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Life Changes When You Start Finding Your People

For the first time in a very long time, I am starting to understand something important:

Life changes when you start finding your people.

Not the people you perform for. Not the people you constantly edit yourself around. Not the people who love you conditionally, as long as you stay quiet enough, calm enough, serious enough, small enough.

I mean the people who see the real you and don’t immediately reach for the dimmer switch.

Recently, I went hiking with someone I had just met. We spent the day chasing waterfalls, walking trails, talking, laughing, climbing over rocks, and admiring the kind of beauty that makes you feel tiny in the best possible way.

A few days later, while we were talking, I made a comment about how my ADHD medication had probably worn off during our hike.

If you have ADHD, you probably know the feeling. My volume slowly rises without me realizing it. I become more animated, more expressive, more visibly excited about everything around me.

For most of my life, that realization would have filled me with shame.

Because growing up, and honestly even as an adult, I was constantly told to tone it down.

Be quieter. Act more serious. Stop talking so much. Calm down. Don’t say weird things. Don’t get too excited. Don’t embarrass yourself. Don’t be “too much.”

When you hear those messages long enough, especially as someone with ADHD, you start learning how to perform instead of simply existing.

You learn how to monitor your voice. Your body. Your facial expressions. Your enthusiasm. Your joy.

You become a social chameleon without even realizing it.

People talk a lot about “masking” in neurodivergent communities, but before I ever knew that word, I used to describe myself as someone who automatically adapted to whoever I was around. I didn’t even know I was doing it. It became survival. I learned how to edit myself in real time to make other people more comfortable.

So when I mentioned my medication wearing off during our adventure, I jokingly said that they probably noticed the difference.

And they responded so casually, so kindly, so naturally: “All I noticed was your love for waterfalls.”

I don’t think they realized how deeply that sentence hit me.

Because they didn’t describe me as annoying. Or loud. Or too hyper. Or too intense.

They saw my joy.

And maybe that sounds small to some people, but for me, it felt healing.

For one moment, I didn’t feel like someone people needed in smaller doses.

I felt safe. I felt unmasked. I felt accepted without needing to perform first.

That’s what finding your people starts to feel like.

I think many neurodivergent people spend years believing we are fundamentally “wrong,” when in reality, we may have simply been surrounded by people who only knew how to appreciate quieter streams.

But some of us were never streams.

Some of us were waterfalls.

Big feelings. Big excitement. Big curiosity. Big wonder. Big love for the things that make us feel alive.

And yes, waterfalls can be loud. They can take up space. They can overwhelm people who prefer stillness and control.

But they can also be breathtaking.

Lately, I’ve been trying to find my people by joining hiking groups and putting myself out into the world more. And honestly? It’s scary. When you’ve spent years masking, being fully yourself can feel incredibly vulnerable.

But little by little, I’m discovering something hopeful: There are people out there who do not want you smaller.

There are people who will see your enthusiasm as passion. Your intensity as sincerity. Your excitement as joy. Your differences as humanity.

People who will not make you feel like a problem to solve.

And if you are someone who still feels alone, who still feels misunderstood, who still feels like you have to constantly shrink yourself to be accepted, I want you to know this:

Your people exist.

Sometimes finding them happens slowly. Sometimes it happens on hiking trails. Sometimes it happens through hobbies, support groups, online communities, volunteering, classes, art, books, gaming, music, or shared interests.

But life really does begin changing when you stop asking, “How do I make myself easier to digest?” and start asking, “Where are the people who will let me flow naturally?”

Because waterfalls were never meant to apologize for making noise.

#ADHD #neurodivergent #audhd #unmasking #MentalHealth #latediagnosedadhd #findingyourpeople #belonging #Healing #Selfacceptance #traumahealing #invisibledisabilities #naturehealing #waterfalls #vulnerability #Hope

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I'm new here!

Hi Mighties!

