Temporomandibular Joint Disorders

Hi, my name is MOElovealways. I'm here because I live with Mast Cell Activation Disorder, Connective Tissue Disease/EDS, POTS, TMJ, chronic pain, complex headache disorder, neck/spinal instability and have been disabled since 2014. I have knocked at death's door several times and barely survived CACS surgery (celiac artery compression syndrome) and am just now able to start reaching out to other people who understand what I have been and continue to endure. I am terrified by everything happening in 2025 politics, public policies, healthcare, research, Medicaid, Medicare, and Social Security Disability programs.

#MightyTogether #Migraine #Anxiety #Depression #Fibromyalgia

Hi, my name is Donna17. I'm here because I saw a You Tube video today with a female who spoke about the problems she had with United Health Care Advantage in getting needed treatments and medical insurance coverage. I've the same problem with my needed dental, TMJ Dysfunction and full mouth dental implant reconstruction treatments. Dental is now $2,500 yr and no coverage for the other needed oral/dental treatments I mentioned. I've suffered my entire adult life being disabled and in pain with great limitations in quality of life without the needed proper treatment since there's no coverage for it by health insurance companies.

#MightyTogether #Fibromyalgia #Migraine

I am having a flare up of something and I’m not sure what. It might be multiple things. No environmental changes. No medication changes. No dietary changes No changes in hygiene products. Here’s what’s happening:

My voice has gotten more raspy
TMJ is a little more sore
Eyes dry
Major fatigue I am falling asleep while posting
Muscles are exceptionally still and sore
Feel not dizzy but something near even while sitting
Feeling faint when I stand
Involuntary movements in my arms - not quite jerking but almost a mild startle response
Tongue thrusting when talking only
Major slow motility
No appetite abdominal cramps
Cervical spine pain
Hyper focusing on a crime that happened
Racing thoughts
Voices
Anxiety

I always have some combination of these symptoms to some extent plus others but these are pretty extreme this past week.

It feels like my entire body is trying to make a prison break.

Any ideas? I am open to anything……

The appointment for the injection in my jaw is today at 3pm. It's 10am right now. I'm gonna shower in about an hour. My partner is going to the appointment with me.

Today's coffee adventure:

I didn't have any coffee yesterday. I just didn't have any spoons to do it. But I made some this morning. My partner set up the coffee maker so all I had to do was push the button. She used vanilla chai flavor coffee. I added some birthday cake flavored syrup and oat milk. It's actually quite yummy. I asked her to add some cinnamon but she didn't. That's ok, I'll do it myself tomorrow morning. I'm very grateful for my partner, she's my rock. I'd be lost without her.

#coffeeadventures #Relationships #TemporomandibularJointDisorders #MentalHealth

I woke up with pain. My back, including my spine, has been bad for a while now but the last 3 weeks in particular it's been worse. The half of a Norco hasn't been helpful. The CBD cream takes the edge off. I've had CBD cream put on my back 3x today. It still hurts.

I also had a really bad tummy ache when I woke up. It got progressively worse until I had to run to the bathroom and got sick. Now it's very mild discomfort.

I didn't sleep well last night. I kept waking up from nightmares. I dreamt my partner told me she was just using me for a place to stay and she didn't love me. Not fun times.

I've eaten twice today but I can't remember what I had for breakfast. The day has been a blur. Speaking of blur... My double vision has been awful today. I have to really focus my eyes to prevent it but it's been really bad. My appointment with my opthalmologist is next month. I gotta call the office and get their fax number.

I also gotta call my neurologist for an appointment. The emgality isn't working. And the sumatriptan only works about 50 percent of the time. I'm gonna see if I can get vyepti.

I've got an appointment next week for an injection in my jaw. We're testing a theory about the cause of my migraine. I have very bad TMJ on my left side.

I've got an appointment scheduled for next week Friday to go get groceries with my BHH nutritionist. She wants to meet my partner. We're gonna go to my favorite donut shop before the groceries. It's just a little gift for my birthday to myself.

I've noticed ear pain when lying on either side of my body. Yes, i have what I thought was TMJ and what I thought was stiff neck from fibromyalgia. I read somewhere that the "TMJ' could cause ear pain. Could this be the MS though?

Hi- I’m a 48 year female mother dealing with lots of health and mental health issues. My mom passed away a year ago and it sent me on a downward spiral. That along with having long term covid symptoms which caused what they think was a NSTEMI heart attack. I also have been diagnosed with anxiety, depression, ADHD, severe migraines, TMJ, PCOS, endometriosis, chronic fatigue and going through menopause, my body is in constant pain and doctors can’t figure it out so I’ve given up hope! My finances suck because of the world today and we are barely getting by. My job is super stressful and most days I force myself out of bed because I don’t want my son to see what’s happened to me and I’m ashamed. I did grief counseling briefly and quit because I couldn’t afford it. I now have social anxiety and when I’m not working I hide in my home. I’ve pushed most my friends and family away because I’m ashamed that I cannot cope with my feelings. Most days I wish I wasn’t here anymore but I don’t want to hurt my family. I just don’t see a light at the end of the tunnel. I feel like I’ve tried everything and nothing has helped! I do not like the person I’ve become. Am I alone?