Gastroparesis

Today, I just went to the doctor 👩‍⚕️ for GI issues, and all of a sudden started having a seizure. I have non-epileptic seizures triggered by anxiety and had a ptsd flashback in the doctor’s office which set of this whole shit 💩 storm. You see - I was abused in the medical setting - physically, verbally, and emotionally. I was gaslit and told I was faking and needed to snap out of it. FYI it’s pretty hard to fake a seizure. Now I’m losing all my body functions again - can’t walk, can’t talk, can’t even pee on my own. I feel so incredibly hopeless and depressed that I’m going through this all over again. Just when I start seeing a glimmer of hope that I’m improving and getting better this happens. I just want to get better more than ever!!! I’m only 23 - young with lots of hopes and dreams and my whole life ahead of me. I don’t want to be stuck in a wheelchair with a catheter needing help doing everything, when I was just started to gain more independence and get my life back. I’m trying to stay strong, but I just really need some words of encouragement and hope from anyone whose experienced something similar. If any of you are out there I could reach out I’d really appreciate it 💞 #FunctionalNeurologicalDisorder #InterstitialCystitis #Gastroparesis #PsychogenicNonepilepticSeizures #PTSD #medicalabuse

Do you have any comfort items, accessibility tools, or even pets that help you while you're in bed? What makes your bedside helper helpful to you?

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis #Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #IrritableBowelSyndromeIBS #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness #alwaysinbed

Hey everyone. I have a repeat gastric emptying study tomorrow to see how my #Gastroparesis is faring. There’s been a distinct deterioration in symptoms and tolerance of oral intake over the past 6-12 months and we’ve been discussing an nj tube but gastro doesn’t want to do it without clear evidence as my weight is fairly stable due to consuming Coca Cola for energy. My hospital uses egg white omelette and toast for it. Last time I had eggs it went badly. I couldn’t poop for 4 days, had severe distension and pain, and then had a rather embarrassing accident on the way home from a family visit. So I’m dreading it! I’m also dreading it coming back no worse than last time and having to continue this cycle of trying to force enough calories in before I feel too sick to get anything else in. Then being in pain and bloated and feeling crappy. My muscles are so weak from 11 months with very minimal protein intake 😭 #hypermobileehlers-DanlosSyndrome(hEDS) #Gastroparesis #AutonomicDysfunction #HemiplegicMigraine #ChronicPain #ChronicFatigue

Yes here I sit or rather lay in the hospital bed. Nervous I have a #liver biopsy getting done tomorrow. Happy drs finally listened. Sad because as of yet the don't know what's exactly wrong.
I had a ct scan of my abdomen in January all it said was fatty liver. My swelling (didn't know it was my liver atm) I though was another hernia or my back. 10 mths later. I see one of my Dr's and tell them about all the symptoms I been having lift up my shirt to show the swelling & they freaked.
I was admitted to the hospital by that evening and that was on the 1st. Have had numerous blood tests, gastric emptying test another ct with & without contrast. My liver is very inlarged and the found a total of 6 lesions on it one measuring 14mm.
So here I lay at night in my #Hospital bed.
#lbbb
#Diabetes
#HBP
#liver enlarged
#Gastroparesis
#chronic pain