Broken record conversation #
Ok this hasn't happened in years but it still bugs me...I'm in the dentist's office to get a consult from the periodontist about my receding gums. I don't know if that is part of my Goldenhars Syndrome. But that's besides the point. He looks at me and says "What happened to you? Do you have a palsy?" At first I'm like What?? Then I remember the facial difference he is referring to and explain what I have and that I have had several surgeries for GS. He then says "Did they not work because they were done at the wrong time?" At that point I say, "what do you mean it didn't work? I can eat, breathe, and speak. How is that not working? " He then dropped it and went on with the consult. This is not the first time I've had this conversation. Nor is it the first time I've had it with a medical professional. Am I the only one who finds it mind boggling that I still have to have this conversation after 50 years??? #GoldenharSyndrome #FacialDifference