Hey Mighties just wanted to share briefly the surgery went well. Its been 6 weeks. Physical therapy has been tough due to my over enthusiasm 😕. Overall things are going well and I need to trust the recovery process. Me with my walker and brace.
#TetheredSpinalCordSyndrome
I had my Tethered Cord Surgery on September 14th. It is both better and worse post-op than I expected. The hospital experience was hellishly painful, but since arriving home, I’m moving around better than I expected. I am more fatigued and more in pain than I remember being after my C1-C2 fusion (although almost 3 years might have softened the memory). Bowel and bladder seem better, but I am concerned with some heaviness in my legs and some discomfort in my hips like that pre-surgery. The real test for my walking will be leaving the house for my follow-up with my neurosurgeon. For those who have also had tethered cord release surgery: how did it improve your symptoms and how soon did you notice improvement? Did it take a while for the full effect to be seen? I know that there was always the chance of some of the neurological symptoms becoming permanent, but I hope that this is not the case here. I’d welcome any input/ would appreciate hearing your experience with tethered cord release surgery; I believe my was L5-S1 and I had an occult tethered cord, if that helps. God bless… #EhlersDanlosSyndrome #tetheredcordreleasesurgery tetheredciresurgery #laminectomy
I get into this mode a lot. I've come to realize that I need mental health help just as much as I do pain relief. I'm sure the two bounce off one another but I need help. I have issues from childhood that were never resolved. There is nobody adequate enough to speak to in this town. I don't like it here and my condition makes it worse. I depend on others for help and I know I can't survive on my own. Where do I go from here? I have to work cause I can't get approved for disability but I'm tired. I don't have much longer to go and nobody seems to understand cause they aren't in pain. #BackPain #laminectomy #imtired #imscared
Can anyone give me good suggestions for heating pads? I'm looking into the larger pads. My facet joints are killing me. I couldn't get my meds changed or refilled cause my insurance is gone. I need help sitting during my shift. It hurts to lay on my back. Any tips would help me. #BackPain #laminectomy #imscared #imtired
I don't know where to start. I'm caught up between my mental world crashing, chronic pain and the reality of life. How do you deal with a world in which some days you wished you were dreaming and that you'd wake up. My whole life has been hurt, me causing hurt, pain and me being hurt again and having regrets. I've asked for mental health several times this year. I'm dealing with so much that at times I get dizzy and I feel like I'm about to pass out. I'm back to my cry spells. I don't know who to turn to for help without being made to feel stupid. I just need a break from my brain, everything and everybody. I just need help. I'm stressed to the limit. I want to feel like I'm somebody without it causing a reaction. I want to be me. #BackPain #laminectomy #imtired #imscared
I'm about ready to give up. I don't know where to go and who I can trust. I don't like how money is the motivation for everything. I just want some guidance and for my back to improve. #BackPain #laminectomy #I 'mtired #imscared
Does anyone live in the Houston or Katy, Tx area? Could you recommend a Neurologist or a pain management physician? I would like to see which clinics or physicians are the best in their field. #BackPain #laminectomy #I 'mtired #imscared
I'm not sure what to do with my back at this point. Does anyone have a spinal cord stimulator? Has anyone used a TENS machine? Which works best? Does anyone have a herniated disc at their L2 L3? Has anyone had their discs collapse cause there was nothing left but bone? I'm just tired of being in pain. I can't go through another surgery. I have failed surgery syndrome. I just need the time to make an informed decision without being rushed. The injections don't seem to work anymore. I'm running out of options and there are many treatments left for me. #laminectomy #spinalcordstimulator #HerniatedDisc #ChronicPain #imtired #imscared
I've come to learn a lot about my back and how it feels to have flareups in certain areas. I recently decided to get a procedure done in which the staff made decisions the dr. should have made or at least it seems. I now have to go back again for what I originally asked for. I have to miss work and my employer isn't too happy about this. I don't know what to do cause I really would rather not be dealing with any of this but if they had listened from the start I wouldn't be stressing over having to miss work for something I already missed for. I don't want to be the odd ball out. #BackPain #laminectomy #imtired #imscared
It's horrible living with any back condition that causes pain. I feel bad for everyone who deals with it. In my case I have chronic back pain and nerve damage after having the surgery. I went back to work determined to succeed. I struggle at times. I was rejected from disability cause they said I could work a desk job. What if your pain gets worse as you sit? When you bend? Sometimes when you walk? I've had pain sear through my back for hours at a time. I've had feet so numb that I thought I was going to trip cause I couldn't feel my feet. I've had pain burn down my legs and numbness in my calfs. I'm supposed to feel like this, concentrate on my job and not make mistakes, learn new things, and not be high to the ceiling on pain pills I can't even get. I have a degree so I'm smart enough to work in a sitting position. It doesn't matter if this position hurts me cause I still don't qualify. How are we supposed to live if we can barely work? I spend a majority of my pay on pain management just to make enough money for more pain management. This cycle will never end. #BackPain #laminectomy #imtired #imscared
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