Narcolepsy Management at Work www.mynarcolepsyteam.com/resources/narcolepsy-management-at-work
Narcolepsy Management at Work
www.mynarcolepsyteam.com/resources/narcolepsy-management-at-work

Narcolepsy Management at Work
www.mynarcolepsyteam.com/resources/narcolepsy-management-at-work
Yes but now it’s two something in the morning and I can’t sleep because I slept like all evening after my ear procedure, but I reached out to the sleep doctor the other day and she is thinking about testing me for Narcolepsy. It’s weird though because I only fall asleep suddenly during the day when I am sick or experiencing something medical. This started in 2018 when I had my first ear problem. Any suggestions or advice is welcome because I need help.
I have been sleeping off and on since I got out of the ear doctor’s office at like 3:30 and it is like 6:10 now! Going to watch my little brother and then go back to sleep! I get kind of freaked out whenever I get like this because these episodes only happen when I am sick or have something medical going on. Maybe for a couple years now, but I meet with the sleep doctor in July to talk about getting evaluated for narcolepsy
Hi, my name is MamaFrog. I'm here because I was diagnosed with: Fibromyalgia, Chronic Fatigue Syndrome, IT Band Syndrome, Insomnia, Narcolepsy, and depression between 15-17 years ago. In the last 10 years, I have been diagnosed with: Sjogren's Syndrome, Costrocondritis (inflammation of the fascia over/under/around the chest wall...this feels like a heart attack. In my case, this climbs around my whole chest wall, up into the whole neck, jaws, and into both ears.), chronic headaches, arthritis (in my whole back, neck, with lower bone spurs in my pelvic region). Not to exclude the bulging disc between my shoulder blades, and disgenerative disc disease. I know... I'm a total mess ( my husband tells me this frequently! 🤣🤣)!! I take WAY too many medications (including 30mg Morphine 3 times a day) just so that I can function (ie. move my body without much pain, think clearly, sleep, stay awake all day, etc ...😬😱😭). I have many books on most all of my chronic illnesses, and keep mostly up-to-date on medical testing/discoveries involving my "issues". Today is Easter Sunday (HE HAS RISEN!!), and it's been a tough day for pain/movement/ cognizance/memory and it's not even noon yet!! I hope you, that are reading my ramblings, are ALL in a great place today and everyday!!! Gentle Hugs! 🤗 ❤️
This is something I wrote today. Writing is helping me process my chronic illness.
—————
What I didn’t know I was holding:
I didn’t know
that most people don’t wake up
already tired.
That showers don’t drain them.
That joy isn’t rationed,
measured in teaspoons
of energy they can’t spare.
I thought I was normal
because no one told me otherwise.
Because my mother didn’t tell me
that pain can have a name.
Because in my family,
suffering was swallowed,
then called strength.
I learned to call it strength, too.
I smiled through fog,
walked on bones that ached like bruises,
held my breath through fatigue
that wrapped itself around my brain
and made me disappear
in plain sight.
I was praised for being capable,
for pushing through,
for carrying what no one saw
was breaking me.
And I believed them.
I believed myself.
That I was just sensitive,
or weak,
or lazy,
or wrong
for wanting the pain to mean something
other than failure.
I didn’t know
that what I was surviving
was not survivable forever.
That one day the pushing
would push back.
Now I am here.
Still trying.
But I am sick.
And I am done pretending
that sick means broken
or invisible
or unworthy of softness.
I see myself now—
not dramatic, not weak,
but someone who has been
astonishingly brave
in the wrong direction.
I am learning
how to live
without abandoning myself
in the process.
Hi, my name is WiseCat41. I’m here because I’m having a rough day. I was finally diagnosed with multiple autoimmune diseases in a whirlwind six weeks after being extremely ill with pneumonia. Now, I’m sick again with the flu, and it feels like the bad days are outweighing the good.I’m worrying constantly—about work, taking care of my 5-year-old son, and trying to be a good partner. Honestly, I feel like I’m failing at everything.I know I’m not alone in this, but it’s so hard to see a way forward right now. How do you find balance or just get through when everything feels like too much?#newlydiagnosed #HashimotosThyroiditis #Narcolepsy #RheumatoidArthritis #CeliacDisease #Parenting #Roughday
Hi, my name is Basket. I've been diagnosed with
Addison's, Narcolepsy, ME/CFS, Fibromyalgia, POTS, Psoriasis, IST plus more :).#MightyTogether
Hi, my name is mackvinyl. I'm here because I was asked to try to find more resources and stuff to make you feel better.But I don't really know how this is going to help
#MightyTogether #Anxiety #Depression #PTSD #AutismSpectrumDisorder #Narcolepsy #SleepApnea
The guys has the parts in his shop and he is coming out to try and fix the back of my new wheelchair seat. On the other hand, I don’t have sleep apnea but I do have restless leg syndrome and possibly Narcolepsy. As a result, I will just keep doing what I am doing until my next appointment. Thank you for the prayers. Oh and I am really glad I have a quite weekend coming up because I am going to need it.
Hi, my name is Georgie. I have atypical Hemolytic Uremic Syndrome.
I'm so happy to find a place where someone else may have the same disease I have. I'm 69 yrs old and didn't know I had this disease until September 8,2020 when I had my first attack. We still don't know what caused it. I will admit it was terrible an I live in fear everyday. I try to tell myself that I am strong and can do what I enjoy. Sometimes it works,so I get my wood working tools and start sanding or cutting a piece of wood to make something or to turn a old piece of furniture into something I love and can use in my house. I made, with the help of my son, it was a very heavy solid oak chest of drawers, that is now my coffee bar my kitchen. I took the drawers out, cut and fixed solid pieces of wood for baskets to slide on inside it. I really love it. Doing things like that is what my daddy taught me to love. I love fishing and camping as well. I guess you could call me a daddies girl. He isn't with me anymore. I've been married for 50 years and 9 months to the only other man besides my daddy, that I have loved. Well, I also have narcolepsy and ADHD.That's me. I'm extremely feminine and love everything girly too,but let me set by some water with my pink fishing pole with flashing lights when I real in a nice bass, that's the true Georgie. Nice to meet ya'll.
#MightyTogether .