rare heart defect

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How do you describe your heart condition to people? #CongenitalHeartDefectDisease

Sometimes when you tell people who have no idea about your heart condition you get creative about ways to easily explain complex heart problems. I was born with Transposition Of the Great Arteries with a Mustard Correction still in place. So basically I tell people my heart works backwards or pumps my blood opposite then normal. It’s the easiest way to explain it to people a they kinda get what my heart condition is. So how do you explain you heart condition to people?
#Disability #HeartConditions #TranspositionOfTheGreatArteries #RareHeartDefect #HeartDefects #MyCondition

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It’s CHD Awareness Week

It’s CHD awareness week! The 7th through the 14th is congenital heart defect awareness week. CHD affects 1 in 100 babies. And is a lifelong condition without cure.
#adultchdwarriors #CongenitalHeartDefectDisease #Disability #RareHeartDefect #RareDisease #ChronicIllness #HeartConditions #HeartDefects

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What advice would you give a new parent with a child that has a CHD? #adultchdwarriors

As an adult with CHD sometimes we are the go to for advice from parents of newborns with CHD. We have been through surgeries and what advice would you give to parents or possibly if you could go back in time what advice would you give to yourself? #Disability #CongenitalHeartDefectDisease #HeartConditions #RareHeartDefect #HeartCondition