advocateformigraine

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#Depression #passivelysuicidal #Thinking

I’m in the process of (hopefully) getting SSDI. I just found out today that it might take up to a year for them to schedule a court hearing date.
I am physically and mentally #exhausted from paperwork, doctors, and fighting to be my own #advocateformigraine
Working part time is difficult enough in daily pain, not to mention my psych diagnoses. I feel like a burden to my family. Why am I still here?

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What Migraine Feels Like #MightyPoets #MySymptoms

What Migraine feels like
Migraine invades and initiates take over. ‬
brings it's friends nausea & vomit
brings another friend blurred vision.
says loss of appetite no eating for you
no being social no sound to enter my ears
demands keep dark no light to hit me
decides I'll explode in your head causing intense pain
makes heart race really fast
decides to turn up temperature
decides to bring the cold
brings along the body sweats
demands medication can't keep down
brings many debilitating symptoms along for a ride
gets it's rhythm pulsating pain
a neurologic disease no cure
wants to spin get dizzy
attacks all over the body
fights Allodynia where everything hurts to the touch
demands Eye mask total darkness
calls on jaw and neck
gives invisible kick causing fainting
#Migraine #mymigrainesymptoms #migrainedisease #migraineawareness #invisibledisabilities #neurologicaldiseases

Many faces of the world live with migraine and I am but 1 of those faces.
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I have fought with Migraines over 31 years
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Grateful for researchers currently trying to develop a cure I know it’s hard work keep it up you clever people it WILL happen one day.
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Really Life changing it has affected every aspect from home life,family,schooling and Mental Health.
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Are quite debilitating and children can get them too I was one of them at age 7
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I can’t wait for the day a cure is found not just for me but for the whole community.
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Never stopping my Advocacy and raising Awareness for all who live with .
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Every Researcher,caregiver and medical professional aswell as people living with must support each other like one big team like a big family(we may be a way off from that happening but hey a girl can hope right.)
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Symptoms have been many including but not limited to Phonophobia,Photophobia,osmophobia,Fever,nausea,vomiting,Aura,Lethargy,Virtigo,Parasthesia,Brainfog,Blurred Vision,Fatigue,Dizziness,slurred Speech,Aphasia,Loss of appetite,Hyperosmia,muscle weakness,pulsating body pain,hammering head pain,facial swelling,stiff neck,paleness,jaw pain,increased BP.
........................................................... #advocateformigraine #migraineuers #moveagainstmigraine #MySymptoms #MightyPoets

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