Dercum's Disease (Adiposis Dolorosa)

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Dercum's Disease (Adiposis Dolorosa)
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I'm new here!

Hi, my name is HPA39. I've been diagnosed with chronic allergic asthma with genetic heart condition so on oxygen, also have Dercums disease & degenerative spine with having 1discectomy. My husband has neuropathy multi organ sarcoidosis with Osteoarthritis degenerative spine & ulcerative Charcot foot has to wear a specialist boot, we were a semi healthy couple & parents until rare condition took hold of us both with debilitating pain
Hope to find some useful tips that stop us from feeling guilty on bad days#MightyTogether

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New Contributor Looking Forward to Inspiring and Feeling More of the Love and Support I Get from The Mighty Community

Hello Mighty People. I am a newly minted writer who is working on believing in myself and my abilities. I have a rare condition called Dercums Disease and will have an article about my challenges facing my disability coming out soon on The Mighty. If anyone has this condition or knows anyone who does, please feel free to reach out. I have had it for almost twenty years. Have had 70 lipomas cut out of me in that time and have learned a lot from my experience working with doctors, both good and bad. As a writer, I look to inspire and support others who have to face challenges in life, no matter how big or small. I look forward to inspiring with all of you, my #mightycommunity #MightyTogether

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Is there anyone who can give me ANY, ANY ADVICE on HOW to help with Pain or any resource on DERCUM'S DISEASE? They grow inward laying on nerves.

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I have Dercum's Disease & Fibromyalgia--TMJ--is there anyone out there that can give me ANY ADVICE on what/where I can go or do to get help?

I have lipoma nodules that are growing inward all over my body and putting pressure on nerves. No doctors have been able to help me, and I have seen dozens.  Experts in Arizona, Texas, Louisiana, Mississippi and Arkansas have not helped.  CAN ANYONE HELP ME?  Regular meds like Cymbalta, Lyrica, Metformin do not help.

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In need of DD Specialists in Central Ohio

I am new to this site.....I am in dire need of Doctors who care and treat Dercums Disease hopefully within the Central Ohio area. #dercums Disease

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