I did a meme
Humour helps me more than healthcare system #EDS #EhlersDanlosSyndrome #AutonomicDysfunction #POTS #Fibromyalgia #nephroptosis #MastCellActivationDisorder #Autism #PeripheralNeuropathy #Gastroparesis #ADHDInGirls #audhd
Humour helps me more than healthcare system #EDS #EhlersDanlosSyndrome #AutonomicDysfunction #POTS #Fibromyalgia #nephroptosis #MastCellActivationDisorder #Autism #PeripheralNeuropathy #Gastroparesis #ADHDInGirls #audhd
i had my first ct angio scan 3 days ago and it was incredibly painful. my joint pain and nausea that i usually have are unbearable even days later. has anyone else had this reaction? i’m not sure if it’s a reaction to the contrast or just my body deciding to flare up because of the pain #EDS #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #Gastroparesis #MedianArcuateLigamentSyndrome
Hi, my name is jlynnMiller.
#MightyTogether #Anxiety #Depression #ADHD #PTSD #AutismSpectrumDisorder #Gastroparesis #HypermobilitySyndrome
Hi, my name is Loren. I'm here because
#MightyTogether #Gastroparesis #ADHD #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #LynchSyndrome
Hi, my name is Monique. I’m a 23year old female with many chronic illnesses that I’ve been dealing with since 17. I know how lonely chronic illness can be first hand, so I’m loooking to potentially make new connections and friends💗
#MightyTogether #Anxiety #Depression #PTSD #Migraine #ehlers-DanlosSyndrome #Gastroparesis
Hi, my name is Bronwyn47. I'm here because I want to learn new ways to help myself and my partner with our chronic illness
#MightyTogether #Anxiety #Depression #PTSD #ADHD #Gastroparesis #BorderlinePersonalityDisorder #Lupus #sjogrens
1 car accident with 1 neck surgery with a damaged vagus nerve…..5 years, 136 tests, lost profession, financial collapse, mental breakdown, unanswered questions, life interrupted, medically educated by necessity, forced into disability.
#MightyTogether #Dysautonomia #HemiplegicMigraine #PosturalOrthostaticTachycardiaSyndrome #LongQTsyndrome #AdrenalInsufficiency #Gastroparesis
Gastroparesis can be heavy to carry and I stumbled across some really great resources that cover a lot of bases. In my time with GP medicine and understanding has catapulted forward so I know one day we will get relief and hope one day a cure. I have no affiliate to these resources just too good to not be put out there to the people who come here together.
1. Book: Living (Well) with Gastroparesis by Crystal Zaborowski Saltrelli. This is the most comprehensive book I've come across for GP and covers a lot of areas. She has also written other GP book on diet and cooking with GP.
2. Online Program Free - Living Well with Gastroparesis Program. www.livingwellwithgastroparesis.com/thriving-program
3. Online resource: www.livingwellwithgastroparesis.com
4. Online Resource: The Western Sydney GI Motility Disorders Unit does a lot of great work. If you gastroenterologist is not familiar with gastroparesis they can refer to specialist experts on the condition who can help assist in the management of your condition and care. helphttps://www.westernsydney.edu.au/gimotility/gi_disorders/Gastroparesis
5. Free online program: Gastroparesis Mind Over Gut Resilience Program. Can help manage mental health impacts of the condition. Intervention Program | Gastroparesis Resilience Program
Knowledge is key for advocating for your health and wellbeing. Note that not all doctors get it and it can take a little time to find a doctor that's suited to you and your condition. Wishing you better days ahead xx
Hi, I was diagnosed with gastroparesis a few months ago. Im on meds for it which have helped me a little, altho I wish there were decent antisickness meds that actually worked and/or didn't have bad side effects!..
I feel nausea a lot but rarely vommit, so getting drs to take me seriously has been difficult! Im seeing a specialist soon to discuss the possibility of a gpoem procedure and im nervous because i just want him to say yes lets try it. Im hopeful it could make a difference.
Im working and socialising very little at the moment due to the nausea and fatigue so im really hoping for some improvement 🤞
Hi, my name is lgrichardson11. I'm here because
#MightyTogether #Migraine #Fibromyalgia #Gastroparesis #Lupus