The Migraine Experience

I love my wife and my medical provider team (I have a lot of intertwining medical issues), and I appreciate the support that i get for my disability. But it frustrates me when I make a statement about having a migraine and they refer to it as a headache.

Especially at home, I’ll mention the brain fog, the difficulty putting the right words together in communication, or any of the multiple other things that I deal with when I’m having a migraine and whomever I’m talking with will refer to my “headache” even if I’ve not mentioned head pain.

I get it, if you don’t live with migraine symptoms, you’re not going to have a complete understanding of what all it includes, but if you have been exposed to me and my condition for years, you should have picked up that it is more than head pain.

Especially if you’re a migraine specialist.

Day three of migraine. I’m trying everything in my toolkit. I’ve had migraines since I was a little kid. Getting my first Botox treatment in about two weeks!

I just saw a the headache specialist in Vancouver. Bc I'm on Day 489 of a chronic migraine that has not responded to any treatments, I get to go to the Mayo Clinic in Scottsdale, Arizona. BC Medical Services Plan will pay for it. We just have to pay travel expenses which are tax deductible!
I'm so excited!😎 #ChronicMigraineSyndrome #Migraine #chronicmigraine #InvisibleIllness #Disability #MayoClinic