KFS

Living with Klippel-Feil Syndrome. The conversations have gone quiet, but we’re still here, writing a living blog for those who need a voice, a mirror, or a moment of truth. #KFS #KlippelFeilSyndrome

I just want this ridiculous pain to stop! Im sick of feeling like a pill puppet, only to have minimal pain relief but end up sleepy AF, not being able to drive. Staring at the mountain of dishes that I simply can't imagine trying to do.
I'm going thru alot. My Mom passed in June. I have a crap-ton of things that I have to get done in her house(doesn't help she was a horder) & I'm forever &beyond grateful for all of the help my bf has been. Idk where I'd be without him. Now I feel like holding him back, regardless of him saying otherwise.
Now, I just found out I have an annular tear w/herniation at L5-S1-the only section of my spine thats anatomically correct! Because my spine is so messed up the only thing my Dr.'s have recommended is PT. I don't understand why I cant get some type of shot(s)?!
I don't/won't allow myself to be on Prednisone long term (I turn into a nightmare) Feel like I'm failing miserably.
Thanks for letting me vent.

Despite the P.I.T.A. process of changing Dr's- I am STOKED for new tests, and escp.a new treatment PLAN. I'm finally excited about LIVING, & not just EXISTING!!! PEACE OUT 2018! Good riddance & buh-bye! Bring it 2019..the foundation has been laid.💥💫💥🖤💥
#EDS #KFS
#52SmallThings