Lambert-Eaton Myasthenic Syndrome

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Lambert-Eaton Myasthenic Syndrome
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Hi, my name is Nicksoccer21. I'm here because
I have had seroneg MG x24 yrs & am being worked up for LEMS now. Legs def weaker.#MightyTogether #MyastheniaGravis

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If you are living with a late-onset rare disease, what advice do you have for others navigating their daily life?

From family planning and relationships, to employment and retirement, living with late-onset rare disease can affect every single touchpoint in a person’s life (much more than others even realize).

But there’s strength in community, so we'd love for you to pay it forward. What’s a piece of advice you can share about your day-to-day experiences with navigating rare disease? What’s helped? What hasn’t?

✏️ P.S. We’re creating a story with one of our partners, Catalyst, to raise awareness around late-onset rare disease. Your answer may be used in an upcoming editorial story on The Mighty.

#RareDisease #LambertEatonMyasthenicSyndrome #MyastheniaGravis #CheckInWithMe #Spoonie #MentalHealth #LungCancer #SmallCellLungCancer #MuscularDystrophy #IntravenousImmunoglobulin #NeuromuscularDisease

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What advice do you have for someone who is newly diagnosed with a rare disease as an adult?

Getting a rare disease diagnosis can be tough, but adding one on top of the complexities of adulthood can be even more challenging.

What advice do you have for an adult who’s been newly diagnosed with a rare disease? How did you “adjust your sails” and adapt to make room for it?

✏️ P.S. We’re creating a story with one of our partners, Catalyst, to raise awareness around late-onset rare disease. Your answer may be used in an upcoming editorial story on The Mighty.

#RareDisease #MuscularDystrophy #LungCancer #Spoonie #MentalHealth #LambertEatonMyasthenicSyndrome #MyastheniaGravis #neuromuscularimmunoglobulin #CheckInWithMe #SCLC

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