chronic illess

Join the Conversation on
chronic illess
2K people
0 stories
213 posts
  • Explore Our Newsletters
  • What's New in chronic illess
    See full photo

    Mental illness and chronic pain is not a joke! I Wrote something for all of us!

    Oh, dear exhausted soul I know you are suffering from a disease
    But, trust me you are not alone in this,
    I know how hard it is to get up from your bed
    When deep inside, you feel like a dead,
    I know what it takes you to hold your toothbrush
    I know it is becoming hard for you to get away from this rush,
    But, as the sun always shines , so will you
    Your life is just giving you a clue,
    That, one day all of this pain will transform you into something unbreakable and new.

    - Prachita

    More power and strength to all of the chronic and mental illness warriors! ✨♥️

    #ChronicIlless #MentalHealth #Pain
    #InvisibleIllness #MentalHealthAwareness

    7 reactions 1 comment
    See full photo


    Your not alone you matter you are important you are worthy you are valued.


    Please be safe be well be loved 🥰 your worthy?

    Don’t forget IT

    #ChronicIlless #ChronicPain #Fibromyalgia

    13 reactions 2 comments

    I hate this country #PTSD #Disability #ChronicIlless #treatmentresistant #HealthInsurance #Poor

    I want to bash my head in. I want to scream on the top of my lungs. I am so angry and I don’t want to fall back into behaviors that slowly kill me.

    I can’t do this.

    Any appointment I’m ABLE to get, is so complex I don’t understand. Referals, we don’t take your insurance.

    No one takes my insurance!!! Medicaid doesn’t cover medications!!! Are you over 18? Then we need a million prior authorizations!! But wait!! Never mind because you’re too old for the medication, per us insurance!!

    Your sick?! Need meds?! YOU GOT IT!


    Have no job because you can barely keep yourself safe?!?! TRY OUR MEDICAID AND GET NO MEDICATIONS OR SERVICES YOU NEED!!



    It’s just a big FU to anyone who can’t take care of themselves, the way the country wants.

    I fucking hate it here. Why do I try? Why do I fight so hard when there’s 10,000 roadblocks in the way.

    Fighting for disability, with a lawyer, who told me I’m going to get denied again. I WENT AND GOT ALL MY RECORDS BECAUSE THEY DIDNT.

    I get told by my lawyer, THAT THE STATE ISNT GOING TO READ EVERY PAGE.


    6 reactions 3 comments
    See full photo

    Chronic Migraine awareness

    Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.

    #chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

    1 reaction

    Time gets away from you

    About two weeks ago, I wanted to do a post a day, to get back into the feel of writing and processing and just dealing with this lovely process of living with a chronic illness.

    Then, I had a bad Friday, and I long weekend, fatigue hit hard and then an appt , then another appt….

    Then, just CRASH…

    All the best intentions, gone.

    Now, I’m slowly coming up for air and it’s like …. Wow, it’s been almost 2 weeks.

    It’s so easy to lose time, and then when you’re ready to start again … you feel disappointed…

    Starting over…
    And over
    And over


    Here we go

    Starting over

    #Asthma #Arthritis #ChronicIlless #Jointpain #ChronicDepression
    #TraumaticBrainInjury #TBI
    #AnkylosingSpondylitis #ADHD
    #ChronicPain #
    #Endometriosis #PMDD
    #COVID19 #ChronicFatigue

    4 reactions 1 comment

    Feeling sorry for myself. #Depression #Anxiety #ChronicIlless #ChronicPain #Fibro #ME

    Hi fólks! So here is the deal: About two weeks ago I had my annual flu shot and got a slight fever ( I sometimes do ), a week later I got my fourth Covid-19 shot. Two days later I got fever 37,5°C which for me equals 38°C because my normal tempture is 36,5°C. Yeasterday, Saturday, I had no tempture, but today, Sunday, it's UP AGAIN! 😡😣😣 I am feeling a bit frustred, had some plans, had to cancel for THE SECOND TIME THIS WEEK!!! ☹️☹️☹️ In my case this is a mixture of the shots, my reaction to them and the daman flu. Don't get me wrong, I'm not badly ill, just tired of staying home.

    14 reactions 7 comments

    Ambulatory wheelchair users and sports. How do you navigate if you need your wheelchair and people asking questions or looking at you?

    I have recently been thinking about getting back to a sport/activity I used to do before my health took a dive for the worse. The thing that I believe keeps me from doing it is the fact that I know I will need my wheelchair. This sport/activity can be done standing(which is the norm),sitting or from a wheelchair. I’m still not confident and maybe still not comfortable going out in my wheelchair when it comes to the day-to-day stuff. So I’m very anxious and nervous about possibly going back to the sport/activity. They know that I had health issues before, but as the years have gone by, I have seen that more young people have joined the club, which only intensifies my nervous about going back.

    I know that I don’t owe them any explanation for why I would use my wheelchair, but I also feel maybe that I should…but I don’t know how to go about explaining that I have POTS and all that.

    I guess my question is, how do you go about being an ambulatory wheelchair user and sports/activities were you probably will be looked at or that people will ask questions?

    #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #ChronicIlless #Sport

    See full photo

    Hello :)

    I’m new to this app, I’m hoping to meet people who have similar illnesses and struggles, it’s hard finding anyone who can really understand what it’s like. Adding all my hashtags hoping that I’ll meet people going through the same things I am!if anyone wants to chat shoot me a message :) #ChronicIlless #Gastroparesis #PulmonaryArterialHypertension #PulmonaryHypertension #HeartTransplant #LungTransplant #heartfailure #MastCellActivationDisorder #EhlersDanlosSyndrome #HickmanLine #FeedingTube #Gtube #PrimaryImmunodeficiency

    18 reactions 11 comments

    Thinking on Thursday… 🤔😄

    I think I’m doing pretty good for the one post a day. I have almost made it a week. 😂✍️

    This is progress.

    I have a bunch of appts today, so I am preparing to be poked and prodded and make “nice conversation” 😂😂

    It’s not the best day though, fatigue is high and I would really rather be in bed, because every moment will be a tiny mountain I have to climb.

    Dealing with one chronic illness is frustrating enough, but when they start to combine on any given day, that’s when your body becomes your own personal torture chamber.

    Today, it’s joint pain plus the PMDD and the spine pain… and with the PMDD there is the endometriosis… and there is always the foundation of it all , the Asthma…

    You have to take it all in, balance it and then try to present yourself to the world as


    Life , right..🤔😂

    I look forward to the adventure of today. 🥰

    ##Asthma #Arthritis #ChronicIlless #Jointpain #ChronicDepression #TraumaticBrainInjury #TBI
    #AnkylosingSpondylitis #ADHD #ChronicPain #Endometriosis #PMDD #COVID19 #ChronicFatigue #DiabetesType2

    2 reactions 3 comments