chronic illess

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    Shine Bright Like a Diamond

    #ChronicFatigue #Fatigue #fibromyalgiafatigue #exhaustion

    So on a personal note we flew high accomplished many things sent love out in many directions only to land on the couch and that’s IT. #crash #Drained #nap

    What IT all means is while we feel like we are getting better trying to do the things we use to do or remembering things that we could have done before diagnosis. We find ourselves in the cycle of #Updays #Downdays .

    This is incredibly frustrating and irritating to say the least. How does one do all the things one is supposed to do when they don’t have enough #Energy and suffer from #ChronicIlless ?

    Like seriously we have to be able to get through a week or two without being completely #overwhelmed .

    Ok like we have taken on some extra #Stress #Work #MentalHealth and sure some #Caregiving . But common like surly we can still get things done. #DoEverything right?…

    Wrong !!!

    This is the reminder that we are in this situation because you didn’t look after yourself #rest #Health #Breakes #timeOff #timeout .

    That’s right super hero you’re going to have to passé a bit better. Not everyday! Not every hour! Not every minute!

    So we are sorry! Please take time to say you are sorry for not looking after You!

    See while you would love to help and save the world… You forgot!

    You have to save you!

    IT is true and the year is ✨2022 IT is true.

    Please 🙏 be kind to you.

    Please 🙏 look after you.

    Please 🙏 take time for you.

    There is only one ☝️ you.

    Someone out there needs this so this is for U


    When other people fuel the depression.

    Without going into details of the Dr. Phil type of story my life has been for almost two years, I will say that it has spun my already very ill body into a complete mental breakdown. I am addicted to my addict and it's driving me over the edge. I've never been so low, and he keep me attached yet not uplifted. I need to let go, and I don't know if it's the fear of being sick and alone, or just alone, or I'm addicted to pain, but I can't see to unattached. The toll it's taking on my mind and body is hell. #Anxiety #ChronicDepression #ChronicIlless #PosturalOrthostaticTachycardiaSyndrome


    So lonely#ChronicIllness

    My illnesses have worsened and I now find it really hard to go out. I lost all my friends when I got ill but got through it by going out alone. But now I'm just stuck here alone. I could literally die and no one would know. Even if I miss Drs appointments or don't collect my prescriptions no one notices. I can't believe what this world is. Shamed if you try to end it but no problem leaving you to slowly die alone.#ChronicIlless

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    Some kind pumpkin 🎃

    We've carved this small kind and bit naughty pumpkin just to bring some joy)
    #Depression #Anxiety #ChronicFatigue #ChronicIlless #MultipleSclerosis #DistractMe

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    Hardest times and beautiful places

    On Monday it was my birthday, I was in such a wonderful place with siberian deers and does walking in front of my window ....but...I had and still have a Multiple sclerosis flare up...I feel horrible all the situation in my country is getting unstoppably worse and hardly bearable at some personal issues with my relationships upset me much....
    All in all I feel very very much down this week....😔 Only my pets, kind words and small gifts from kind people I'm lucky to know keep me from drowning in the darkness....
    #Depression #Anxiety #ChronicIlless #MultipleSclerosis #Flareup #Fear #IntrusiveThoughts #darkness


    UGH!! #ChronicIlless #Marriage #motherinlaws #thisshitshard #tired

    Hi there all my people!! It s been a while since I’ve posted. For some reason I couldn’t get The ap to download! So how s everyone doing? I’m hopi g you all are having a better time of things and you’re all looking forward to fall! The colors the crisp air the fact we can wear our favorite sweaters! So for me…. Tomorrow is my first visit with a new Endochronologist…. Haven’t had one in a while (other dr s of mine have been dealing with the adrenal issues) so I’m a little worked up a little nervous but hey!! I’m a big girl ! I got this!! I do t know about you all but I’ve not “asked” husband to go with me to any dr s appts in forever….. he s too busy with work, his mother etc . How many of you get the feeling if they (your spouse or significant others) go with you to dr s appts they “use” the info against you at a later date? I’m not sure if I’m justified in feeling that way but I do sometimes….. I take very good notes while I’m at the dr s (which I suggest you all do!) so I just look back on those notes if I’ve forgotten something. So anyways…. Just wanted to say Sorry for not being on here lately….. and say HELLO!! I hope the rest of your Sunday is as perfect as it gets and that you all are feeling good today!! Hugs to all of you! And Thank you for being here for me to rant to, vent to, bounce things off of and just simply for being kind humans!!!


    #diet #excersise

    As someone with #Bipolar2Disorder I find it hard to stay motivated to eat healthy. That impacts my #Health and weight. I like cooking but I'm not quite motivated because my wife has a #ChronicIlless and doesn't usually have an appetite.

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    I'm so tired of being gaslighted. #CPTSD #MajorDepressiveDisorder #ChronicIlless #Lupus #Fibromyalgia

    I am allergic to almost all antibiotics and I have chronic Urinary Tract Infections.

    I was hospitalized to be treated with IV antibiotics for 2 months 3 times this year already.

    Since then, I've had 3 more infections that we attempted to treat with oral antibiotics unsuccessfully.

    Yesterday, I went back to the same hospital and asked to be admitted to be treated for the infection.

    I had already gone to the lab, been tested and had a confirmed culture showing that I was ill.

    This hospital put me in on observation status because they said, "She doesn't meet the Medicare criteria for inpatient status."

    I am flabbergasted. 4 months ago, they had no problem with it. WTF? And now I have to pay 20% even though my insurance pays full coverage.

    They are basically saying that I'm lying about being sick. I've had it. I feel like ripping out the IV and going home and just ending it. No one cares anymore.


    When you have a cold on top of the usual

    #Anxiety #ChronicIlless #CPTSD
    I have had a sore throat and a head cold since Sunday night. I don't know about you but when I catch something I can't always tell I've caught something because I usually feel that bad. I've had COVID twice in the last year and didn't hardly blink.

    I got checked for strep yesterday since I was exposed, and came back negative so I can keep my appointments. It was so hard to leave the house for the clinic. I don't want to keep my appointments.

    My anxiety goes through the roof when I'm sick with a passing bug. I get panic attacks. I don't want to leave the house. I don't want to be seen. If I do have to interact I try to downplay how I feel like I usually do anyway. I make jokes and distract people from me to their own lives.

    I think what scares me is that I have felt more vulnerable since my chronic illnesses, and adding on passing flu or colds just makes me feel even more ill at ease. Productivity has my whole life equalled value. So ever since my diagnoses I have maintained a minimum that I force myself to keep up with. A standard so I know where I'm at.

    I feel very depressed when I have a flare or something else prevents me. I think it must be my cPTSD as well because I've had some pretty bad stuff happen to me during times I've been ill and unable to protect myself. As I've been figuring this out, I can take measures to change.

    It is a beautiful day outside and I don't want it to be wasted. So I choose to take what steps I can and even if it's from the couch to a chair in the sun, I do that. It still counts. I hope someday when I catch a cold I won't panic anymore.