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New episode to be released tomorrow, 4/1!

We’re talking humor and laughter as coping strategy! Ridiculousness and absurdity ensued while recording this episode and laugh out loud Brain Fog truly happened which we decided to not edit out. Come Listen and Laugh with us!
00:05 am EST release 😄👏🏻.

(At this time, we have no episode transcripts but hopefully soon there will be. Please Be patient as we are doing this on our time and not getting paid for it.)
#ChronicHeadaches #ChronicIllness #ChronicMigraines #ChronicPain #Fibromyalgia #Agoraphobia #Anxiety #MyalgicEncephalomyelitis #Spoonie #spoonielife #CrohnsDisease #Endometriosis #RaynaudsPhenomenon #Dysautonomia #Vertigo #ChronicOrthostaticIntolerance #Podcast #creativecopes #ChronicFatigue #Migraine

Creative Copes Podcast • A podcast on Spotify for Podcasters

A podcast featuring two friends wanting to inform, educate and raise awareness into our ways of Creatively Coping with mental and physical restrictions. We want to add flavor and color into the bland landscape of chronic and invisible illness. Through wit, crazy and sometimes dark humor, we will explore how to channel our energy through creative means while searching for balance and flow to stay sane with dynamic disabilities. Love and Light ♥
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“Navigating a flawed Healthcare System & an ableist society”

I’m sick of trying to navigate a Healthcare system that doesn’t give a shit about me. ⚛️ ##Ableism #ChronicIllness #Disability #disabilityawareness #DisabilityInclusion #DisabilityRights #Spoonie #spooniesupport #spoonielife #zebrastrong

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We want people to feel less alone.

My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

We want YOU to feel less alone.
Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
#Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

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Truly. Small things can be great too.

I am limited.
This is my reality.
I only have so much energy to go around and I need to pick and choose what to spend it on. Always having to keep in mind that I cannot overdraw my account. I need to balance my ‘checkbook’, if you will, to make sure I don’t go down to zero either, because then I might not have enough for the next day.
(Obviously I am not perfect at Pacing as I find myself doing too much on occasions as I get impatient with my limitations. Overall, I’d say I do pretty well with it.)

So what do I choose to spend it on? Well, some mundane tasks need to be done like laundry or light cleaning, so I spread it out over a few days. I work within my boundaries which I have somewhat figured out by trial and error. This is part of Pacing.
Now, I am a very lucky Gal to have a super supportive husband and three kids that help me with some of the heavier chores, just would like to point that out.

When the Mundane Pragmatic stuff have been taken care of I choose to spend my energy on stuff that fills my heart and soul with contentment. Whether they’d be Creative Coping Strategies like painting, drawing, forest bathing, expressive writing or listening/making music (now the latter depends fully on headache pain levels but within my capacity, music will always have a part in my life) or just being with my family in the moment.
I also am a half of a duo who talk about exactly this in podcast we have named Creative Copes- A labor of love for ourselves and hopefully an aid to others.

This is what I spend my energy on.
Things that matter to me; that settles body and mind and makes my heart pumping blood.
I am not all knowing and cannot be Worldly Great: I am clearly not meant to be a main figure in changing the world lol.
But I can do Small things in a Great Way, for myself and others, and hopefully someone can pick up what I am putting down and feel more inspired to get up every morning and meet the day head on. Love and light ❤️
#pacing #CopingTips #MECFS #Fibromyalgia #ChronicHeadaches #ChronicIllness #Spoonie #spoonielife #MyalgicEncephalomyelitis #Anxiety #Agoraphobia #ChronicPain #dynamicdisability #ChronicPain #Pain #Acceptance #Grief #TheMighty

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Hey everyone! We’re Mita & Jen and new here!

We are two friends wanting to swap ideas on creative coping skills with like minded people! We host a podcast called Creative Copes about this very subject with new topics every week. Maybe some of you can give us ideas what to talk about in upcoming episodes?
#ChronicIllness #dynamicdisability #CrohnsDisease #PTSD #Anxiety #Agoraphobia #PanicDisorder #MentalHealth #MyalgicEncephalomyelitis #Fibromyalgia #OccipitalNeuralgia #chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #Endometriosis #mentalhealthadvocates #chronicillnessadvocates #Spoonie #spooniesupport #spoonielife #copingskills #copingstrategies #creativecopes #creativecopespodcast #creativecoping #Podcast

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When you feel like you and your health hold your loved ones back in life.

Every day we deal with a heap of grieve, shame and guilt.

We greatly appreciate our loved ones and partners. We truly do understand that our health isn't just hard for us to digest, process and accept but it is equally hard for them. They don't want to see their loved one in pain every day, struggling and going through treatment after treatment. It's emotionally heart breaking.

We feel like half the time we are a burden, as they press pause on their life to be there for us. This can be really hard on our self esteem and self worth as the guilt becomes overwhelming.

Yes we want support and are so thankful for all the support we have.

But we don't want our loved ones looking back with regret if they missed events, moments, adventures and opportunities to be there for us.

We want them to live as normal life as possible and enjoy life as they deserve too.

I know so many of our loved ones will tell us on a daily basis that our health is their top priority and they don't see it as a burden to them to look after, support and love us. This can sometimes make us feel guilty for feeling this way and questioning their support, but I think it's total natural to feel guilt and have that worry about their life in the back of our minds.

For me.. I've always said to friends and family LIVE, live double for me and you. Do everything you want to, can do and dream of doing.

Because it actually brings a smile to my face when I see them living and having fun. It weirdly gives me hope for life and that life can be beautiful and bring happiness along the journey.

Life really is rough and tough, it's not always kind and when you are battling a chronic or mental illness you do feel like you are living in a black hole! You can't see the end of the suffer or a light at the end of the tunnel. But it is SO important to keep hope in our hearts and have the love that we have around us to keep fighting but also love enables to see the glimmers of hope, it helps us feel a touch of happiness and love I truly do believe helps us break out of our comfort zones.

So what can we do to help relieve our guilt over our loved ones?

My advice would be to communicate.

Share how you are feeling in regards to the guilt about them not being able to live and you feeling like a burden.

But honest and open about you not wanting them to look back with regrets.

Air it all out and for sure they will gain a deeper understanding into where you are coming from and will be able to explain their side, which should but you at great ease.

But communication is really at the core.

Nobody ( although we would love to) can mind read.

As humans anyway we go through a range of emotions, thoughts and feelings minute by minute so that is why it's important to have regular chats and check in's.

The first chat you will have will always be the toughest but it does get easier as you build your confidence up and also feel more at ease. It can also help massively strengthen relationships too.

Have any of you felt guilt about your loved ones or partner not living out their life dreams because they are supporting you and your health journey?

#ChronicIllness #ChronicPain #LymeDisease #Relationships #MentalHealth #chronicillnesslife #Trauma #Communication #Support #healthsupport #chronicillnesssupport #spoonielife

5 reactions 2 comments

Would anyone watch YouTube videos

Hey everyone, I have been thinking about starting a YouTube channel, mainly to make videos about hacks and tips to living with a Chronic illnesses, but also thinking about doing some vlogging as well To show what it’s really like to be chronically I’ll , would anyone be interested in watching? Or have any video ideas? Would really like to start it but I am scared that no one will watch haha, any thoughts are welcome😊😊 #EhlersDanlosSyndrome #ArnoldChiariMalformation #Syringomyelia #Gastroparesis #ChronicVestibularMigraine #Dysautonomia #AutonomicDysfunction #Anxiety #Spoonie #Vlog #spoonielife #PelvicOrganProlapse #ChronicPain #Hope

5 reactions 8 comments