Gastroparesis

After visiting the Hospital 6 times in 8 months with Malnutrition I Finally got a feeding tube. Now 7 months later with only 2 Men in the state of Georgia who can do a G-Poem. I was just told I'm getting 1 in 3 wks.& this is the best possible surgery with the best outcome. #gpoem #Gastroparesis

I’m here because I’m seeking support from others who understand the struggles of living with chronic illness and pain. I’ve had migraines and headaches since my 20’s and I’m now 52. Then in my mid 40’s when I was finally working my dream job I got the flu and everything changed. I developed a host of strange symptoms that never went away and that in most cases doctors have never been able to explain or treat: taychicardia, heat sensitivity with profuse sweating, fever of unknown origin, chronic fatigue. As the years went on I developed more and more issues and the existing ones got worse. I have a headache pretty much every day of my life to some extent from nuisance up to full blown down in bed sick migraine. I have arthritis in my L4,L5 S1, I have now developed arthritis in both knees making walking painful which has lead to me putting on a lot of weight and the weight makes the knee and back pain worse so that’s a circle, I have stomach and intestinal issues that at one point we’re misdiagnosed as gastroparesis but have since been classified as functional Dyspepsia and IBS. I also suffer from Major Depressive Disorder, Anxiety Disorder and PTSD. Those are worsened by my health issues and that too is a viscous cycle. At one point I was taking over 25 different medications including opioids for the pain which in turn created even more issues. I’m now down to just seven prescriptions and several supplements but I’m having so much difficulty dealing with my chronic pain. OTC pain reliever doesn’t make a dent. I use STEM, have done chiropractic, massage, PT and acupuncture and while the regular massage did seem to help my husband lost his job at the end of January so not only do we not have insurance right now but there’s no way we can afford to self pay. I have a new neurologist who’s amazing, the best one I’ve ever had, and I do get Botox injections for my migraines, but I’ve tried pretty much every rescue medication on the market and nothing has worked. I did have good success with Elyxyb but then my insurance decided to take it off the formulary and now I’m without insurance altogether and that drug isn’t available as a generic and there is not way to afford it with no insurance. I’ve looked at doing a Medicare health plan but only a portion of my many doctors accept Medicare so I’d either have to go back to the drawing board and start over with a bunch of new doctors or pay the Medicare premium and fees plus self pay for all the doctors who don’t accept it. I found this group hoping having others who would better understand my struggles would be helpful for me. My husband says I complain too much. I try very hard not to but when you are sick or in pain every minute of every day it’s very hard not to. I was becoming afraid if I didn’t find another outlet my marriage might be in jeopardy. I look forward to getting to know others here and both getting and receiving support from others who understand. Thank you.

Hi, my name is browneyedbaker. I'm here because I feel like I keep hitting dead ends for help with chronic stomach pain and nausea and it's pretty lonely sometimes. I am hoping to find others with tip on how to feel better.

#MightyTogether #Anxiety #Depression #Migraine #OCD #ADHD #Gastroparesis #ibs

I have had night terrors since I was a child due to PTSD. I’m 46 years old and the nightmares are still with me. I will wake up screaming , soaked with sweat. On a really bad night I will wake up screaming, soaked with sweat and I peed in the bed. They have been so bad lately that I refuse to sleep. I will do this for days until I’m so exhausted my
Body just gives in to it. Any suggestions about how to prevent or something I could do to help the anxiety at night or stop the nightmares. I’m on Prazosin to help prevent nightmares. I don’t know what else I can do. I’m so tired. #Night Terrors
#c -PTSD # Bipolar #Gastroparesis
#Anxiety #BipolarDepression

I just got diagnosed with Gastroparesis. Doc said it's a really bad case of it. I currently can't eat any solids. I'm feeling miserable and in pain. I'm so scared. #Gastroparesis

Hi, my name is magicalmustang. I'm here because I just had a gj tube placed last week, and there’s so much to adjust to that isn’t shared or known by professionals. Like travel tips, skin irritation creams, do I need to keep my “food” cold in the bag, and just how do we do this?

#MightyTogether #Gastroparesis

I’m sitting here in the veterans home with my dad who doesn’t have long with us and my heart is so broken. I lost my baby brother, 55 years old, in June, had lost my oldest brother in 2011, 54 years old and then it was me and my daddy. He lives on my property and was very independent, on December 7th he fell after coming back from the grocery and broke his femur, he is 89, and has declined since. I just needed to put this in writing, kind of like having all of y’all to talk to. I ask please, that y’all will keep us in your thoughts and prayers, that he will have a peaceful transition. I will miss him so very much💔
#ceds #CRPS /RSD #Gastroparesis #Brokenhearted

Hi, my name is Wendymitch66. I'm here because I am coming to the end of my rope. I have been diagnosed with gastroparesis. I also have fibro. I can handle one of these, but not both. I miss my food!

#MightyTogether #Anxiety #Depression #Fibromyalgia #Gastroparesis