Temporomandibular Joint Disorders

It hurts and I’m so tired. I have to dog sit but the dogs are killing me. It is making me so miserable. I want to leave but the dogs want to be near me at all times.

I have nothing for relief. The dogs want to be all over me. I can’t take it. I don’t get irritated like this when I work. This is the first time I have felt like this.

I feel like crying and just laying down and locking myself away from them. I want to just not be in pain. I want to not be here. I hate how I can’t have anything without pain anymore. I just hate everything right now.

New here. I have most of the fibromyalgia symptoms but I don't experience pain with light touch.

Still I am hypersensitive to light touch which causes immediate spasms and cramping in various muscles. Specifically my jaw/ear area and back.

I also don't believe I have hyperalgesia.

What I do have is terrible TMJ pains. chronic deep muscle pain all over my body. Feeling of exhaustion all the time. Waking up every few hours when I try to sleep. Not waking up refreshed. Mostly waking up with severe stiffness and aches. Having a hard time to do much of anything physically within a 8 hour timespan after waking up. (I don't have sleep apnea).

Hypersensitive to select muffled sounds. Hypersensitive to visual triggers. IE when someone is standing fairly close to me and engaging me.

I am just wondering if there are people who were diagnosed with fibromyalgia but who don't have hyperalgesia and where allodynia does not give pain signals.

#Doctors #appointments

Good morning everyone. How are you all doing today? I wanted to share that I'm seeing 3 doctors within a 3 week period. An ent in 2 days, a neurologist in a week & a spine doctor in 18 days. I'm becoming a little anxious about each of these appointments for a few good reasons. There's lots of pressure on me to say the right things & explain to them that my problem is real & is affecting my quality of life. Problem is the issue that is causing me digestive issues, swallowing issues/clicking throat, grip issues, posture abnormalities, gait disturbance/ wide based gait, tinnitus, tmj etc. I have proof of the digestive symptoms yes ew, but they may be critical in figuring out if I have an infection or not. The neurologist will need to figure out on top of all that if radiological findings are just porencephaly or something more sinister.

My guess for the first set of problems is an encephalitis of some kind. I've read about how infections can be dormant then occur suddenly after stress, excercise etc. Before we moved houses I got a pinched nerve in my neck that with correction unleashed its wrath on my poor body. I'm hoping the neurologist can piece together whats going on there. Bloodwork, urine etc have comeback normal so I don't know how we are going to detect something that is getting harder to find? The spine doctor will need to figure out why I have a posture lean. The ent will need to figure out if my swollen lymph node & nodule are benign or cancerous. There's alot we need to figure out & its kinda overwhelming. I hope all will be revealed soon. I'll keep you guys & gals updated as I learn more. Have a great day.

I’m asked that question often because I look younger for my age and I’m very active and functional. How did everything develop? I’ve always had cold hands and toes since I was about 5 years old. I never worried about it much honestly until I found out it was #RaynaudsPhenomenon in 2017. This is the same year I was diagnosed with #Fibromyalgia & #MajorDepressiveDisorder .

What it feels like? For me, it feels like the soreness you feel after a workout and never recovering. Now, anything thing I do tell people is that I got Mono back in 2010. First time I ever got severely sick to where I even lost weight. Now it’s 2023, I have an overactive immune system and a autoimmune that they can’t find. However, they were about to do a DNA(DS) AB, High Avidity blood test because my ANA is normal and my other blood test are normal. They suspect #Lupus but they do know I have #ChronicFatigue .

*My spoons are usually 1-2 tasks that’s would last 4-5 hours until I’m fatigued*

…and I’m also diagnosed with #CarpalTunnelSyndrome .

On top of all that, I have other undiagnosed issues including #TemporomandibularJointDisorders in my jaw (nevous of dentist) and #GeneralizedAnxietyDisorder (functional and social)

Another thing, I have hypermobility in some area, such as my fingers & my knees. I was also told I had a deformity in my neck to where my neck is straighter compared to other people (I never knew what that mean). This was done after an MRI.

Two reasons I was given that all these symptoms came in my late 20’s and now in my 30’s. I was told it all started when I got sick in 2010 making my immune system go haywire (definitely possible) but also genetics (possible if it’s from my mother). That would be something I’m unable to figure out. Again, I look fine and very functional but I have an equal amount of bad days.

I have always been aware of the popping in my jaw that occurs when I open it a certain way and my clenched teeth shooting a sharp pain through my head upon waking, but just recently put all the pieces of the puzzle together on how this is affecting me in so many more ways. I have been told that I have atypical trigeminal neuralgia, numerous forms of tendinitis, even brachial plexus neuropathy. This of course is in addition to my underlying hypermobility. Those are just a few of the many ailments that I have been blessed with. Prior to the recent onset of the extreme jaw/ear pain and facial discomfort, my most disturbing issue was serious neck stiffness/pain - felt like someone was pushing my head forward while they were standing behind me. It makes my job extremely difficult to do, as I am glued to my computer for eight hours a day, five days a week. These jaw/facial symptoms recently flared in a way I had never previously experienced. So, after doing just a small amount of TMJ dysfunction research on the internet, I found out that this affects over 70% of people with Ehlers Danlos syndrome. Even to the point that some are actually diagnosed with EDS-hypermobility type because they have chronic jaw pain and associated symptoms. I’m posting this because I’m interested in all of the symptoms that you have if you suffer from this horrible condition. Please share. Thanks in advance!

Has anyone else had similar experiences? During a migraine cycle (consecutive weeks when I have 1+ migraines each week), I notice my joint pain (Hypermobility) and even my TMJ pain ‘improves’, both in the long-term and directly before a migraine. The pain then goes back to normal after a migraine/after a migraine cycle. This is slightly bewildering me at the moment - have NO idea why this is and was wondering whether anyone had any similar experiences?? Thank you so much!! Sending hugs to everyone from Australia!
#Hypermobility #EhlersDanlosSyndrome #TemporomandibularJointDisorders #ChronicIllness #ChronicFatigue #HEDS #hypermobileehlers-DanlosSyndrome(hEDS)

Hi, my name is Hannah. I’m from Canberra, Australia and have just recently been diagnosed with BPD. I also have chronic migraine, TMJ disorder, anxiety and depression. The BPD diagnosis is very recent and I’m looking to gain knowledge,

#MightyTogether #Anxiety #BorderlinePersonalityDisorder #Depression #Migraine