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The Health Conversation I Wish We Had More Often

There was a time when I believed that if someone looked healthy, they probably felt healthy too.

I thought medical struggles were usually visible. I thought people would talk openly about what they were going through. I thought that if someone needed help, they would simply ask for it.

The older I get, the more I realize how wrong I was.

Many of the hardest health battles happen quietly.

The coworker who always smiles may be waiting for test results.

The friend who stopped coming to social gatherings may be dealing with chronic pain.

The family member who avoids certain conversations may be carrying a diagnosis they are not ready to discuss.

One of the biggest lessons I have learned is that we know very little about the private challenges other people face.

Why Do So Many People Hide Health Struggles?

People often stay silent because they fear being judged.

They worry about hearing things like:

"You're too young to have health problems."

"You don't look sick."

"Just stay positive."

"You'll be fine."

Although these comments are usually meant to be comforting, they can make someone feel even more isolated.

Sometimes people do not need solutions.

They simply want someone to listen.

The Emotional Side of Healthcare

Healthcare is often discussed through numbers, reports, and diagnoses.

But there is another side that deserves attention.

Waiting for answers can be exhausting.

Living with uncertainty can affect relationships, work, and mental well-being.

Many people spend months researching symptoms, reading medical articles, and trying to understand what their bodies are telling them before they ever speak to a healthcare professional.

This emotional journey is rarely visible to others.

Why Asking Questions Matters

One thing I wish more people understood is that asking questions is an important part of taking care of your health.

Questions like:

What is happening to my body?

When should I seek medical advice?

What tests might help?

Are there different treatment options?

What lifestyle changes could improve my health?

can help people become active participants in their own care.

Reliable Information Can Reduce Fear

One of the most helpful things a person can do is look for trustworthy health information before making important decisions.

Learning about health and treatment options can help patients feel more prepared for conversations with healthcare professionals and make it easier to ask informed questions.

Education cannot solve every problem, but it can replace confusion with understanding.

We Should Talk About Health More Openly

Many people live with invisible illnesses, chronic conditions, or ongoing medical challenges that are not obvious to the outside world.

Creating a culture where people can ask questions without shame and seek help without fear benefits everyone.

Compassion should not depend on whether we can see another person's struggle.

What I Wish More People Knew

I wish people knew that strength does not always look the way we expect.

Sometimes strength is making another doctor's appointment.

Sometimes strength is asking for help.

Sometimes strength is admitting that you are scared.

And sometimes strength is simply getting through another day while carrying a burden that nobody else can see.

We may never fully understand what someone else is experiencing, but we can choose to respond with kindness instead of assumptions.

In a world where people often hide their struggles, that small act of compassion can make an enormous difference.

Website: www.aspirefertility.in

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Ahhhhhhhhhhh it arrived today!!!!!

When Pauley and I decided it was finally time to collar me I immediately ran to Etsy where I had a few days collars saved. The one I liked most was her pick. So I measured my neck and gave the number to the artist. She sent the collar which we got last week. It ended up being 5 inches too short. I was so upset. I didn't want to admit my error but Pauley decided to talk to her and it was agreed she was gonna send us a 5 inch extension. It worked out wonderful! It fits perfectly and looks wonderful. What do you think? I am a very happy puppy boy.
#MentalHealth #Relationships

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30 Days of DID: Day Two

QUESTION TWO – How do you experience #DissociativeIdentityDisorder ? Do you find your symptoms manifest more physically, emotionally, mentally, etc?

If you asked me fifteen years ago, this answer would have been very, very different.

Before, I felt crazy and out of control. There were too many me’s, and I was never the right one at the right time. My mind either too loud to hear myself think, or a howling, jumbled numbness.

Before, I heard voices. I saw silhouettes. Walls changed colors and the carpets breathed. I became immobilized with fear for no reason, paranoid and convinced I was going to die. I couldn’t sleep; I slept too much. I’d feel things, taste things, smell things; I’d choke on things that weren’t there.

Before, I struggled with eating disorders, impulsivity, and self harm. My relationships were unstable at best and toxic at worst. I would forget my schedule, my job, my address, my friends, my style, my self. I feared myself. I feared losing control. My goals changed. My name changed. The Universe changed. Nothing worked. Nothing fit. I didn’t fit.

Now, our daily memory is the strongest its ever been, and we’re no longer stuck in a permanent fog. Communication is easy; we can switch, compartmentalize, and contain at will, and can still function through what we cannot fully put away in the moment. Even our chronic anxiety seems to be on its way out the door.

Now, most of our distressing symptoms are gone. Flashbacks and dissociative phenomena don’t freak us out anymore because we understand what is happening and how to help.

Now, I’d say, most everything manifests somatically, in the body, or emotionally via passive influence. Occasionally mentally, but these days, unless faced with unavoidable life stress, unexpected triggers, or a flood of memory processing, we’re hardly symptomatic at all.

Except our handwriting. That’s still the worst.