I’m Lauren (aka the Phoenix Rising) 💫

I’m a filmmaker and advocate, currently working on a documentary called Fall of the Phoenix—a magical realism journey through brain injury, healing, and reclaiming identity. It started with my sister’s concussion, but the deeper I dug, the more I realized I had my own history of undiagnosed TBIs. This film has become my way of understanding, healing, and giving voice to a community that’s often invisible.

I’m here to connect with others navigating brain injury, mental health, trauma, or just passionate about storytelling as a tool for change. If any of that resonates with you, I’d love to connect. 💛

You can learn more at fallofthephoenix.com or watch the teaser vimeo.com/1090834674!

Has anyone here used creativity to process or make sense of their #fallofthephoenix health journey?

#TraumaticBrainInjury #MentalHealth #ChronicIllness #invisibledisabilities #Documentary ##invisibledisabilities

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Disappointment with PayPal - Is Their System Failing Disabled Users in Disputes?

Hello everyone,

I want to share a very disappointing experience with PayPal and see if any of you have encountered similar issues.

On March 7, 2024, I bought a graphics card on Rakuten. After the 14-day withdrawal period, I realized it was defective. I tried to contact the seller several times, but I never received a response. Rakuten then informed me that the deadline for filing a claim had passed, so they could no longer do anything for me. Thinking that PayPal could help me with their purchase protection service, I filed a dispute.

On April 18, 2024, PayPal offered me a refund on the condition that I return the item. Unfortunately, being very busy with my work, especially due to the Olympic Games, I did not see this message in time. And there, surprise: the case was closed without me being able to intervene. What shocks me is that PayPal, which never hesitates to send notifications for a failed payment (via SMS, notifications in the app, etc.), only sent me one email for such an important dispute. If you miss this email, it’s over, no possibility to reopen the case. Frankly, it makes me wonder if this isn't a way to save money on refunds for disputes. It's outrageous!

What makes the situation even more difficult is that access to the dispute manager is only possible through the web browser. The PayPal Android app, on the other hand, does not contain either the dispute manager or messaging. So you really must not miss that one email because if you rely on the app to keep you informed, you're left completely in the dark.

What worries me even more is how this system seems to neglect people who, like me, have specific difficulties. I suffer from ADHD, which complicates my daily management of information. I really need clear and repeated notifications, but it seems that PayPal does not take these realities into account. They prefer to send endless reminders for a slight payment delay, but for an important dispute? Nothing, except for a simple email. And what about people who are not comfortable with technology? They must feel completely abandoned by this system.

Following this incident, I contacted PayPal again in August. They offered me another option on August 20, but once again, I didn't discover the email until August 29, after the offer had expired on the 28th. Between two other emails regarding a payment in installments, this message went unnoticed. I called PayPal again to try to find a solution, but I doubt they will make any further gestures this time.

I'm seriously considering changing platforms. Alternatives like Stripe, Square, Payoneer, Venmo, Google Pay, Apple Pay, or Skrill seem to offer better tracking and user protection. Does anyone here have experience with these platforms?

I've been a PayPal customer since 2010, and until now, I've always been satisfied. But now, I'm really disappointed and angry. This situation is unacceptable to me, and I would like to know if others have any advice or feedback on alternative solutions.

Thank you in advance for your responses.

#ADHD #disabilityawareness #MentalHealth #ChronicIllness #Accessibility #Neurodiversity #invisibledisabilities #Advocacy #Paypal #ConsumerRights

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The Ways Judy Heumann Impacted the Disability Rights Movement

