I am currently in the Hospital. Very lonely and bored! Anyone else? Looking for connections with people with similar conditions. Hospital or not.
#Gastroparesis #EhlersDanlosSyndrome #Dysautonomia #TPN #Gtube #HospitalLife #TransverseMyelitis
Not having a good day today. Both my legs are in pain & I have no energy to do anything. Feel like such a burden on Anthony & the kids. Tomorrow it will be a month since the journey started. When will it end or is this my new normal? #fndwarrior #HospitalLife #fndhope #fndaware
#CysticFibrosis #HospitalLife #Anxiety
Regarding my last post, I had said that they found out my problem had been an allergy to aspergillosis. they made a mistake (as everyone does) and so I had a CT Scan today. the CT scan showed that it is actually my mycobacterium that is causing my problems. next step is to do a year long iv antibiotic run which has an extremely low success rate. not the news I was hoping for but I can deal with it like I have everything.
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