Heart Condition

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Shine A Light

To quote the band Banners, “Light will lead the way, will set you free.”

Today I just got a bit of light back in my life ✨

I met with my doctor and she has agreed to be primary care physician and to continue monitoring my condition. She was the same doctor who looked at my ECG that the practice manager I saw previously scoffed at, and said “you need to go to hospital—today”.

She won my heart just a little more when I told her the hospital was struggling to get me booked in for a CT scan so one of the doctors started suggesting my problems might be mental… she gave the biggest eye roll, they almost did a 360.

So, Doctor Sarah, this light is for you from this grateful patient, whose shook faith in humanity you have helped to begin restore.

May there be many more like you—our community sorely needs it ❤️‍🩹

#Hope #WhereHopeGrows #HeartConditions #HeartCondition #Arrhythmia #PatientAndDoctorExperiences #MightyMoment #MyalgicEncephalomyelitis #ChronicFatigue

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My mum kinda pissed me off...

So, I've been trying to lose weight for a long time, and I've slowly been losing it. I walk for 2-3 hours a week at a brisk pace, I've been really careful of what I eat and drink, too. A couple of weeks ago I had a review of my diabetes, and I was placed on a new medication that's going to help keep my blood sugars down. I'm still going to keep up with the diet and exercise, though. A nifty side effect of this drug (Dapagliflozin) is that it helps you lose weight, which my doctor thinks is a good idea.

Exercising can be difficult for me because I have Postural Orthostatic Tachycardia Syndrome - when I stand up, my blood pressure plummets so drastically I often faint, and to make up for the drop in blood pressure, my pulse skyrockets - often getting up to around 150-160bpm. It's a horrible condition and I truly hate how much it limits me.

I've managed to drop my weight down to 95kg (209lbs), and I'm really pleased. And my mother said... "I wish I had a heart like yours. MY weight would fall off too if my heart rate was constantly over 150bpm."

Like... Excuse me? I couldn't help but get really angry. I'm not even sure how I managed to hold my tongue. I would give ANYTHING to be healthy. To not have this condition so I could have more of a normal life, so I wouldn't have to live in fear of fainting in public. I'm not even sure that ONLY having tachycardia would make you lose weight... But if it does/did... I still wouldn't want it.

I'm just seriously pissed off. Would YOU be pissed in a family member said this to you? My friend says I'm overreacting. But, if anything, I feel like I'm underreacting.

#POTS #posturalorthostatictachycardia #Dysautonomia #chronicillnesswarrior #ChronicPain #Tachycardia #EhlersDanlos #EDS #NAFLD #Diabetes #BPD #Migraines #InterstitialCystitis #HeartCondition #WeightLoss #Exercise #ChronicFatigue

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This week’s Unique Bed

Circle up the wagons! We’re about to go nighty night!
Not sure how much rest I’d get in this bed, because I’d be too busy thinking about being out on the trails of the frontier looking for my piece of land! What do you guys think of it? #ChronicDepression #DistractMe #bed #ChronicIllness #MyalgicEncephalomyelitis #ChronicPain #BackPain #ChronicPain #Lupus #MultipleSclerosis #Disability #DiabeticNeuropathy #Neuropathy #TheMighty #Gastroparesis #BackPain #HeartCondition #Pain


Sorry I have been away!

Ugh #HeartCondition problems! My 13 year old is currently in the middle of a #flare up with his #pericarditis and my 8 year of had a bad #nosebleed Friday night so she is now on iron with the hope of not developing #Anemia ! the fun never stops around here!!! we are doing ok though as always we #JustKeepSwimming

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Got to see 2 of my kids dance costumes for the recital! With all the health issues and all the differences in our family sometimes it is just nice to do something fun!!! Can't wait until JUNE!!

#Parenting #HeartCondition #Anxiety


Got to see two of my kids costumes for their dance recital!! With all the health issues and all of the stress sometimes it is just have a moment to have fun!! Can't WAIT for June!!!

#Anxiety #PTSD #Parenting #HeartCondition #mom #Dance

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#AskMe : What health conditions (physical and mental) are often comorbid with depression?

You asked, an expert answered! 💡

🧠 Here’s what depression expert Dr. Jill had to say:

“In addition to bipolar disorder, the most common mental health conditions that accompany clinical depression are anxiety and alcohol and substance use disorders. Many people with other mental health conditions such as eating disorders, schizophrenia, and autistic spectrum disorders may also have depression.

In terms of physical health, there are many conditions that can affect the brain and increase risk of depression including heart disease, diabetes, and pain disorders. Whenever you have a chronic physical condition it is important to pay attention to your mental health as well.”

#BipolarDepression #BipolarDisorder #MentalHealth #Diabetes #HeartCondition #ChronicPain #Addiction #ChronicIllness #Depression #letstalkdepression #Schizophrenia #EatingDisorders

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Food and Nutrition: Heart-Healthy Foods

It's vital to keep your blood glucose levels within the desired range to avoid heart issues. Making heart-healthy food choices can help you do this.

A heart-healthy diet lowers your risk of developing heart disease due to a reduction of high blood pressure, cholesterol, triglycerides, and fasting blood sugar. These foods might also have high levels of antioxidants, which protect against inflammation and oxidative stress, which are factors contributing to heart disease.

Heart-healthy foods are:

🫀 low in sodium
🫀 low in cholesterol
🫀 high in fiber
🫀 low in saturated fats
🫀 free of trans fats
🫀 high in antioxidants, vitamins, and minerals

Examples of these foods include:

❤️ Leafy greens
❤️ Cold-water fish
❤️ Nuts
❤️ Olive oil
❤️ Oats and whole grains
❤️ Avocado
❤️ Non-starchy vegetables
❤️ Beans
❤️ Herbs and spices

It's recommended that you work with a registered dietitian or diabetes specialist on a custom diet based on your health goals.

American Heart Association
American Diabetes Association

#DiabetesType2 #Diabetes #DiabetesType1 #prediabetes #ChronicIllness #HeartConditions #HeartCondition #Lifestyle #WholeFoods #Food

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Talk About It Tuesday: Heart Health & Diabetes

This week, we’re talking about heart health and diabetes.

According to the National Institute of Diabetes & Digestive and Kidney Diseases (NIDDK), a person with diabetes is more likely to develop heart disease, and high blood pressure or high cholesterol are risk factors that increase their chances of having a heart attack or stroke.

Have you been diagnosed with heart issues in addition to your diabetes or prediabetes diagnosis?

Drop an emoji and share your condition (if you like) in the comments:

👍 - yes
👎- no

#DiabetesType2 #Diabetes #DiabetesType1 #prediabetes #HeartHealth #HeartConditions #HeartCondition #CardiovascularDisease

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World Heart Day #CardiovascularDisease

What is World Heart Day
September 29th is World Heart Day. World Heart Day was created by the World Heart Federation to educated people around the world that Cardiovascular disease, including heart disease and stroke, is the world’s number one cause of death. Cardiovascular disease claims 17.9 million lives each year.

3 ways to help keep your heart healthy
1. Reduce your salt intake - (This one I have to remind myself cause I love my salt) however sodium can lead to water retention in the body which can make the heart struggle to pump properly.
2. Stop smoking or drinking alcohol - Alcohol and smoking can cause damage to the heart
3. Go for a walk - 20 to 30 mins of moderate exercise a day can strengthen your heart muscles

#CongenitalHeartDefectDisease #AmericanHeartAssociation #HeartCondition #PulmonaryHypertension #adultchdwarriors #Disability #ChronicIllness