Temporomandibular Joint Disorders

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Temporomandibular Joint Disorders
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    Dealing with a Sjögren’s flare causing gland swelling, TMJ and ear fullness. My mother bought me this ice neck patch. I freeze it. And instead of putting it on the back of my neck, I use it for my neck, under jaw, laying straps behind my ears. And it has given me major relief.

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    Do you EDSers suffer with TMJ dysfunction too? Please share your story if so.

    I have always been aware of the popping in my jaw that occurs when I open it a certain way and my clenched teeth shooting a sharp pain through my head upon waking, but just recently put all the pieces of the puzzle together on how this is affecting me in so many more ways. I have been told that I have atypical trigeminal neuralgia, numerous forms of tendinitis, even brachial plexus neuropathy. This of course is in addition to my underlying hypermobility. Those are just a few of the many ailments that I have been blessed with. Prior to the recent onset of the extreme jaw/ear pain and facial discomfort, my most disturbing issue was serious neck stiffness/pain - felt like someone was pushing my head forward while they were standing behind me. It makes my job extremely difficult to do, as I am glued to my computer for eight hours a day, five days a week. These jaw/facial symptoms recently flared in a way I had never previously experienced. So, after doing just a small amount of TMJ dysfunction research on the internet, I found out that this affects over 70% of people with Ehlers Danlos syndrome. Even to the point that some are actually diagnosed with EDS-hypermobility type because they have chronic jaw pain and associated symptoms. I’m posting this because I’m interested in all of the symptoms that you have if you suffer from this horrible condition. Please share. Thanks in advance!

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    Other pain decreases during migraine cycles?

    Has anyone else had similar experiences? During a migraine cycle (consecutive weeks when I have 1+ migraines each week), I notice my joint pain (Hypermobility) and even my TMJ pain ‘improves’, both in the long-term and directly before a migraine. The pain then goes back to normal after a migraine/after a migraine cycle. This is slightly bewildering me at the moment - have NO idea why this is and was wondering whether anyone had any similar experiences?? Thank you so much!! Sending hugs to everyone from Australia!
    #Hypermobility #EhlersDanlosSyndrome #TemporomandibularJointDisorders #ChronicIllness #ChronicFatigue #HEDS #hypermobileehlers-DanlosSyndrome(hEDS)

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    I’m new here!

    Hi, my name is Hannah. I’m from Canberra, Australia and have just recently been diagnosed with BPD. I also have chronic migraine, TMJ disorder, anxiety and depression. The BPD diagnosis is very recent and I’m looking to gain knowledge,

    #MightyTogether #Anxiety #BorderlinePersonalityDisorder #Depression #Migraine

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    The burden of debt

    I’m struggling with credit card debt. I had a stress nightmare last night about it and woke up with a TMJ migraine from clenching my jaw. I’ve know I created this mountain of debt, making frivolous excessive purchases during depressive mental health episodes. And this burden keeps me in an pseudo-marriage, at an unfulfilling job, in a home that’s about 1 hour from any city. Stuck. Alone. Ashamed. #BorderlinePersonalityDisorder #Debt

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    Feeling over stressed

    I have a current court case with my landlord over repairs for the apartment. One of the repairs is to fix a hole in the roof and remove the squirrels living in the ceiling. I live on the 2nd floor of a 2 story apartment building. The landlord hired a licensed rodent removal professional who put humane traps on the roof 1 week ago (today is Monday so I was put there last Monday). On Thursday someone took a picture of a squirrel in one of the traps and posted it to a neighborhood group on FB. Since then my family has been harassed and the police have been here 4 times. We have tried explaining the situation to these people but they just keep screaming the traps are illegal. They have thrown rocks at the building and Saturday they brought a ladder, climbed up on the roof and removed the traps after the police ordered them to leave us alone. I'm extremely upset over this and my #Anxiety is through the roof. My husband just tells me to calm down that I'm too emotional, telling me that just makes my anxiety worse. I had a full blown #PanicAttack on Saturday. I can feel my #TemporomandibularJointDisorders is worse because my jaw hurts when I wake up in the morning. And all of this started the day after I have an EMG to help diagnose the cause of my #Undiagnosed #ChronicPain . Not to mention I had a #Migraine Thursday through yesterday. I don't know what to do and I feel paralyzed by my anxiety.

