ehlersdanlosawareness

Recently I have been having trouble describing my depression and anxiety surrounding my chronic ill to my family in proper words that would help them to understand what I am going through. If anyone would be willing to describe theirs to me I would be very grateful. I could use ones that really hit home to me to show my family. Please and thank you ☺️ xx #EhlersDanlosSyndrome #ehlersdanlosawareness #Depression #Anxiety

I'm thinking of getting a tattoo to represent EDS Awareness as well as chronic illness. My idea is for a zebra spoon. What chronic illness/EDS tattoos have you gotten?
#EhlersDanlosSyndrome #Tattoos #ChronicIlless #RareDisease #ehlersdanlosawareness

I just posted a thought somewhere else but I thought I’d share with you guys to that one of the things that I did this week that was very uplifting was to attend a virtual dance class taught by one of the Rollettes.

I definitely did not get all of the moves during the class but I move pretty slowly and a week in a lot of areas. Fortunately she made a video with the step-by-step moves that I was able to work with throughout the week. I even recorded it on one of my apps that allowed me to see her and myself at the same time of course not nearly as good as the instructor but I got it down and it was definitely a great work out throughout the week. #mgwarrior #MyastheniaGravis #EhlersDanlosSyndrome #EhlersDanlosSociety #ehlersdanlosawareness