Fainting

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Panic attacks

Ive had panic attacks on and off for 15 years. But this past year, they have been unbareable. Ive had hypnotherapy which helped initially, spoken to my gp and now im waiting for an appointment with the mental health team.
These panic attacks are genuinely ruining my life. They started when I had a fainting episode in the car last october and now the car is a massive trigger for me. Im away for a few days with family and the entire 3 hour car journey was me fighting off a panic attack and it was exhausting. The only way I managed the trip was deep breathing the entire time, listening to taylor swift and holding a handheld fan in front of my face (I wasnt driving, dont worry). They’ve even started waking me up in the middle of the night and thats terrible.
Does anyone else have the same problem and what helps you? Its coming to a point where I dont even want to leave the house anymore. Im at my breaking point.

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Should I get a button feeding tube?

Ok, so this will be a bit long, but if you have a "button" feeding tube please read and chime in, I really need the advice.

So I just got a PEG tube installed back in the spring of this year (2024). I was sadly not given any information prior to my procedure, and very little after, about anything that was going to happen to me. I was certainly not told that there were different types of feeding tubes or given a choice between them. I knew I needed a feeding tube (I was desperate I had been suffering for so long), I knew I was going to have something placed in my body and that it would be hanging out of my body.
I only found out exactly what it would be like, AFTER it had happened. My doctor left over a foot of tubing hanging out of me and very little instructions on how to care for it. The mental toll it took on me was terrible. I had mental breakdowns nearly every night for a week straight, they were so bad I could feel my sanity threatening to break. At a point I figured out that if the tube were shorter it could help some with the mental and physical problems. As I have a fainting disorder and sometimes have to be carried (while completely limp), and the danger of me pulling on the cord was great, and can't tape the tube to myself because I'm allergic to adhesives. (I tried a "belt" but it caused massive discomfort)
Through my own research I found out about a "button". I made a list of all the reasons why getting that instead of the massive tube would help me, not least of all being my sanity.
However, when I asked my doctor he gave me three reasons why he didn't want to do it.
1: they're expensive
2: they're hard to get a hold of
3: because of my size (110lbs) he claimed that even a pound change in my weight would cause the button to be too loose and fall out or too tight.
So I caved to what he said and settled for getting the tube shortened significantly. But there is still a good 6" of tube hanging out of my body.
Months after, I'm still seeing the problems with the tube. It's more to clean and maintain. The threat of tugging on it is still present, though reduced, due to handling small children daily and again my fainting disorder, and just plain sleeping. And it significantly impacts my self confidence. Though most people don't notice, I still have to see it everyday, I still have to adjust it everytime I get changed or use the restroom and do my best to tuck it away in my pants. I'm doing much better mentally than I was but I got a temporary heart monitor for a few days and all the panic and problems from before immediately flooded back, I felt more machine than woman.

All of this to ask, is the "button" worth it? I understand that everything will have it's pros and cons, but are the "buttons" more trouble than they're worth? Or do the benefits outweighs the problems? Given my situation, does it sound like it would be better? I really hope I can get it, mainly for my self confidence, but I want to do my research before demanding it of my doctor or finding another doctor that will do it. Thank you so much for your help!

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This post is for everyone on here!

I don’t know what you are going through but I truly do wish you all a life full of joy, peace, and happiness at all times. May life get better and better for you each day in every way! I hope and pray only positivity comes your way, nothing negative that you don’t want. You deserve to be happy! May you all be well.

#CheckInWithMe #MentalHealth #Disability #Anxiety #ChronicIllness #BPD #BorderlinePersonalityDisorder #Bipolar1 #Bipolar2 #AnorexiaNervosa #Trauma #PTSD #Selfharm #SuicidalThoughts #BipolarDisorder #CheerMeOn #MajorDepressiveDisorder #MightyTogether #SchizoaffectiveDisorder #Schizophrenia #GeneralizedAnxietyDisorder #ADHD #Addiction #SocialAnxiety #Stroke #Autism #AutismSpectrumDisorder #Cancer #SeizureDisorder #Scoliosis #SensoryProcessingDisorder #ComplexPosttraumaticStressDisorder #ThyroidCancer #SocialAnxietyDisorder #SleepApnea #Epilepsy #EatingDisorders #EatingDisorder #SeparationAnxiety #ChronicFatigueSyndrome #ChronicFatigue #Fainting #PanicDisorder #PanicAttack #PanicAttacks #ParkinsonsDisease #ChildLoss #ChronicDailyHeadache #Fibromyalgia #FoodAllergies #FunctionalNeurologicalDisorder #CysticFibrosis #Migraine #MightyPoets #MedicationInducedMovementDisorders #MaleReproductiveCancers #MyCondition #MoreDiseases #MoodDisorders #Misophonia #Mania #MyCondition

