Dercum's Disease (Adiposis Dolorosa)

Hi, my name is HPA39. I've been diagnosed with chronic allergic asthma with genetic heart condition so on oxygen, also have Dercums disease & degenerative spine with having 1discectomy. My husband has neuropathy multi organ sarcoidosis with Osteoarthritis degenerative spine & ulcerative Charcot foot has to wear a specialist boot, we were a semi healthy couple & parents until rare condition took hold of us both with debilitating pain
Hope to find some useful tips that stop us from feeling guilty on bad days#MightyTogether

I know what its like to be diagnosed with multiple rare diseases and be discriminated against for the color of my skin. I can only hope and give courage to the many other White Men who are now overlooked and hyper-sensitively discriminated against in this world where people now teach hate (CRT) in schools, state, and cooperate establishments to hate white people. White people are not oppressors, we are people, just like anyone else. White Men are people who also have health problems. White Men with health issues also Matter. For at least the last 20 years the slow decline of health for white Men has vanished, and I will shed light on this subject as long as I live and continue to be discriminated against. #DercumsDisease #EDS #hyperjointmobility #mastcell #Fibromyalgia #IBD #whitemenmatter

I know what its like to be diagnosed with multiple rare diseases and be discriminated against for the color of my skin. I can only hope and give courage to the many other White Men who are now overlooked and hyper-sensitively discriminated against in this world where people now teach hate (CRT) in schools, state, and cooperate establishments to hate white people. White people are not oppressors, we are people, just like anyone else. White Men are people who also have health problems. White Men with health issues also Matter. For at least the last 20 years the slow decline of health for white Men has vanished, and I will shed light on this subject as long as I live and continue to be discriminated against. #DercumsDisease #EDS #hyperjointmobility #mastcell #Fibromyalgia #IBD #whitemenmatter

Hi, my name is Rare1sTer. I'm here because

#MightyTogether #Dercum 'sDisease(AdiposisDolorosa)

Hi, my name is Sftbrni. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether

#Depression

#Fibromyalgia

#Crohn 'sDisease

#RheumatoidArthritis

#GiantAxonalNeuropathy

#Dercum 'sDisease(AdiposisDolorosa)

I have lipoma nodules that are growing inward all over my body and putting pressure on nerves. No doctors have been able to help me, and I have seen dozens.  Experts in Arizona, Texas, Louisiana, Mississippi and Arkansas have not helped.  CAN ANYONE HELP ME?  Regular meds like Cymbalta, Lyrica, Metformin do not help.