QUESTION TWO-and-a-HALF – Who knows about your system? Who do you want to know? What [does it feel] like coming out as multiple?

Lighthouse is the one person who still works with and talks to Motley members directly on a regular basis. Nowadays, our DID only matters while on the therapist’s couch.

PeanutButter knows because we married him. It would have been impossible to have a serious relationship where our spouse didn’t know.

We used to want friends to know about us, but not anymore. Before I wised up and stopped telling people, reactions varied. From those in my personal life, I got a lot of “That explains so much!” and “I don’t doubt it one bit.” Unfortunately, it rarely ended well.

I think I’d be okay, maybe, with certain, select people knowing about our DID diagnosis – but not the details of the Motley. I’d be okay discussing DID as a concept using our experiences as examples, but nobody needs to know our inner names or how we function or who is around when.

Outsiders knowing that information feels violating, and it’s not always healthy for the other person(s) either. Plus, you can’t control how people react to it or any further spreading of it, so being choosy with disclosure is imperative.

Our blog is public, of course, but carefully and deliberately anonymous. Nobody in my real life needs to know, and I don’t need them to know. I am so much more than my DID, and while I identify as a multiple, being a multiple isn’t my identity.

***

30 Days of DID survey credits go to tumblr user "shihkas", and wordpress blogger "catalyticconvergence". Links can be found in the original post ("Snapshots into DID") on our website.

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The danger of self pity #Depression #Pain #Anxiety #Relationships #PTSD #Surgery #FamilyAndFriends #MentalHealth

If I have learnt one thing in my 65 years on this planet it’s this, you will never know what a day will bring.

Last night when I hopped into bed my heart started having intense palpitations like I have never experienced before. I put it down to the raft of pain meds I am on after major dental surgery last week.

I woke at 4am and as soon as I stood up the world started spinning and I crashed onto the floor. Unfortunately this woke my Wife and she was instantly concerned. I assured her I was ok and must have slipped. I tried getting up again and this time crashed down harder. She had the presence of mind to get my blood pressure machine and it registered 88 over 64. Normally my bp is about 130/90. I knew trying to get up again was futile so we called an ambulance.

I was devastated. Over the past few years there have been 10 surgeries my Wife has nursed me through and emotionally she is exhausted. Here we were another medical emergency.

She didn’t come in the ambulance with me. I assured her I understood and was fully supportive of her decision. Two years on if she hears the words “code blue” she freezes. I am ok with the words as I have no recollection of the incident.

Self pity started knocking on my door today. I sent it away. Yes, it’s a major disappointment and the CT scan of my brain won’t be reviewed until tomorrow as it’s a public holiday today.

Whatever happens I know, in Australia we have amazing medical care. It’s not cheap but it is extremely good. My family made sure someone was with me all day. Many people have no one.

I didn’t break a bone which is amazing considering my current poor bone density.

I thinks it’s critical we never try and intertwine depression and self pity together. Depression is not a choice. It’s a medical condition. It’s horrendous. It doesn’t discriminate.

Yet, in spite of what’s happening around me, God help me to see what is going right even though there are many things going wrong.

The photo is my youngest Granddaughter. She had the miseries one day and wanted everyone to know about it. As is her way, 5 minutes after the photo she found reasons to be grateful. May I always follow her great example.

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Surgery recovery #Depression #Surgery #Pain #FamilyAndFriends #Relationships #PTSD #MentalHealth

Hi everyone. Three days ago I went into hospital and had all my upper teeth removed and dental implants put in their place. This is a decision I have been putting off for a few years but the deterioration of my teeth left me without many options.

Practically this means only soft foods for the next 4-6 months. As you can see from the photo I look like a teddy bear at the moment. Since that photo black eyes and black cheeks have emerged. I am trying to focus on the end results. The swelling will retreat and the black eyes will heal. It’s the yucky in between season I hate. I am sure you can relate.

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30 Days of DID: Day One

Question One – When and how did you find out you have #DissociativeIdentityDisorder ?

Didn’t know definitively until 2013, but was seriously suspicious by 2006 or 2007. The potentiality was mentioned in passing a few times in the six-ish years prior, and there was plenty of “What, do you have multiple personalities or something?” throughout my life.

By 2010 or 2011 it was clear that whatever I was dealing with wasn’t what I’d been diagnosed with (read: everything except DID), but it took me until 2013 to seek a local specialist to find out for sure.

That specialist was Lighthouse, I was thirty-one years old, and the rest is history.

Question One-and-a-half: Describe your system. What kind of system, how big, anything you feel is a good introduction.

We are different now than when we first began, yet we are still the same.

We were polyfragmented into the thousands — with strong individual alters, and layers upon layers of fragments — but the numbers never mattered.

We used to work in teams we called clusters. Or bubbles. Or strings. Inside-facing and outside-facing. Hierarchies and relationships. Responsibilities and reactions. Specialized parts for specific tasks. Memories from different viewpoints.

