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    What a #Migraine looks like after ten months.

    Ten months with a migraine this week. I've had 97 injections, three days of home infusions, five rescue medications, three rounds of steroids, three diagnostic imaging appts, five pharmacies, three specialists, and two misdiagnoses.

    #ChronicPain #ChronicIllness #chronicmigraine #spoonie #spoontheory


    How do you deal with your pain throughout the day when you realize you’ve been gritting your teeth, tensing up, or even holding your breath?

    I’ve noticed during the day when I’m at work that I find myself gritting my teeth due to my pain level. I takw my pain meds but sometimes it doesn’t seem to help. Do you have any tips?(I wear a night guard when I sleep.I don’t know if they make something like that for daytime use.) #RheumatoidArthritis #ComplexRegionalPainSyndrome #Fibromyalgia #Lupus #chronicmigraine #RaynaudsPhenomenon


    Under Informed

    When I was diagnosed with Intercranial Hypertension my Neurologist told me I had Pseudotumor Cerebi, I asked him what it was and he explained, I asked him the risks and he didn't tell me anything except I need to lose weight. I went home and looked it up on my one and found it on the government medical library website, thank God I did. We planned on flying up to see my baby niece and in laws this year, little did I know the risks in flying with Intercranial Hypertension were. Once I saw that I decided I'm never flying again. I've had four spinal taps in the last year and 2 of them failed and caused me severe pain and the wort after effects. Is there anything that alleviates pressure besides a spinal tap? I'm afraid to get one again. I've lost 30 lbs already and still losing but still suffering. Stay strong everyone 💪🏽
    #wearethemighty #ChronicPain
    #ChronicIllness #RareDisease #IIH #iihwarrior #Migraine #Vertigo #VestibularMigraine #chronicmigraine #IntercranialHypertension #CheckInWithMe #checkupwithme #StayStrong #Pain #chronic #neurology


    My worse symptom #

    Personal rant. Of all the symptoms of my illnesses I really really hate the fatigue the most. There is so much housework I need to do like straitening cupboards, drawers and closets and I can't do it!!! My house isn't how I want it to be and I can't make it that way.
    #hasimotos #Fibromyalgia #chronicmigraine


    Just One of Those Days

    Have you ever had a day where you just want to throw your hands in the air and just say, “I’m done!” However, you know throwing your arms in the air aren’t possible in the first place because you hurt so very much. Also, you have way too many responsibilities as a parent and spouse to do just throw in the towel. I suffer from Rheumtoid Arthritis, Fibromyalgia, CRPS, Scoliosis, and Lupus and am currently in a massive flare. I’m exhausted and in pain, but I can’t rest or get comfortable. I work full time as a Special Education Teacher and have to walk from one side of the building to the other all day long and use every bit of my possible energy at work so when I get home I have no spoons/energy left when I get home. It’s also my daughter’s senior year in high school and she’s currently in the middle of softball with playoffs about to start.
    I am not scheduled for an infusion until November and haven’t had one in forever due to going into liver failure and being diagnosed with Autoimmune Hepatitis over the summer. I swannee my immune system is truly trying to kill me! I’m so ready to feel better but don’t when that will be. Today is just one of those days when I feel like and realize this is possibly what the remainder of my life and body is going to feel like. Yuck! The bright spots in all of this is I have an amazing support system in my family including my husband, parents, in-laws, children, and friends. I also have my faith in Jesus and that He is watching over me and helping me through it all.
    I apologize for my rambling. I just know only people who experience this truly understand the frustration and sadness of living in chronic pain.
    Thank you for reading this far.
    #ChronicPain #RheumatoidArthritis #ComplexRegionalPainSyndrome #Fibromyalgia #chronicmigraine #RaynaudsPhenomenon #AutoimmuneDisease #AutoimmuneHepatitis #Spoonie #exhausted


    Has anyone tried LDN? #Fibromyalgia #Depression #chronicmigraine #jointhypermobility #IBS

    Hi, you all! A couple of months ago my PA who I see for fibromyalgia pain, pain from joint hypermobility, and chronic migraines put me on low dose naltrexone (LDN). This is supposed to work over time to increase the body’s opiate receptors and also increase the body’s opiate production. I’m starting to feel a bit more energetic and am keeping my fingers crossed. It can be helpful also for depression and IBS (also issues for me).

    Has anyone had any experience with
    this medication? I’m curious to hear!



    If you sell stuff online you can relate. I take a ton of medications for my numerous mental and physical health problems. Today I managed to do 4 listings on Poshmark! I’ve been putting it off forever. Go me!
    #BipolarDisorder #GeneralizedAnxietyDisorder #PTSD #ADHD #chronicmigraine #IrritableBowelSyndromeIBS


    Chronic Illness Is Great, Right?

    Isn’t it great when your friends pull away from you because they “can’t deal with” your medical issues and disabilities? Like WTF. I don’t want to deal with it either but I’m forced too. I don’t have a choice. I’m stuck with it and you’re pulling away. #MultipleSclerosis #Epilepsy #chronicmigraine


    Pain and IBS has me up and racing

    I’m up, I actually laid down about 7:30 (since being up since 3:30 yesterday am). I have multiple autoimmune and bipolar. Plus IBS has me racing to the potty. I can’t get comfortable. I’m maxed out on rescue meds. I just want sleep! #BipolarDisorder #IrritableBowelSyndromeIBS #chronicmigraine #Lupus #hashimotos

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    Just another new introspective piece

    Finding that painting again is really helping me cope with my chronic pain :) #ChronicPain #chronicmigraine #BackPain #neckpain #SpinalStenosis #ArtTherapy #Art #Depression