Osteoarthritis

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Life… I guess

I have been struggling lately. Somehow all my medical history now wants to make me weak from the knees and push me down. I got diagnosed 2016 knee OA, 2024 endo stage 4 excision surgery and total hysterectomy for adenomyosis. 2025 total knee replacement for treating OA. This year fibromyalgia diagnose. I have normalized pain for the last 17 years of my 42 y of life and I feel tired. Tired to have been able to build still a career and life to myself and children and for everyone outside I’m not allowed to be weak. Actually no one believes the seriousness of my pain bc it doesn’t show. I have been called hypohondric, attention seeker, drug addict and so on. And it’s so isolating. To have a successful life from the outside and be trapped in my own body wo a right to step back and be vulnerable and people around me say it’s in your head…I do see psychiatrist every week for the past 9 months or so and I have tryed not to abandon myself…. But f**ck it’s hard.
#Depression #Endometriosis #Fibromyalgia #Osteoarthritis

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The legacy of hypermoble joints, looking back

I am 68. The best clinical advice I want to pass on is to do the joint surgeries while you’re still physically strong, do not follow the old advice to wait until you can’t tolerate the joint pain. I am so fortunate to have a great team from a physical trainer, my physical therapist, my various physicians, my psychiatrist etc. living near medical schools & teaching hospitals helps. my orthopedic surgeons are my best friends, and pain management physicians are on speed-dial. The last four years with a personal trainer has helped me to be stronger and more physically adept then I was at 30. Even though I didn’t break bones in my constant casual falls over the years, at this age I needed to stop falling. Now, those lovely, super flexible joints have significant osteoarthritis. the medial meniscus in both knees were removed when I was 20, with the predictable deterioration overtime. my left knee replacement last August has gone very well, and I’m actually looking forward to the right knee replacement next month. have you heard of reverse shoulder replacements? I have and I have two scheduled down the road. so about 18 months of joint replacement surgeries ahead of me. However, from other perspectives, life is better than ever. But I will keep on top of the steroid injections for the arthritis in my thumbs….

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I'm new here!

Hi, my name is Glory74. I'm here because
I am struggling. Was diagnosed with osteoarthritis and fibromyalgia this past summer after seeing a multitude of doctors who could not figure out what was wrong with me. This thing literally seemed to strike me one day and been downhill since. I was completely normal living life and working full time as an ER nurse. Loved to travel, spending time with my husband, and enjoying my grandchildren. This thing has affected every area of my life. Have tried the usual treatments and meds they throw at this trash can of a diagnosis. Is there any hope for me? I’ve turned strongly to my faith and that’s only thing keeping me from having some pretty bad thoughts. #MightyTogether #Fibromyalgia

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Recently diagnosed

I was recently diagnosed as having hEDS in addition to my longtime diagnoses of fibromyalgia, chronic fatigue and psoriatic arthritis. It is the diagnosis however, that finally connected all the dots - early onset osteoarthritis, muscle tears (1st one at age 8), and many other things that didn’t quite fit. So, learning about hEDS and how that affects things going forwards. #EhlersDanlosSyndrome

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Last night I burnt the roof of my mouth on pizza. Isn't it always the things we love the most are the things that hurt us the most?

I haven't had tummy problems this bad in a while. I feel like my tummy is full of gremlins. I keep having sharp stabby pain in the left side of my tummy.
Constipation sucks so much. It hurts like hell. My GI doctor wants me to start eating dark leafy greens and other fiber rich veggies and fruit. I haven't gotten it yet.
So about 5 days ago I got an email saying it was from my bank. They said a suspicious charge was made. I didn't recognize it so I contacted my bank and they disabled the card and were sending me a new card within 7 days. I thought ok great... until the online services I pay for started kicking back for not being able to process. So I'm gonna have lots of late fees. Fun times.
#whenitrains #FemoralAcetabularImpingement
#Bursitis #Osteoarthritis #RheumatoidArthritis
In other news...
My current #coffeeadventure is interesting. I made salted caramel flavored coffee, added white chocolate toffee flavor cappuccino powder, almond milk and a splash of cinnamon roll flavored coffee creamer. I know it's a lot, but you gotta trust me, it's better than 7-Eleven cappuccino. All of the flavors balance out. It's silky smooth and delicious.
My current pain level is 7.5. But my lumbar doesn't hurt at all so I suppose it's not so bad. But the intermittent rolling gut pain sucks.

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Multiple chronic diseases

Hi, My name is Debbie. I’m married to a very supportive husband who takes me to all of my Doctors appointments which I have quite a few each month. I have Rheumatoid arthritis, Fibromyalgia and Chronic Fatigue syndrome and Reynauds. I also have Osteoarthritis and I injured my upper back by falling and my head whiplashed back, hit my head and injured my back. I had a perforated colon 4 years ago. I was in & out of the hospital for 2 years, with 4 major infections. Finally I had an 8 hour surgery 2 hour recovery. Since then I’ve been spiraling downward into very intense pain with the diseases. I would like to hear from others in the group who have experienced something similar and what you are currently using for pain and staying awake. Thank you for listening to my this.@

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