Myasthenia Gravis

Create a new post for topic
Join the Conversation on
Myasthenia Gravis
2.4K people
0 stories
424 posts
About Myasthenia Gravis Show topic details
Explore Our Newsletters
What's New in Myasthenia Gravis
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Turn your adversity into your advantage by listening to it.

How would somebody respond if they are told that his/her overall cholesterol level was 322 mg/dL and Triglyceride level was 232 mg/dL ??

This happened to me 3-4 years back. Many would have accepted the tablets recommended by the doctors !!! Why not, they are the repository of medical science.... Many could have easily be in a panic mode... Yet, I have asked my GP sometime of 3-6 months !!!

I have consciously changed my cooking oil to Rice Bran Oil ever since, stopped intake of sugar ( at least cut it down by 95% ). There is no chemically processed sugar packet or sweet in my house... I started eating brown rice with husk and banned eating processed food to the extent I can.

I have been eating fresh fruits and vegetables including salads to quench my appetite... After 36 months, my cholesterol came down to 154 mg/dL from 322 mg/dL which is acceptable to the doctors... After 36 months my triglycerides are now hovering around 167mg/dL....

How did I achieve this ?? Google search + I have been a biology and chemistry topper since my school days... If knowledge is truly inculcated, it should produce positive outcomes... But very few could have resisted medication like I did and opt for negotiation with a GP !!!

#BipolarDisorder #EatingDisorder #MentalHealth

(edited)
Most common user reactions 22 reactions 9 comments
Post
See full photo

Turn your adversity into your advantage by listening to it.

How would somebody respond if they are told that his/her overall cholesterol level was 322 mg/dL and Triglyceride level was 232 mg/dL ??

This happened to me 3-4 years back. Many would have accepted the tablets recommended by the doctors !!! Why not, they are the repository of medical science.... Many could have easily be in a panic mode... Yet, I have asked my GP sometime of 3-6 months !!!

I have consciously changed my cooking oil to Rice Bran Oil ever since, stopped intake of sugar ( at least cut it down by 95% ). There is no chemically processed sugar packet or sweet in my house... I started eating brown rice with husk and banned eating processed food to the extent I can.

I have been eating fresh fruits and vegetables including salads to quench my appetite... After 36 months, my cholesterol came down to 154 mg/dL from 322 mg/dL which is acceptable to the doctors... After 36 months my triglycerides are now hovering around 167mg/dL....

How did I achieve this ?? Google search + I have been a biology and chemistry topper since my school days... If knowledge is truly inculcated, it should produce positive outcomes... But very few could have resisted medication like I did and opt for negotiation with a GP !!!

#BipolarDisorder #EatingDisorders #SocialAnxiety

Most common user reactions 3 reactions 1 comment
Post
See full photo

Cenforce D (Sildenafil Citrate) Online

One tablet contains 160 mg of active ingredients: Sildenafil Citrate 100 mg and Dapoxetine 60 mg. Cenforce D is developed on the basis of an effective formula, consisting of the strongest and most effective components. Sildenafil and Dapoxetine are known as one of the most effective and safe drugs for prolonging s*xual intercourse, increasing erotic pleasure and increasing potency in men. Moreover, these components have passed all the necessary clinical trials, their effectiveness has been confirmed by studies and most men!

Post

I apologize, but this season S*C*S!!!

I'm not talking about the upcoming holidays; although for me are depressing. I'm talking about that nasty sky dandruff! The temperature is only a high of 31 degrees F.
Honest I'm not sure which is in a flare! Fibromyalgia, Musculoskeletal Pain, Arthritis, hEDS or any combination. But I am absolutely miserable! Two days ago is when I pulled myself out of a multi-day deep depression. I had the energy so I tackled my living quarters which I had neglected 4/5 days. Also Scrolling YouTube and enjoying life. Before I knew it, it was like 3 am. Whoops!! Needless to say I didn't get much sleep that night. Last night between coughing (swollen tonsil), having to use the bathroom and sporadic pain of different types and in multiple places, I don't think I got more than 2 hours of sleep. So I am downright tired! I had to walk the 3 minutes to the grocery store (using my rollator walker) to get fruit, a few other items and much needed BC Powder. 3/4 of the way into shopping my back went into full spasm. It was all I could do to finish. I just needed to get my BC Powder and then pay. When I got to where my medicine was I was thinking; CRAP. Cause it was on the bottom shelf. A woman just happened to walk past and I asked her if she would get it for me and explained I can't bend over. She was polite and did so. This store has 6 self checkouts and typically only 1 (2 on busy days) regular registers where an employee rings you up and bags your groceries. I can't use that one because my body won't allow me to wait in the long lines where people have full carts. So I'm bending as little as possible to pick up an item off my walker seat, scan it and then bag it. By the time I'm done with that process I had 3 bags and could barely move. I hung one on each handle and the heaviest in the pocket under the seat. I fixed a quick lunch by tossing (I can't think of what their called) 6 of them into the air fryer. Put away my items and went to take them out. Ate those and some melon,and am laying down and my arms are wanting to resist holding my phone!
However; I know I am blessed. I know I've had worse pain days than this. AND ... I know this pain will eventually subside, I just gotta ride the wave of ... (no words to truly describe how I feel, Natural childbirth hurt less)! Thanx for listening. Oh, my BC Powder stopped my headache, but even the combination of my morning meditation of 6 are Tylenol Arthritis (I take 2) and Ibuprofen 800, the BC and I had taken my Gabapentin 300 MG; nothing stops this pain until it rides its course! Stay strong ya all! After all, that's what we do!! 😉

