piawareness

#ChronicPain #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #ChronicIllness #CVID #CommonVariableImmuneDeficiency #RareDisease #RareDiseaseMonth #InvisibleIllness #piawareness #zebrastrong #Spoonie #spooniesupport #spoonielife #disabilityawareness #Sarcoidosis #PulmonarySarc #NeuroSarc #Anxiety #PTSD

I have been chronically ill my entire life. I don’t remember a time when I wasn’t battling some kind of infection. I was born with a rare disease known as primary immunodeficiency or PI for short. More specifically CVID or common variable immune deficiency which usually affects children. I wasn’t diagnose until the age of 28! I receive monthly plasma infusions of Gammagard through a chest port. It helps to maintain my IgG levels since I cannot produce my own antibodies. Basically it just means I’m prone to infections like pneumonia. #piawareness #Showyourstripes #zebrastrong #DonatePlasma #RareDisease #RareDiseaseMonth #InvisibleIllness

Hi, my name is DeadStar. I’m here because

#MightyTogether #ChronicIllness #ChronicPain #ChronicFatigue #RareDisease #InvisibleIllness #Disability #DisabilityInclusion #DisabilityRights #piawareness #PrimaryImmunodeficiency #CommonVariableImmuneDeficiency #zebrastrong #IVIG ##Spoonie #spooniesupport #Arthritis #ComplexPosttraumaticStressDisorder #Comorbidities #Anxiety #Agoraphobia

My 7 year old zebra hosts a blood drive every February to raise awareness of CVID and Rare Disease Day. He had a great turnout with 48 units of blood collected which helped over 120 patients. #mightymightymason #piawareness #Needlewarrior #Immunodeficienciesstink #Hesworthacure #InvisibleIllness
#RareAndMighty