏻‍♀️</p>
7 people are talking about this
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I feel so lost… 😔

<p>I feel so lost… 😔</p>
9 people are talking about this