If you’ve carried grief quietly, this one might feel familiar. Blog 10 is now posted. This one touches on the grief of pain, and the process of healing from trauma little by little to find yourself still in physical pain. #KFS #KlippelFeilSyndrome #ChronicPain #Grief
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Living with Klippel-Feil Syndrome. The conversations have gone quiet, but we’re still here, writing a living blog for those who need a voice, a mirror, or a moment of truth. #KFS #KlippelFeilSyndrome
1 reaction I just want this ridiculous pain to stop! Im sick of feeling like a pill puppet, only to have minimal pain relief but end up sleepy AF, not being able to drive. Staring at the mountain of dishes that I simply can't imagine trying to do.
I'm going thru alot. My Mom passed in June. I have a crap-ton of things that I have to get done in her house(doesn't help she was a horder) & I'm forever &beyond grateful for all of the help my bf has been. Idk where I'd be without him. Now I feel like holding him back, regardless of him saying otherwise.
Now, I just found out I have an annular tear w/herniation at L5-S1-the only section of my spine thats anatomically correct! Because my spine is so messed up the only thing my Dr.'s have recommended is PT. I don't understand why I cant get some type of shot(s)?!
I don't/won't allow myself to be on Prednisone long term (I turn into a nightmare) Feel like I'm failing miserably.
Thanks for letting me vent.
Despite the P.I.T.A. process of changing Dr's- I am STOKED for new tests, and escp.a new treatment PLAN. I'm finally excited about LIVING, & not just EXISTING!!! PEACE OUT 2018! Good riddance & buh-bye! Bring it 2019..the foundation has been laid.💥💫💥🖤💥
#EDS #KFS
#52SmallThings
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