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#FaintingSpells #MS

Good evening, I’m curious to know if anyone on this site suffers from chronic autoimmune disease of multiple sclerosis if so has anyone ever experienced prolonged fainting spells they come on as clustered episodes and last for anywhere from a couple days to a week or longer sometimes and they have become longer and duration of time…

Looking for answers
🙏 prayers hope and new friends

Thank you all
Jessica ❤️

The DR’s ,
Neurologists, cardiologist,
Ect..

We are all so confused
#MultipleSclerosis

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Nightmare Shower Update

The past few showers have all been the same irritating experience;

• Nausea
• Dizziness
• Faintness
• Shaking
• Tremors
• Difficulty breathing / Winded
• Fast heartbeat rate
• Exhaustion

I have to sit down so much, which I hate because not only do I not want to have to sit down every minute, I have to sit on the shower floor as there is nowhere to sit which makes me feel uncomfortable.

After a shower I desperately need to rest as I can’t stand for even for a minute when I finish, it’s like a workout for my chronically ill body.

I can’t really stand for long in general and the shower makes it so much worse.

I did try to change the temperature of the water to something cooler but it didn’t change much.

For all of you that suggested a shower stool, I am looking into it now and I can see why it would help me significantly as I wouldn’t dread showering as much.

I know some people were mentioning PoTS, I have been looking into that as well, I’m not diagnosed though I do have all the symptoms except for fainting. But I do get really close to fainting.

I did finally talk to a doctor about it, I didn’t mention PoTS as a possibility because I’m just too shy to be that direct.

But I will see a doctor soon.🦋

#ChronicIllness #Undiagnosed

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Post Shower Nightmare

Firstly I’m very thankful for all the comments and suggestions and want to reply to them but I just don’t have any energy at the moment which I apologize for.

But I need some advice.

I took a shower and everything fell apart;

I got so lightheaded and dizzy I almost passed out as I felt so winded I was breathing heavily, shakily, and quickly because I felt like I couldn’t get any air.

I had to sit down in the shower to avoid fainting.

My heartbeat was likely high as it felt so while in the shower, when I got to my room it was over 113bpm.

I was shaking so much and still am as my hands are trembling a lot.

I was so nauseous I felt like throwing up and am still nauseous and experiencing the same thing.

I’m also exhausted feeling weak as I had to get right back on my bed,

I admit that I do feel like crying at the moment from how miserable I feel and how I’m going to keep experiencing this after I shower.

I don’t know how to tell people about this, I’m afraid of being seen as dramatic or not being believed.

My hands are still shaking like a leaf.

Any advice is much appreciated.

#CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #ChronicPain #MentalHealth #MajorDepressiveDisorder #GeneralizedAnxietyDisorder

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My PTSD story.

The symptoms I experienced along my 50 year PTSD journey (so far):

- Childhood bed wetting

- Heart palpitations and arrhythmia

- Constant anxiety and fear

- Inability to connect

- Visual flashbacks (3 distinct images)

- Panic attacks

- Dizzyness and fainting spells

- Vision migraines

- Light sensitivity

- Sound sensitivity

- Emotional dis-regulation

- Dissociation

- Sleep paralysis

- Sleep walking

- Nightmares and violent dreams

- Night terrors and animated sleep

- Obstructive sleep apnea (10 years)

- Vagal freezes/shutdowns while driving

- Nighttime body spasms

- 10 to 30 daily neurogenic tremors - Been shaking for 18 months now...

- Leg Length Discrepancy and right hip pain caused by Psoas constriction

- Chronic upper back and neck pain due to Leg Length Discrepancy

- Temporary loss of function in right arm

- Every IBS symptom in the book

- A sudden loss of 25KG (55lb) over 3 months

- Sudden hair loss

- A loss of confidence in my ability to perform simple tasks

When you write it all down it looks pretty obvious right?

But when it's all you have ever known then you adapt and get on with life... Until your body decides it has had enough of compensating.

Just posting this in the hope it helps someone else identify this insidious condition.#PTSD

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Hello!

I haven’t posted here before. I have an autoimmune condition that causes my cerebral arteries to constrict abnormally, causing low blood flow to the brain, cognitive problems, and orthostatic intolerance. It was described in 2016 independently by two research groups, one in the US and one in South Kores. The details of the antibodies are unknown, and I doubt they’ll be discoveed in my lifetime unless antibody testing suddenly becomes much cheaper and better.

