Myasthenia Gravis

Hi, my name is Cookie5. I've been diagnosed with generalized myasthenia gravis,gout,osteoarthritis

#MightyTogether

I still get Rx notices for my husband because I have to keep them in my name or he'll switch back to him getting all the notices and that's how he got away with stealing my meds. He is still in sober living for stealing my Percocet, Soma, and Ubrelvy. He also went to the hospital via ambulance for taking too much of his Neurontin. Well, I got a notice saying his Rx is ready. I was in total shock it said his Percocet 5 mg of oxycodone and 325 mg of acetaminophen tablets were ready. What the HECK! I just don't understand this at all. I don't know if he's lying, or the therapist are clueless, or both. I'm literally in tears. I'm so triggered right now. I guess there are absolutely no consequences for him at all.

Hey everyone I have a question. My fibromyalgia was getting worse and I had requested to increase my Lyrica from 150mg to 200mg. I started the 200 mg on Saturday and yesterday I was really drowsy and didn't really feel well. Today I'm having the worse flareup ever. I'm having pain in every part of my body. Are these symptoms I'm having side effects from the increase? Has anyone experienced this before? What some remedies for really bad flare ups? Thank you in advance ☺️

I’m new to the group. I have several chronic and autoimmune disorders. Fibromyalgia, ME, myasthenia gravis, a rare eye disorder and a few other things. I live at the beach (summer traffic!) and have a load of pets. One dog and seven indoor cats. My house is chaotic sometimes. Looking forward to meeting others.

Hi. I became fast (instant) friends with someone with MG. Things got touchingly honest, fast. Then, after I shared my feelings (just deep affection, romance), communication basically ceased. They were also going through medication changes. I very much want to remain friends and hate to just walk away, because I, too, have a chronic disease and I know what it’s like when people walk away. They say they are “still here” but there hasn't been any real communication in two months. I don't feel friendship. Is MG like this?

Today marks 2 weeks on my new medicine combination 》》》Zoloft and Lamictal.

I have noticed a little difference towards the better but it's still early to tell. My doctor upped my dose on Lamictal to 50 MG instead of 25 mgs.

Let's see how it goes over the next 2 weeks.

This is my first time on a mood stabilizer so I'm hopeful for something to actually work for me.

Fingers crossed🤞

#BipolarDisorder

Finally after 3 cups of coffee I’m finally slowly waking up. I took 3-10 mg melatonin last night so needless to say the “ melatonin hangover” was with me this morning. Today is going to be a rest day and maybe in awhile will be in the mood to work on some music. I find this very relaxing but the mood has to be right. Every member here has the ability to write whether songs or poetry. Some write in their daily journals on their day. I won’t do this as I don’t want to dwell on my pain. Instead I focus on a few words and build around it. I love playing a lot of types of music except a few types. I try and not watch TV as now days is filled with such depression or violence. The news by far is the worst! We all hopefully have found our coping mechanism that get us through this journey. In some ways my injury was a God send. It really taught me what was truly important in life. It’s not material things , it’s the smaller things which was mentioned earlier by another member. It definitely brought me closer to God. I typically wouldn’t share any past work life details but I was injured trying to take care of a patient in a pick up truck that had a semi go off a overpass and land directly on top of his truck. You couldn’t even see his truck. It took a hour and a half to get him out and actually I had a trauma surgeon flown in as we might have had to remove his legs. When the Helecopter took off with him, I honestly thought he would be a fatality. That’s when my physical issues began. 1 and 1/2 years later I received a subpoena as a witness on this call. It was the first time I had seen him since his accident. I walked into this small room and saw him and his wife and his 2 children and as we all hugged each other all of us just cried. Then the court began and he was awarded 3.2 million for his injuries. I know that a wife still has her husband,2 children still have their father. So if I knew what the outcome of my injury would have been before this would I do it again? The answer would be yes in a heart beat. A single life is priceless!…..David