Most common user reactionsMost common user reactions 11 reactions 5 comments
Post

I am desperate to find a psychiatrist.

I saw a psychiatrist , the best I’ve ever had in my 30+ years of Major Depression with Anxiety disorder. He retired 1 year ago, it was difficult but I found a pHD nurse practitioner who continued the same medications for 6 months. Suddenly she decided it wasn’t good for me to be on Clonazepam 0,5 mg tid and Ambien 5 mg hs. I was doing well with some antidepressant adjustments over those 18 years.
She has tapered me off Ambien and I still have insomnia. She has tapered me down to Clonazepam twice a day, with resulting increased social anxiety, a terrible habit of picking the skin off my thumb until I have sores. I am fearful and anxious. Decreased appetite.reclusiveness to my apartment, no interterests…..I used to read, do crafts. Now all I am interested in is my 2 cats, and my Chihuahua. I was an advocate for wolves and animals that couldn speak for themselves, used to foster kittens and volunteer at an animal she,yet. I no longer drive because of decreased vision and lack of spatial awareness. I have no family living in Denver. I am at odds with my entire family because of the election. I live with my husband in a senior living retirement. My husband is very supportive but he is gone most of the day because he is very involved in activities here.
I need to find a psychiatrist who will allow me to stay on Clonazepam and Ambien, plus my Paxil and Wellbutrin….therapuetic medications that help me maintain some sort of normalcy in my depressed state.
I desperately need help. Her suggestion was to make friends, get out more…which I have tried. All of my best friends live in the Midwest or Northwest, including my two children an 3 grandchildren. Help me please.
#Depression #MajorDepression , #AnxietyDisorder
, #fearful ,#reclusuve ,

(edited)
Most common user reactions 2 reactions 2 comments
Post
See full photo

This sucks

I need my meds. Usually I ask my caregiver for them. She's not home and I can't get ahold of her. I have over 150 bottles of pills in a few boxes but none of it makes sense. I thought my pain meds were in a bag but I can't find it. So ok, Norco isn't happening. But I need my 15 mg olanzapine and I have no idea where it is. I know I could tear apart the boxes looking for it but that would piss her off. And she won't be home until tomorrow morning. I tried calling her but it went straight to voicemail. Her phone probably died. She's been having trouble with her phone for years. She has a newer phone she can switch to but she keeps saying it's not a priority. And for all the hours she's been working, she's not billing her clients. She's a few years behind. I dunno. I just want my meds.

#Caregiving

Post

I just don't understand.

I still get Rx notices for my husband because I have to keep them in my name or he'll switch back to him getting all the notices and that's how he got away with stealing my meds. He is still in sober living for stealing my Percocet, Soma, and Ubrelvy. He also went to the hospital via ambulance for taking too much of his Neurontin. Well, I got a notice saying his Rx is ready. I was in total shock it said his Percocet 5 mg of oxycodone and 325 mg of acetaminophen tablets were ready. What the HECK! I just don't understand this at all. I don't know if he's lying, or the therapist are clueless, or both. I'm literally in tears. I'm so triggered right now. I guess there are absolutely no consequences for him at all.

Most common user reactionsMost common user reactionsMost common user reactions 23 reactions 7 comments
Post

Question

Hey everyone I have a question. My fibromyalgia was getting worse and I had requested to increase my Lyrica from 150mg to 200mg. I started the 200 mg on Saturday and yesterday I was really drowsy and didn't really feel well. Today I'm having the worse flareup ever. I'm having pain in every part of my body. Are these symptoms I'm having side effects from the increase? Has anyone experienced this before? What some remedies for really bad flare ups? Thank you in advance ☺️

Most common user reactionsMost common user reactions 9 reactions 5 comments