Rare Disease

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When Your Child With a Rare Disease Doesn’t Feel Brave

Have you ever done something that you knew was the right thing to do, but you were scared to do it? Or maybe you did something that looked hard, but you decided to try it. That is courage in action and you probably felt very good about what you did. And you should! Courage shows [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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A standard that I hold myself to is...

Happy Friday, Mighties! 🌹

A personal standard is a guideline, belief, activity, habit, or behavior that helps you stay true to yourself. Upholding your personal standards not only builds confidence, self-awareness, and a strong sense of your values—it also creates a roadmap for others to understand who you are.

Personal standards can take many forms. Some examples include:

💛 Speaking kindly to yourself, even on tough days

🧡Always showing up on time

🩷 Being honest, even when it's hard

🤍 Taking care of your mental and physical health

💜 Setting boundaries that protect your peace

What is a standard you hold yourself to? Why is that standard important to you?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

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How to Train Yourself to Overcome Depression

This might be hard to hear…

But no one is coming to save you.

Not because people don’t care, but because your healing starts with you.

Mental strength isn’t just something you’re born with.

It’s something you train for.

🧠 Discipline.

🔥 Resilience.

💪 Daily action.

You’ve admired that strength in others—now it’s time to build it in yourself.

It won’t be easy.

It won’t feel fair.

But it will be worth it.

💭 Ask yourself: If this were a movie, what would the main character do right now?

Now go do that.

Because YOU are the hero of this story.

👇 Drop a 💥 in the comments if you’re ready to stop waiting and start training.

📌 Save this post for the days when the excuses feel louder than your strength.

🎥 Watch the full video to learn more about how to do this by clicking on one of the links below:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

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What small actions can you take today to make it easier for you to relax this weekend?

Time for rest and relaxation is important! Let’s prepare to take it easy (if possible, even for a moment) for the weekend by getting some tasks, responsibilities, or chores out of the way.

Mighty staffer @sparklywartanks will make sure to tidy up her room and complete her work so she can mentally and physically rest during the weekend.

What about you?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

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Today's mental health exercise

Here’s a little experiment to help you quiet the mind: Close your eyes and become very still. Now silently ask yourself, “What will my next thought be?” and just wait. Watch your mind closely, without chasing anything. The goal isn’t to stop your thoughts, but to observe them from a distance. You might notice that, in the waiting, there’s a pause… a moment of stillness. That space is where peace lives.

This is a gentle way to step out of the constant stream of thinking and into the present. Even 30 seconds of this can shift your energy.

Did you try it? What did you feel in that space? Drop a word below to describe your experience.

~ Thanks to all. Thanks for all. ~

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How Andrew Took Charge of His Indolent Systemic Mastocytosis Journey

May 15, 2025

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Take a Mighty Minute

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@takeamightyminute

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TRUE or FALSE: I am OK not being in control.

Our relationship with control is something we manage daily—whether it's with our environment, our relationships with ourselves and others, our futures, or even our health. Control can offer a sense of stability and predictability, giving us the belief that we can shape outcomes and avoid unwanted surprises.

But the reality is, life is full of constant change and moving parts—especially when you're balancing a health condition alongside everyday responsibilities and other factors. As much as we might try, we can't control every detail all the time.

What are your thoughts? How do you feel about control? Are you OK with not being in control, or do you find it difficult to let go?

Share with us in the comments below! ⬇️

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

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________ would help me feel more calm about my health.

When you live with a physical and/or mental health condition, it can be challenging to manage the demands, needs, and treatment that come with it. Reaching a state of calm and balance may mean taking intentional steps or seeking help if necessary. (Or it may even look like getting answers!)

What would help you feel more calm about your health?

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@takeamightyminute

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Share a word or phrase that best captures where you are in your health journey.

What makes us a Mighty community is that our health journeys are all unique and personal to each of us, and despite the challenges and uncertainties, we continue to move forward together. 💚

If you could use only one word or phrase to describe where you are in your health journey right now, what would it be?

🗒️ Note: Feel free to use literal or figurative language to express your word or phrase.

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Rare Disease

Related Conditions?

When Your Child With a Rare Disease Doesn’t Feel Brave

How My Daughter's Rare Disease Opened My Eyes

A standard that I hold myself to is...

How to Train Yourself to Overcome Depression

What small actions can you take today to make it easier for you to relax this weekend?

Today's mental health exercise

How Andrew Took Charge of His Indolent Systemic Mastocytosis Journey

TRUE or FALSE: I am OK not being in control.

________ would help me feel more calm about my health.

Share a word or phrase that best captures where you are in your health journey.

Feed for Rare Disease