What advice do you have for someone who is newly diagnosed with a rare disease as an adult?
Getting a rare disease diagnosis can be tough, but adding one on top of the complexities of adulthood can be even more challenging.
What advice do you have for an adult who’s been newly diagnosed with a rare disease? How did you “adjust your sails” and adapt to make room for it?
✏️ P.S. We’re creating a story with one of our partners, Catalyst, to raise awareness around late-onset rare disease. Your answer may be used in an upcoming editorial story on The Mighty.