• "Judy Heumann, called the "mother of disability rights" passed away at the age of 75 onMarch 4th. Heumann famously said
"I want to see feisty disabled people change the world."
• "Judy was the first teacher who used a wheelchair in New York City.
Judy fought for the rights of disabled school teacher, suing the local school board of education. This is a huge step not only for public school teachers but for all professions everywhere. Disabled people deserve to be in every occupation in every level of leadership."
• "Judy changed the landscape for disability & employment laws.
Judy was the first teacher who used a wheelchair in New York City. Judy sued the local school board of education when they didn't allow her to teach in her chair.
This is a huge step not only for public school teachers but for all professions everywhere. Disabled people deserve to be in every occupation in every level of leadership. Judy set a precedent.”
• “Judy worked on a federal level to make sure disabled people had equal benefits and opportunities at work.
Judy organized a 10-city protest to encourage President Nixon to sign the Rehabilitation Act (Section 504). This act ensures that individuals with disabilities will have equal opportunities and benefits in the workplace.”
• “Judy revolutionized equal access to education. Judy helped develop legislation that became the Individuals with Disabilities Education Act (IDEA). IDEA makes sure that students with a disability receive a Free Appropriate Education, which is designed to meet their needs."
• "Judy worked towards independence for disabled people Judy co-founded the World Institute on Disability in 1983. The World Institute on Disability is dedicated to helping disabled people live as independently as possible.
• "Judy Heumann's tireless efforts, protest and constant work helped establish the Americans with Disabilities Act.
The Americans with Disabilities Act is a civil rights law that protects disabled people against discrimination in all areas of life."
• “Thank you Judy. Rest in Power.
We will not forget the work you did to change disability rights forever." ##Disability #disabilitycommunity
#DisabilitylsDiversity #disabilityawareness
#DisabilitiesAwareness
#DisabilityAdvocate #disabilitysolidarity #DisabilityReframed #disabilitysupport
#invisibledisabilities
#inclusionmatters #Inclusion
#InclusionRevolution #ChooseTolnclude
#accessible #AccessibilityForAll
#disabledaccess #AccessibilityMatters
#accessforall #Disabled
#DisabilitiesAdvocate
#DisabledButNotReally
#RememberingJudyHeumann #ripjudyheumann #RIPJudy
#judyheumann #Activism

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Playing The Devil's Advocate When Talking About Able-Bodied People Dressing Up As Disabled People For Halloween

In one of my previous opinion pieces I stated that people should not dress up as a disabled person during Halloween. Sometimes people dress up as disabled historical figures and don’t even realize it (and it isn’t even their own fault to some extent). That is because some famous people with invisible disabilities have done a good job of hiding their disabilities, thus giving the illusion that they are not disabled. This is where I think we shouldn’t criticize people for dressing up as historical figures that have a disability. One rule of thumb I go by is “If this person was able to get to where they are without support programs for those with their disability, would they still be successful?”. Another rule of thumb is asking,” When can you use person-first language to describe the person and also have no descriptors change”, that is the time when it is ok to not criticize others who dress up as a historical figure with a disability for Halloween. If at least 10% of all adults have an invisible disability, you are likely to find a handful of people dressed up as historical figures with learning disabilities at any Halloween event.

Whenever people talk about Elton John, Edward Snowden, and Julius Caesar, all epileptics, their disability is almost never mentioned in the conversations about them. One could call Greta Thunberg an activist instead of an autistic activist: since anyone can memorize the amount of CO2 a sweatshop produces. One thing people in the United States don't talk about when mentioning Greta’s rise to fame and success is that she is a “nepotism baby”, even though she attributes her success to her autism. Also Elton John’s, Edward Snowden's, and Julius Caesar's epilepsy didn't get in the way of them doing their work at the height of their careers. Almost all the people dressing up as Greta Thunberg, Julius Caesar, Elton John and Edward Snowden aren't doing so to mock disabilities. In their context, those people are dressing up as famous influencers whose achievements define them more than their disability.

However, unlike the celebrities above, you cannot separate Helen Keller from her disability while having a conversation about her. If Helen Keller didn't have a disability she would just be known as a woman with a university degree. You also cannot separate Temple Grandin from her autism when talking about her, as her autism has played a huge role in her inventions. If Temple Grandin didn't have autism, she might have just been a veterinarian instead of someone who revolutionized the way livestock are treated and cared for.

