Rare Disease

Taylor Swift sings the famous line “ Time turns flames to embers
You'll have new Septembers “

Atleast with my diseases .

I never know if that fact is true .

It’s crazy to live with diseases that make life so uncertain.

But there’s a strange blessing that comes with that uncertainty…

The gratitude.

We’ve officially reached the “BER” months, and as you know, I am a SUCKER for these months. 😂

1. I’m an October baby. 😉
2. Holidays = life. ❤️

Looking back on Sept of last year , has me thinking about just how much life has changed over the past year.

How many times my heart has been shattered.
How many times it’s been completely full.

The times I didn’t think I was going to make it.
The times I didn’t care if I did.
And the times I was so incredibly grateful just to be in the moment I was in.

And all I can say is…

No matter how unbearably hard some days feel right now,

I am so grateful for another September.🍂❤️

How has rare disease changed your perspective? #RareDisease #CommonVariableImmuneDeficiency #GeneticMutation

Let’s each make a list of things (or people! or places! or pets!) that are forever foolproof in boosting our moods.

Here is Mighty staffer @sparklywartanks list:

🐶 Her dog
🛏️ A nice refreshing nap
✍️ Writing on her blog

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

When your mood dips, it can be helpful to have some go-to self-care techniques and practices up your sleeve so you can get on solid ground again. This can look like going outside, talking to friends and loved ones, playing video games, being creative, or even taking a break from your responsibilities.

Mighty staffer @sparklywartanks says her go-to technique is to watch her favorite comfort shows as well as to eat her favorite snacks.

What are your favorite techniques to practice when you’re feeling low? Share with us in the comments below.👇

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Happy September, Mighties! 🌟

We've already reached this far into the year! There have definitely been ups, downs, twists, and turns, but that doesn't stop us from setting new intentions, aspirations, or creating opportunities for ourselves.

Whether it's related to your health and treatment, visiting a place you've always wanted to go, tackling a task you've been putting off, having a conversation with someone you haven't spoken to in a while, finishing a project you've been working on, starting a new one that's been stirring in your mind, or creating a routine that feels best for your body—what's something you want to get to by the end of this year?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Because we are individuals who have emotions, are multifaceted, and have different experiences, our moods can be affected by various things.

Some people may find that their mood is affected by the weather, certain emotional triggers, or the events that are happening around them; while others may find that their mood fluctuates as a symptom of their health condition — maybe even all the above.

What do you think your mood is most affected by?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Sometimes we stay in situations that hurt us because leaving feels selfish. We worry about disappointing someone, being misunderstood, or becoming the “bad person” in someone else’s story. So we keep giving chances, explaining ourselves, and tolerating things that slowly wear us down.

But there comes a point where protecting yourself isn’t cruel. It’s recognizing that your wellbeing matters too. You can care about someone and still need distance. You can understand why someone behaves the way they do without accepting how they treat you. And you can walk away from something that is hurting you without hating the person you’re leaving behind.

Not everyone needs to be removed from your life when things get difficult. But you are allowed to have boundaries around what you repeatedly accept.

Sometimes growth is learning that keeping the peace with everyone else should not require losing your own.

What boundary have you learned to stop feeling guilty about?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

This week’s 52 Small Things challenge is a mood (no really, the theme is "moods"). 🤣

Whether we’re happy, sad, lonely, grateful, depressed, hopeful, or stressed, it can be helpful to record our feelings in order to gauge our emotional well-being over a specific period of time. Tracking our moods can also help with seeing patterns and checking in with ourselves regularly.

But while some may find this technique fulfilling and helpful, others may consider it a chore and would rather take each day as it comes.

What is your preference? Do you track your moods on a regular basis?

✏️ P.S. If you find the above statement to be true, let us know how you track your moods in the comments below! We also have our very own mood tracking group on The Mighty. Check it out here: Mighty Mood Tracking

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie