TPN

Join the Conversation on
TPN
288 people
0 stories
33 posts
Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
Newsletters
Don’t miss what’s new on The Mighty. We have over 20 email newsletters to choose from, from mental health to chronic illness.
Browse and Subscribe
What's New in TPN
All
Stories
Posts
Videos
Latest
Trending
Community Voices

An Accomplishment

<p>An Accomplishment</p>
Community Voices
Community Voices

Baking Therapy

<p>Baking Therapy</p>
3 people are talking about this
Community Voices
bee
Community Voices

I’ve fought 8 long years for health. In that time I’ve been dismissed, let down, told nothing was wrong and left to my own defenses. I’ve suffered from depression and anxiety since I was 32, now 56 I’ve had a total abdominal colectomy with IRA in 2017, failed… only to get an ileostomy with hope for regaining health and weight in 2021. Now at 87 pounds, I’ve lost hope, doctors fail me, no offer of tube feeding or supplemental feeding, I can’t eat without pain, now on pain medication. Still I suffer. I’m at a loss, I’m trying to make each day count, I’m grateful for the life I’ve lived, but I’m not ready to go yet. I’m scared, yet I don’t have the energy to even attempt to go to doctors appointments with any hope, as they continue to fail me. I don’t understand why others are given help and the doctors I see won’t do a thing! I feel like I’ve just been left to wither away and die.

3 people are talking about this
Community Voices

Feeling lucky

I have a handful of chronic Illness and I’m also a nurse. I recently went back to work part time after being out on medical leave for 10 months. It’s truly kicking my butt, but I’m so happy to be back. I got called bad ass and and inspiration, but In reality I just feel lucky. I’m one of the lucky ones who can still work, albeit part time but I’m working. I don’t feel deserving of being called these things. Yes, I have daily struggles but so doesn’t everyone.

#ChronicIllness #TPN #EhlersDanlosSyndrome #Intestinal Dysmotility #AutonomicNeuropathy #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Nurse

1 person is talking about this
Community Voices

Any tips/trick for when you feel Clamy all over, which often turns to cold to the bone feeling, followed by a hot flash (and than it restarts again..)

Hai,
I'm often run into the problem that my body gets caught into a Ficuosis Cycle of Hot>clammy(of sweat) > cold >hot again etc (almost fever like).
It's often triggered by environmental temperature changes, because for some reason my body doesn't know what to do with that...
It's probably caused by one of my conditions/meds, like I'm on fenanyl and us #TPN (total parenteral nutrition = feeds via a permanent IV)
> I'm already doing clothing layering a lot, and wear a lot of scarves tat are easy to put on or off. But I'm looking for more Clothing tips, like what fabric types to look out for, and which to absolutely avoid...? Like now I'm only using Cotten primarily, just because I'm so unsure about other (mostly synthetic) fabric types.
So any tips, or insights, are greatly appreciated!!
XxX Maudddy

#clamy
#Crohns
#ChronicPain
#painmeds

5 people are talking about this
Community Voices

Any tips/thought that can be helpful with feeling Clamy allover a lot? I often land in a Ficuosis cycle of feeling Cold/Clamy > (normal) > Hot/sweaty

2 people are talking about this
Community Voices

Feeding Tube tips and tricks for feeds?

What are some examples or ideas for J tube feeds? My body is having trouble increasing my tube feed amount so I could use any examples/ideas or hacks to help. I currently run my TPN 12 hours over night and then try to do 2-3 (working towards 4-5) 250mL food bags through my j tube with bolus feeding during the daytime but again, having trouble sometimes even getting my second bag in. Ideas?
#Gastroparesis #Undiagnosed #help #TPN #ChronicIllness #InvisibleIllness

2 people are talking about this
Community Voices

What’s your feeding schedule for tube feeds?

What are some examples or ideas for J tube feeds? My body is having trouble increasing my tube feed amount so I could use any examples/ideas or hacks to help. I currently run my TPN 12 hours over night and then try to do 2-3 (working towards 4-5) 250mL food bags through my j tube with bolus feeding during the daytime but again, having trouble sometimes even getting my second bag in. Ideas?
#Gastroparesis #ChronicIllness #Undiagnosed #Jtube #RealFoodBlends #TPN #Gastroparesis