Currently, our center has expanded, and we have consolidated and coalesced. We communicate easily, cooperate seamlessly, are collectively co-conscious, and can stay present with our most traumatized parts.

We present as one (“T.W.”) while embracing our multiplicity (“the Motley”) in all the various ways we’ve experienced it. We are distinct but not separate. We are a choir, a rain cloud, a flock of Gallimimus.

*** 30 Days of DID survey credits go to tumblr user "shihkas", and wordpress blogger "catalyticconvergence". Links can be found in the original post ("Snapshots into DID") on our website ***

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I'm new here!

Hi, my name is BreathlessBeagle47. I'm here because .I've been in a relationship for about three years, but he says he's insecure and that he only loves money, and his ego will boost when a girl approaches him, and he kind of gave signals that he'll accept her, but then he told me that I treat him like a servant, which I don't. I swear that I don't. I love him and will always adore him. He claims that all of this is a lie, but I genuinely love him. I'm pretty sure he just wants to get rid of me. I don't know what I should do now. I've planned my entire life around him; without him, I'm lost. Here's what I think. I can't bear the thought of leaving him; I have anxiety attacks, and my heart sinks. I don't know what to do.

#MightyTogether #Anxiety #Grief

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The Migraine Teacher Brain

Volume 1: The Migraine Teacher Brain

Dr. ChatGPT and I spent a couple days in intense conversations creating this visual of the Migraine Teacher Brain from my new memoir, How I Became a Cowgirl: One Woman's Journey with Rare Migraine Disease.

Yes, I know.

It is a lot to look at.

It is a lot to take in.

And it is a lot to process.

Well, that has been the reality of my life for almost 20 years as I live with—and teach with—this rare migraine disease.

My new memoir does not simply tell you about this disease. In 44 pages, you get to live inside my migraine brain. You get to experience the organized chaos of a migraine teacher brain because it is written in the second person. In that way, you, the reader, are also on the frontline in the battle with migraine. I write this memoir in broken English, not only to honor my Jamaican heritage, but also to give you the raw and realistic experience of how my migraine teacher brain works.

The truth is teaching with such a rare migraine disease has been both fulfilling and disheartening at the same time. As I reflect at the end of 25 years, I feel proud of what I have accomplished, even as my brain was in constant war with migraine.

I am grateful for the lives I touched, even if I don't remember all the names. Those yearbooks and self-made rosters have allowed my brain to navigate and maintain relationships on days when migraine takes over the brain and my memory is at its mercy.

Yet in those moments, migraines could not take away the wealth of knowledge I have gathered with each passing year. Somehow, my brain is able to build an impenetrable defense to safely secure what I need to teach.

As I reflect in my memoir:

But you still teach. It always confuse you that you forget everything but you don't forget the wealth of knowledge you possess.

Now everything has to be in its place. If it is not, then I become confused. I stutter sometimes while I teach, or I forget a word or two, and sometimes I get stuck on constant repeat. I am grateful for students' patience as I ask the same questions too many times.

I write everything down, and I have a daily to-do list. I spend a lot of time in constant conversation with myself—yes, I ask and answer—as I plan and revise lessons.

I have an old composition book and endless sticky notes with a variety of different colored pens to plan my lessons. Sometimes I talk through the lessons with Jean Luc, my medical alert dog. Over the past seven years, he has been my evaluator and silent critic.

There are days when this migraine does not give me a break.

There is no ceasefire. In the memoir I speak of when:

you write an email to say you working with a migraine but you teaching you life out same way for they don't know your high tolerance for pain ….or the seven months straight you teach with a migraine.

And sometimes, just for a split second, I wonder if someone thinks I am lying. But my brain stops me in my tracks. For one positive that this migraine brain has given me is "don't care."

I don't care what anyone thinks about me, simply because, as you can see, there is just no space left in my brain to do so.

Professional Development days are the most challenging. My migraine teacher brain is used to a daily schedule of teaching, and when that schedule changes to a full or half day of professional development, it creates a serious conflict that always ends in some form of migraine drama.

Over the years, I had to learn strategies to manage this migraine brain. I keep my grandmother's bush tea remedy close. It never fails to calm the brain when I need it most.

I am still learning to manage the stress that comes with disrespect, for I have no tolerance for that.

Thanks to my little brother, Andre, I learned to manage the stress that comes with my passion for student success and their choices:

"The choices are yours, the consequences are not."

That is the motto of my classroom.

Those green stickers are everywhere.

That is the redirect line.

I choose my battles because there is one that is constantly being fought in my brain.

When I did my first interview with Peter from P Literature, he asked me where I get the strength to show up every day.

I told him that is what I am expected to do.

I come from a family of educators.

Teaching is my bloodline.

I am also a Jamaican woman raised by strong Jamaican women. My grandmother was my first teacher, and she always showed up and showed out no matter what.

So that is what I do.

That is what this migraine teacher brain is trained to do.

Show up.

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