I am still awaiting testing (Doppler ultrasound), but patients with this condition have a 20% average reduction in blood flow. You faint at a 40% reduction, so you could say I’ve been “half way to fainting” every day for the last 20 years.

It’s called orthostatic cerebral hypoperfusion syndrome (OCHOS).

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A Journey Round my Skull by Frigyes Karinthy, a review

This is like a detective story, where the author follows the bread crumbs, leading up to the ultimate discovery of a brain tumour. I too follow such clues in my own life as I try to make sense of myself and the sometimes puzzling world around me.

The symptoms included a rumbling sound in his ears, which anger or irritability seemed to trigger and he interpreted as being a train in the local vicinity; more likely though it seems it could be caused by blood pressure, which I sometimes get, with ear canals blocked with wax. In other words this is not so much an hallucination as he believes but internal, bodily phenomena. The problem is interpretation over identification (what something reminds you of as opposed to discovering what it actually is - memory and imagination as opposed to present perception).

One of the interesting things this book discloses is the apparent distance and direction a sound is coming from. What we may mistake as being loud and far away, could in fact be much closer than we imagine, internal even. The book is therefore asking, can we mistake inside sensations on all sensory levels, for external ones and if so, what are these clues trying to tell me?

Other symptoms included giddiness, connected to fainting fits, nausea followed by vomiting, leaning to one side and as the illness progressed, eyesight and handwriting deterioration. He also suffered from headaches, which eventually became focused on the back of his head. One subtle symptom that seemed to creep up on him was a gradual loss of taste, like Covid patients nowadays but with no loss of smell. After the operation, he regained this lost sensation.

Apart from all this, he starts getting unconscious clues to the fact that something serious is going on in his life, through dream symbolism or even external events drawing his attention to the same thing (films on the subject, a dying patient in a mental ward etc). By monitoring his life, he starts to build up a picture of what is really going on, with his illness and that it is indeed an illness. Something out of the ordinary was happening internally, just as it could in the outside world, disturbing the peaceful routine of existence but the question was, what? Like paranoia from chronic insomnia, you know something is killing you but you don't realise what it is.

I for instance have two common dream themes, one which is needing a toilet but not being able to find one, which wakes me up as a symbolic prompt, to get out of bed and urinate (being a seventy year old male, this is par for the course). The other repeat pattern is finding myself at university or on the outskirts of one, which is because I am continually seeking knowledge and insight to the human condition or indeed anything. Like Einstein I have no special talents, I am just passionately curious. I did in fact live in Cambridge but never studied there or indeed at any university.

Another thing this book discloses is how previous knowledge is built upon and refined through experience, so that over time human awareness, human science progresses as more details about reality are discovered. In this way, the darkness of ignorance is pushed further away by the light of truth, highlighting the previous errors of thought, buried in history. He also mentions the tempo of impressions we all have for measuring time, citing HG Wells Time Machine: we live in the present but measure time as change, which Walter Pittman of Gettysburg College also points out 'What if all truth is just an experience of consciousness?'

In chapter thirteen, we hear how a young, enthusiastic surgeon wanted to ride to his rescue, trampling over him in his certainty. Instead through his own knowledge of surgical procedures and their outcomes, he was able to save himself from this well meaning interference. This lack of knowledge by the young man then could have killed him (see Dunning - Kruger effect and overconfidence): apparently the body collects poisons in cysts and by cutting into them, you release them back into the patient, killing them.

When the author is in a clownish, entertainer mode (dispersed mental state), he allows his terse observations to be dismissed by the opinions of others - in other words social popularity overrides personal awareness (experience) of the truth.

This is Eastern Europe, sounding like the eighteen seventies, not the nineteen thirties. The narrative is in some ways like the ramblings of a senile old man until you realise that this is the crumbling remains of the Austro-Hungarian empire, pre-world war two. It may remind you of a Pirandello play or Alice down the rabbit hole, in its confused interplay of ideas or the insane babblings of the Mad Hatter's tea party. More probably though the slightly sinister feel to the story, may remind you of some Kafkaesque nightmare as in The Trial, through its subtle paranoia sitting in the background but maybe that's the disease at work and not the society of the time.

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Hello

Hi, I'm elana but people call me End. I was recently diagnosed with a fainting disorder and I've been losing people nonstop since my first episode. I'm a junior in college, and my support system is pretty much non existent, which is why i got on this app. I'd like to share about my issues and find a since of community as people here seem to understand what im going through. Its nice

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