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Mayo Clinic
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I have my first trip to Mayo Clinic coming up, it feels like we have been everywhere so very hopeful for answers and solutions, anyone been? #MayoClinic


Chronic Migraine #TheMigraineExperience

I just saw a the headache specialist in Vancouver. Bc I'm on Day 489 of a chronic migraine that has not responded to any treatments, I get to go to the Mayo Clinic in Scottsdale, Arizona. BC Medical Services Plan will pay for it. We just have to pay travel expenses which are tax deductible!
I'm so excited!😎 #ChronicMigraineSyndrome #Migraine #chronicmigraine #InvisibleIllness #Disability #MayoClinic

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Riding solo #Fibromyalgia #ChronicIllness #ChronicFatigueSyndromeampME #Centrailzedsensitizationsyndrome #MayoClinic #exhausted

I’m exhausted for no reason, but I am here. I came alone today on purpose. Kind of needed to prove I could. I took a Lyft and momentarily stumbled getting out, but now I’m eating.
But I shocked myself at a thought I had. Usually I come here and am so grateful and say 10 times “damn I’m lucky.”
Today I saw a beautiful older nicely dressed lady on a scooter. She was killing those corners.
For a brief moment it was like “shit this is my future.” Not in a sad oh woe is me way. Not in a defeating way, but in an “ok if that’s what happens, that’s what happens, “ kind of way.
I am often told, “ you will be fine.”
In response to that i ask “well what if I’m not.” I have to be as prepared as possible. Not just for me but for everyone in my life.
Chronic illness doesn’t go away, you just learn to accept and manage.
Adapt and Overcome!
Semper Gumby!
PS I am more than happy to answer questions privately. Just send me a PM!


On this Friday that past. I had that nauseating reflux feeling.. Soon after followed extreme pain. I felt as if I was going to die
Was rushed to hospital and had tests Done but no proper advice. Dr's seems to be puzzled on my condition... August last year was when I had my op and I have been better. But no proper medical advice and direction.. Mayo clinic in south Africa. Is my hope in finding results. And also helping others in sa. Mals is still quite non existent here... Anybody experiecing these pains too post op..?. To be honest i feel so down and everytime I get body takes a knock where I am knocked out for a few days... Any tips. Advice and support will be appreciated #MayoClinic #MALS #southafrica


Looking into the Mayo Clinic for chronic #BackPain and #Endometriosis. Would love to hear what you’d wish you knew before going to #MayoClinic 👍


mayo clinic-ehlers danlos syndrome and POTS #MayoClinic #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome

hey so im 15 and i’m going to the mayo clinic for EDS and POTS soon and i’m nervous. does anyone know what to expect? i’m going to the one in MN by the way.