Rare Disease

Happy Monday, Mighty fam! 🌞

What kind of week are we stepping into today? If you could give it a title, what would it be? What words, ideas, thoughts, or expectations are leading the way?

💎 Feel free to get as creative as you'd like!

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Let’s put on our backpacks 🎒 and sunscreen🧴and talk about the great outdoors this week!

Whether it’s to get some sunlight (or shade!), have fun, travel to work or school, run some errands, walk your dog, or take care of other responsibilities (like endless doctors’ appointments), venturing outside is almost always a reality for us on a daily basis. For some, this is a part of a regular routine, but for others, not so much. Sometimes health and other factors prohibit outside time and we totally get and hold space for that, too.

What is your experience with the great outdoors? Do you spend a lot of time getting fresh air, or does it depend on your health playing nice?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

It’s the end of the week, Mighties, so let’s reflect on nurturing ourselves over the coming weekend! This can look like self-care, nurturing a hobby or passion project, spending time with people you care about, organizing/decluttering your work or living space, or doing something relaxing and fun.

Mighty staffer @sparklywartanks plans to nurture herself this weekend by sleeping in and spending time with her family.

How can you nurture yourself in the next few days?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Hi, Mighty fam! 💜

How are you really doing today? What’s on your schedule or something you want to prioritize? How would you rate your symptoms? Check in with us using one—or several—emojis in the comments below. 👇

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Navigating life with infertility is complex and multifaceted. It can affect many areas of your life, not to mention the grief and stigma that often accompany the experience.

What’s something you’ve learned—or are learning—to accept on this journey? What has your road to acceptance been like? If you’re not quite on that path yet, how far have you come? What roadblocks have stood in your way?

#Infertility #Endometriosis #OvarianCancer #Grief #PolycysticOvarySyndrome #ChronicIllness #ChronicPain #RareDisease #CheckInWithMe #MentalHealth #Anxiety #Depression #Selfcare #Trauma

Our living spaces are an important part of our daily lives and comfort levels (yes, even if you don’t spend a bunch of time in yours). It is in these spaces where we largely rest and take care of our basic human needs — from hygiene to preparing our meals to paying bills. Creating a safe space where we stay can have a significant impact on our health as well, since a good environment can help us manage and navigate stress better. And a bad environment can, well, add a lot of stress too.

What are some ways you can make your living space more nurturing for you?

Something that would make Mighty staffer @sparklywartanks living space more nurturing is adding more plants and colorful art.

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

As Mighties, many of us have visited a wide range of health care facilities—hospitals, specialty clinics, urgent care centers, general outpatient clinics, surgical centers, therapy offices, and more. While each facility may offer specific services, there is still significant room for improvement in areas such as patient experience, accessibility, resources, and support.

What is one thing you believe should be readily available in all health care settings but currently isn’t? Why do you think it’s important?

💡 Share your thoughts in the comments below!

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Here’s the truth: The relationships we have with others help us build community and connection with the world around us.

This is also the truth: Some relationships in our lives will naturally be closer than others and have different standards, but overall they each have their own level of significance to us and our needs. Those relationships can be with family and friends, coworkers, neighbors, teachers and classmates, or even our health care teams.

Out of the relationships in your life, which ones do you nurture the most? What does that nurturing look like?

Mighty staffer @sparklywartanks says she nurtures the relationships she has with her mother and sister the most.

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie