Rare Disease

Divorce is hard on kids but my son received my unconditional love his whole life. He was 12 when I became disabled which destroyed his view of me to the point he was embarrassed to have me show up at his school with a walker his friends made fun of me called me his grandfather. When I had to move to the country for affordable housing the divide became greater. He was failing out of freshman year in high school because Mom didn't care soI brought him up to the country trying to get away from gangs and drugs and I got him to graduate highschool but he got involved with drugs. He is 32 now has been to jail three times and up until he was 28 I bailed him out. I stopped enabling him and tried to have him live with me and Mom but he wasn't motivated. He never helped his disabled father even after major surgeries. Now he wants contact with me and Mom and I was suspicious of his intentions and I was right he has no place to live but still has the truck I gave him so I said no.

It breaks my heart but I am 60 with a chronic illness I can't handle having him here and I won't jeopardize my mom's heath because he will start a fight with me and Mom is 86. I had to go in survival mode even if it's a family member because I am the only one talking care or Mom. Just sometimes you wish this one thing in life could go right.#MentalHealth #DegenerativeDiscDisease #RareDisease #MuscularDystrophy #ChronicPain #Disability #Fibromyalgia #Anxiety #CervicalRadiculopathy #Lumbarfusion

Seeing someone new for your health or treatment can bring up a mix of emotions—hope, anticipation, relief, anxiety, just to name a few. That's completely normal, especially if it took time, energy, and effort to find a health care professional who may help bring more clarity to your health journey.

Finding someone who could be a good fit doesn't end with booking the first appointment. Just like building any important relationship, preparing ahead of time can help you feel more confident and make the most of your visit.

How do you prepare for a first appointment? How do you bring up the topics that are most important to you? What supplies, notes, or medical records do you bring? Do you invite a trusted family member or friend to come with you? What helps you feel safe, supported, and comfortable during the appointment?

Feel free to share your experiences and tips in the comments below! 👩‍⚕️

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

One of the best things about joy is that we don’t have to keep it to ourselves! To wrap up this week’s theme, our challenge to you is to intentionally bring joy to someone else over the weekend, especially to someone who needs it.

Who will you choose? A friend, neighbor, family member, spouse, or another Mighty member? What will you do?

We’d love to hear your ideas in the comments below! 💌

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

The elasticity of the human brain is really put to the test when you have a chronic illness with no cure or treatment. The first couple of years i was handling it but that goes up and down you are being put through the test as all this pain and immobility takes down your spirit. You learn to accept your limitations and you move on until the next symptom comes up. Im just tired of playing the mind game of fending off the obvious like it's going to be ok when you know its not.

What keeps me going is i taking care of my 86yr old mom and i have a wonderful dog.I also live in a beautiful mountain community as natire brings me joy.#MentalHealth #MuscularDystrophy #DegenerativeDiscDisease #RareDisease #Depression #Fibromyalgia

Who doesn't love a great song that can instantly raise your spirits? There's so many classics and feel-good songs that can get you in a dancing mood. 🎶

Mighty staffer @sparklywartanks likes "When I Grow Up" by NF and "Now That We Found Love ft Aaron Hall" by Heavy D & The Boyz.

Share your song recommendations in the comments below.🕺🎵

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most of us spend our time managing our calendar.

Far fewer spend time managing the thing that actually determines how well we think: our energy.

In today's video, I share why protecting your mental energy is just as important as managing your time, along with a few simple habits that can help you stay focused throughout the day. Click on one of the links below to watch it.

Question: What's one thing that helps you recharge during a busy workday?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Have you ever sat in front of your computer, read the same sentence three times, and still couldn't focus?

It doesn't necessarily mean you've lost your ability to concentrate. More often, it means your brain needs a little help getting back into a rhythm.

In today's video, I share a simple technique you can use to rebuild your focus and get more out of your workday.

Question: What's the biggest thing that steals your attention during the workday?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Albert Einstein once said, "Time flies when you’re having fun!" And that is so true, especially when it comes to the activities that bring us the most joy — the ones we get wrapped up into, willingly distracted by, and end up fully entertained.

What’s a hobby or interest that makes you lose track of time in the best of ways? (For Mighty staffer @sparklywartanks , that's definitely writing and creating various graphic designs on Canva. She can get so absorbed in her personal projects that she doesn’t even realize hours have passed!)

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie