Ehlers-Danlos Society

Has anyone tried vitamin patches, since there can be stomach issues that sometimes prevent adherence to vitamins orally?
What was your experience? Did it seems worth a try? Was there a specific blend of vitamins that helped specific symptoms for you?
Any opinions would be appreciated. 🙂

I'm here because everything is adding up so rapidly with both medical and social, and what better community to relate with then the ones going through exactly what I am?

#ADHD #EhlersDanlosSociety #POTS #HashimotosThyroiditis #HypermobilitySyndrome #PerniciousAnemia #ChronicPain

Hi, my name is _edcaeg. I'm here because I have been diagnosed with Ehlers Danlos.

#MightyTogether #EhlersDanlosSociety

I had just asked a friend what she was doing for Thanksgiving and she told me this; "I'm spending the day with my mom and nothing else because last Thanksgiving I had planned to surprise my dad at the nursing home by making Thanksgiving dinner at home with all HIS favorites and bringing it to him. That way we could still eat the holiday meal together and he got to enjoy his favorite holiday foods instead of the traditional meal the nursing home provided. However, I was to late. He died 3 days before Thanksgiving "!
My response to her was; Do not blame yourself! What you had planned was a very wonderful surprise and if it were possible to be sad in heaven, I'm sure your dad was shedding some tears; 1) because he was so proud you had planned that and 2) because he missed it! But God's timing is not our timing! That is whatis forgotten until some like a death cruelly reminds us. So remind your loved ones of your love. Because we never know what God's timing will be!!

I come back here after a long time, but I feel sadder than ever. I've been doing psychotherapy for a year now, but talking about my illness and my emotions is devastating me. I have always had a very bad relationship with my illness and since it influences my whole life, I have many aspects to resolve and face. Furthermore, I have never talked to anyone about my illness, it's hard for me to talk about it even with my therapist and it took me a long time to open up. I often remain silent with her and I withdraw into myself, even if not intentionally. My illness has absorbed me completely, it has stolen my identity and my happiness and I feel a sense of emptiness that I cannot fill. I feel so sad, discouraged and alone, I don't know how to move on. Sometimes I feel like I'm even worse off than before, when I used to bury all these things inside me, hiding them even from myself. My therapist also convinced me to do a medical check-up after a long time, but I've always had bad experiences with doctors and I'm terrified. I know that sooner or later I would have to face my illness and all the monsters inside me, but sometimes I feel like I'm fighting with something bigger than me, which takes my breath away and I feel overwhelmed. If anyone has been through something similar, I'd love to hear your experience and get some advice! Thank you💞#ChronicIllness #ChronicFatigue #EhlersDanlosSociety #EhlersDanlosSyndrome #CheckInWithMe #Loneliness #Depression #Anxiety #Disability #DistractMe #RareDisease #MentalHealth #InsideTheMighty #ChronicPain #SocialAnxiety #Grief #MightyTogether #MyCondition #SocialAnxiety