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    Gratitude for things large and small

    When I let our family dog, a black Labradoodle named Winston out today, I took what felt like a huge risk: I ventured outside with him instead of just letting him out! Walking cautiously into the heat and humidity, I stepped onto the grass fully aware the ground was uneven, and felt it gently give way under my feet. It felt good to be out there, the dog happily rolling in the grass, and to feel the breeze in my hair.
    Why is this so significant? Like many of you, I have hypermobile Ehlers-Danlos Syndrome with a host of co-morbidities. At 74, instead of enjoying my 'sunset' years exploring the world and enjoying friends, I spend most days holed up in my room, propped in the bed reading, watching TV or writing. I've been inside so much I may be getting moldy. It's a situation that leads to depression but that's a story on its own.
    So, why did I venture out on these ridiculously wobbly legs? Besides longing for fresh air and birdsong, I wanted to see if I could find a way down to the swimming pool since I cannot use the steps.
    I've studied the side yard, which is uneven, in the past. This time, I may have found a way to address the problem, but it will require assistance. And there is the nexus of the problem. Though my spirit is willing and quite creative at times, my body will not cooperate and I hate asking for help.
    It's a disability story we've all lived, isn't it? If our conditions worsen, or we face new problems all our building blocks have to be reorganized to accommodate the new situation. No matter what we're dealing with change is a problem, but it may also bring solutions. If I can help to make it down to the pool on occasion, perhaps I'll be able to do other things. I won't know until I try.

    #HEDS #Osteoarthritis #juvenileArtritis #shoulder replacement #Lymphedema #lipededma #ChronicDepression #chronic Fatigue #chronic Pain, #Fibromyalgia #TMJ #SpinalFusion #DeConditioning #IBD

    4 comments
    Post

    Gratitude for things large and small

    When I let our family dog, a black Labradoodle named Winston out today, I took what felt like a huge risk: I ventured outside with him instead of just letting him out! Walking cautiously into the heat and humidity, I stepped onto the grass fully aware the ground was uneven, and felt it gently give way under my feet. It felt good to be out there, the dog happily rolling in the grass, and to feel the breeze in my hair.
    Why is this so significant? Like many of you, I have hypermobile Ehlers-Danlos Syndrome with a host of co-morbidities. At 74, instead of enjoying my 'sunset' years exploring the world and enjoying friends, I spend most days holed up in my room, propped in the bed reading, watching TV or writing. I've been inside so much I may be getting moldy. It's a situation that leads to depression but that's a story on its own.
    So, why did I venture out on these ridiculously wobbly legs? Besides longing for fresh air and birdsong, I wanted to see if I could find a way down to the swimming pool since I cannot use the steps.
    I've studied the side yard, which is uneven, in the past. This time, I may have found a way to address the problem, but it will require assistance. And there is the nexus of the problem. Though my spirit is willing and quite creative at times, my body will not cooperate and I hate asking for help.
    It's a disability story we've all lived, isn't it? If our conditions worsen, or we face new problems all our building blocks have to be reorganized to accommodate the new situation. No matter what we're dealing with change is a problem, but it may also bring solutions. If I can help to make it down to the pool on occasion, perhaps I'll be able to do other things. I won't know until I try.

    #HEDS #Osteoarthritis #juvenileArtritis #shoulder replacement #Lymphedema #lipededma #ChronicDepression #chronic Fatigue #chronic Pain, #Fibromyalgia #TMJ #SpinalFusion #DeConditioning #IBD

    4 comments
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    Living with #Undiagnosed #ChronicPain

    I live with #ChronicPain that is presently #Undiagnosed . So far I have seen a rheumatologist who ran a lot of tests and sent me on to a neuromuscular doctor. I've only had 1 appointment so far with the neuromuscular doctor and he's doing an EMG in 2 weeks. My symptoms are pain all over my body, weakness in my legs, intense burning pain in my feet, shooting needle pain in my feet, legs, fingers, abdomen, and arms. Numbness and pain in both legs and arms. Muscle cramps in my legs and feet. Muscle spasms in my back. I was diagnosed with TMJ several years ago so my jaw sometimes aches. I also have gastrointestinal problems with bloated, stomach cramps, constipation, and diarrhea. And a new one is heartburn. I can't consume any dairy products or I get physically sick. I've been tested for lactose intolerance which came back negative and the Dr said I'm probably allergic to the dairy protein. Gluten gives me migraines but I've never been celiac tested. I can already here you saying fibromyalgia and yes that has been brought up. I was doing pretty good for about 2 months but in the last week a flare started and functioning is difficult. I am in counseling but he's making me feel invalidated so he's getting fired at my next session. I'll probably be leaning on everyone here more often. I also have #Anxiety and depression which I'm on lexipro for. I also see a psychiatrist.

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    Does anyone know any tricks on how to prevent my neck from subluxing in my sleep?#hypermobile #cervical #Pain #degenerativediskdisease

    I have hypermobile ehlers danlos and I often wake up with my head cranked to one side. I realize that this happens when I wake up after my husband gets up for the day. I'm not coherent enough to realize it happens until I wake up a few hours later. I'm a side sleeper and when he moves it shifts the bed and I fall forward and my weight and his pillows crank my neck. I have degenerative disk disease in my neck and TMJ in addition. Thank you in advance!

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