Another problem within the Halloween costume debate is when able-bodied people treat adaptive equipment like accessories. I've heard of stories of “emotional support peacocks” and “emotional support pigs” pooping on planes, which can lead to people questioning the legitimacy of actual guide dogs. People who need adaptive equipment to do regular tasks is another situation when a person can't separate themselves from their disability, even if they are able to hold a regular job. An example is Walter White Jr from Breaking Bad. Despite the fact that his personality has a bigger influence than his physical disability in terms of his relationships with other people, he couldn't do every day tasks without his adaptive equipment.

#InvisibleDisability

#invisibledisabilities

#Epilepsy

#LearningDisability

#LearningDisabilities

#halloweencostume

#Costume

#Halloween

#Autism

#adaptiveequipment

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When the Family Scapegoat Is Dying

My family is treating me like a vulnerable narcissist with Munchausen Syndrome...even those who are Emergency Medical Technicians. To be clear, I have been on Social Security Disability Insurance since 2002. My family assumes this is because of mental illness; although, no one ever asked.

My disability was based upon both physical and mental health issues...a chronic pain disorder; which, causes mental distress. Since being granted SSDI, I have had one or more diagnoses added to my chart after every single one of my Medicare annual exams. Most of these diagnoses are considered disabling according to the Social Security Administration.

Over the years, unlike family members, no one ever saw me posting on Social Media every time I received a new diagnosis, when I had a medical procedure, when I had surgery, every ER visit, etc. I was never posting pleas for prayers pending outcomes of labs, imaging, or having a high risk surgery. I never posted how many times I almost died.

The only time I made a FB post about my health, until now, was when I was rigged up for outpatient EEG monitoring. I posted it with pictures because I looked hilariously pathetic. The photos went along with the story of riding the bus in this condition and the shocked reactions of the passengers. I posted this comical story in an attempt to make light of the situation and put a positive spin on it.

The only reason I'm posting about this current life-threatening illness is: !) The pathogen I am infected with is resistant to all known remedies and I'm scared 2) I am angry at the utter lack of compassion by my entire family--family of origin, adult children, and extended family.

There are many articles about when a Narcissist is aging and has failing health. Where are the articles about when the family Scapegoat is dying?

#narcissisticfamily #FamilyScapegoat #invisibledisabilities #elderabuse #lifethreateningillness

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Everyone is different & the smart ones are the ones getting help. Maybe we aren’t the ones with the disabilities. We just talk about it & get help.

I think everyone has a disability of some kind. But we are the intelligent ones talking about it & getting the help we need. What about the rest of the world? The silent ones? Do you think they are perfect & have nothing wrong with them? Sure. I think they just hide their problems, illnesses & disabilities and they are the quiet ones watching us enviously as we fight to get the help we need. No matter what others may think of us. The others are hiding in shame as they realize they really aren’t perfect after all but would never admit it out loud. They continue to exist & keep their problems to themselves & all the while they are getting worse alone, no courage to speak the unforgivable words that they just might not be so perfect after all. We are the smart ones & keep fighting til the end. We have a voice and everyone can hear it and wish that they had the same strength and a voice of their own. LOVE TO YOU ALL! Jeri ♥️. #fightforyourlife #livinglife #useurvoice #beheard #Disabilities #Abilities #einstein #toomanybrains #harddriveisfull #invisibledisabilities #Bipolar #PTSD #Epilepsy #TBI #BUYPOLAR

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Why Am I Having Anxiety Attacks On and Off...

...about ending up back in the psych ward again? I'm having zero suicidal or homicidal thoughts, and zero self-harming behaviors, yet I'm still so paranoid! I'm having anxiety right now AGAIN over this. Why??!!! It's completely ridiculous! Although I have to say I do hate myself right now for being so ridiculously anxious!

#GeneralizedAnxietyDisorder #AnxietyAttacks #BorderlinePersonalityDisorder #SchizoaffectiveDisorder #PTSD #MentalHealth #Disabled #invisibledisabilities

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